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DIS-FORUM  January 2009

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Subject:

Re: Student with myasthenia gravis

From:

"E.A. Draffan" <[log in to unmask]>

Reply-To:

Discussion list for disabled students and their support staff.

Date:

Mon, 19 Jan 2009 17:16:11 -0000

Content-Type:

text/plain

Parts/Attachments:

Parts/Attachments

text/plain (85 lines)

I have worked with a student in the past who had this condition and we were
able to offer the DSA to them through their local LA at the time – it
appears LSE also feel this is a condition that warrants support from the
allowance
www.lse.ac.uk/collections/disabilityOffice/pdf/ServicesforLong-TermMedicalCo
nditions2007.pdf - I just did a Google search, as I was rather horrified
about the thought of not being able to support this student in the way you
describe. 

Best wishes E.A. 

Mrs E.A. Draffan
Learning Societies Lab,
ECS, University of Southampton,
Tel +44 (0)23 8059 7246
http://www.lexdis.ecs.soton.ac.uk
http://www.emptech.info

From: Discussion list for disabled students and their support staff.
[mailto:[log in to unmask]] On Behalf Of Alison Phillips
Sent: 19 January 2009 13:02
To: [log in to unmask]
Subject: Student with myasthenia gravis

Hello all,
One of our students has myasthenia gravis and has been denied DSA. Does
anyone know of any students with the condition who are in receipt of DSA or
if they have had problems getting it?
Here is a little more info on the condition:
The hallmark of myasthenia gravis is muscle weakness that increases during
periods of activity and improves after periods of rest. Certain muscles such
as those that control eye and eyelid movement, facial expression, chewing,
talking, and swallowing are often, but not always, involved in the disorder
(http://www.ninds.nih.gov/disorders/myasthenia_gravis/detail_myasthenia_grav
is.htm) 
The student in question has problems with her eyes and when she reads too
much she gets double vision, fatigued and has to rest to get better – often
resulting in missing classes and not being able to study. We feel that she
would benefit from some software that reads out materials for her, to help
rest her eyes
If you have any comments please reply to me directly
([log in to unmask]).
Best wishes,
Alison
--
Alison Phillips
Disability Adviser
Roehampton University
Student Advice Centre
Froebel College
Roehampton Lane 
London, SW15 5PJ
 
Tel: 020 8392 3875
[log in to unmask] 
 


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