In my view this is a case confirming once again that a radical change in privacy legislation is absolutely needed, in particular with regard to ownership and retention schedule of medical data that in their digital instance have implications very different from the paper based version and from other types of digitised personal data.
I have now put my ideas and notes - some occasionally anticipated through this mailing list - in a brief for a "Big Data Big Privacy Workshop" advertised at http://www.brunellalongo.co.uk/jobs.html - please contact me privately if you are interested in co-funding and co-organising such a 'big bang' like Workshop.
Brunella Longo
Information Management Adviser
http://www.brunellalongo.co.uk
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