Hi all, real interesting debate and I'm a big believer in giving choice as per others have already stated.
My view in this has always been privacy supported by DPA, as the fact is before long it seems that everyone's data is going to be out there somewhere! Big data, Open Data, HSCIC data, Transparency et al........the fact is we will all be sat waiting for that final connector to a data....and what a judgement day that will be!
now is the time to turn this on its head.... the protection of privacy supported by the protection of the data......because we know it makes sense!
Well that's my thought anyway :)
Nicky
Sent from my iPhone
> On 31 Mar 2014, at 16:10, "Paul Ticher" <[log in to unmask]> wrote:
>
> Warning: This message contains unverified links which may not be safe. You should only click links if you are sure they are from a trusted source.
> Generally I agree that people should be able to use the methods that suit them, but they must be made aware of the risks. With e-mail I think the biggest risk (because it's a neat combination of technical and human weakness) is auto-complete when you start typing an email address. The scope for sending sensitive information to the wrong person is enormous. On the other hand, if you have someone's email address as a field in their database record and click a button labelled 'Send an email to this person' the risk is significantly diminished. The system can also, of course, keep a copy of the communication as part of the record: win/win.
>
> That suggests that it is better for the organisation to think ahead and set up a system that can capture and hold email addresses, then make it mandatory to email from within the system - rather than make ad hoc decisions that result in individual staff taking the riskiest option for want of anything better. Head in the sand is not the answer.
>
> Best wishes,
>
> Paul
>
>
> Paul Ticher
> 0116 273 8191
> www.paulticher.com
> 22 Stoughton Drive North, Leicester LE5 5UB
>
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>
> ----- Original Message ----- From: "Simon Howarth" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Monday, March 31, 2014 9:14 AM
> Subject: Re: Secure Messaging for patients
>
>
> I am very much involved in this area and it annoys me that there is a still as "Oooo you can't do that" attitude. The plain fact is that patients themselves are requesting contact by these methods. Of course we need to ensure that patients are made aware of the risks and we need to further ensure that information of a sensitive nature is kept to a minimum. However, contact by text and email and Skype are all being done within the NHS now, with due care given to risks and benefits.
>
> One place I do work for are in the process of putting together a text messaging service to let HIV patients know their test results; requested by a growing number of patients.
>
> Also, we get very hung up about email - it's not perfect, but it's a very effective and secure communications medium and a perfect vehicle for providing key information to patients. The sooner we adopt good practice and get on with it the better.
>
> There are a lot of projects (less joined up than they might be) on the go at the moment, here are a few:
>
> * Test results by text to HIV
> * Appointment reminders
> * A system in the midlands to allow patients to be reminded to take actions on their health - "Take you insulin".
> * Skype used for mental health consultations.
> * Emails between patients and doctors for key health issues.
> * Systems like "www.patientsknowbest.com" which is changing how medical records are perceived within healthcare.
>
> It's here. We need to embrace this stuff and make sure it is done right rather than try to block it on the grounds that there is risk. There is risk with everything, all the time.
>
> On the subject of GPs - I have yet to meet a GP under 65 that is not for all this, their concern is that it is done correctly and does not remove the relationship that GPs have with their patients.
>
> As you can see I can write a book on this stuff, and in summary - this progress is good. Let's do it right and improve care and save money - the holy grail of the NHS.
>
>
> Simon Howarth MSc. MBCS CITP
> Director and Senior Consultant
> The Information Edge
> Mob. 07836 365588
>
> Webtech Systems Limited t/a The Information Edge. Registered in England No. 3428632
> www.informationedge.co.uk
>
> -----Original Message-----
> From: This list is for those interested in Data Protection issues [mailto:[log in to unmask]] On Behalf Of Brunella Longo
> Sent: 27 March 2014 17:21
> To: [log in to unmask]
> Subject: Re: [data-protection] Secure Messaging for patients
>
> And in any case, if one had the faintest idea of what 'secure' means in information and communication technologies, he / she would never put forward such talks "in the interest of patients" - and not because of "simple" risks of losing confidentiality but because accidental or fraudulent errors in patients' data risk to misrepresent their health status and to make GPs liable for the consequences.
>
> Anyway, if anybody is interested in a pilot project exploring ways in which human computer interactions in the health records management field can be designed in order to provide the system with additional levels of trust and security, please get in touch.
>
> Brunella Longo
> Information Management Adviser
> http://www.brunellalongo.co.uk
>
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