If you are talking about locally you can write to the PALS - Patient Advice
and Liaison Services.
You can also write to the individual members of the Board of your Trust.
They will be listed on their website - possibly with email addresses.
I have recently done similarly about the closure of a facility in my area.
You can certainly make your voice heard.
Indeed many of the messages from this group concern enquiries from the
members of the public who certainly make life difficult for staff of
organisations - it might not be constructive - but I would have thought that
there are quite a few ways for articulate professionals to make their voices
heard.
Nick Landau
----- Original Message -----
From: "Tim Trent" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, July 14, 2006 10:58 AM
Subject: Re: [data-protection] Debate over Patient Consent for Electronic
Records
I don't dispute that websites have them (probably) and that yours does
(certainly), but I have never been asked about my medical records and any
integration with other Orwellian 1984 inspired services.
I have no idea how to make my voice heard though.
Perhaps I should complain about my local NHS trust that the must de facto be
processing data unfairly? Or will we need 1,600 + complaints before it is
treated as important enough to enforce about?
-----Original Message-----
From: This list is for those interested in Data Protection issues
[mailto:[log in to unmask]] On Behalf Of Anne Gadsden
Sent: 14 July 2006 10:53
To: [log in to unmask]
Subject: Re: [data-protection] Debate over Patient Consent for Electronic
Records
Tim, we do happen to have a DPA Fair Processing notice on our NHS Trust
website
http://www.ncumbria.nhs.uk/acute/patientsandvisitors/your_information.aspx
However, in my personal capacity I too feel uncomfortable with the
Electronic Patient Record, particularly as the Government is also
introducing Electronic Staff Files for the NHS, at the same time as pushing
for National ID cards, various new data bases and "joined up services"
sharing information.
It worries me, and I would like to see the public getting more involved in
asking the questions, particularly as these systems are very expensive, and
the potential for any Government to abuse this wealth of information is
there.
Anne
Anne Gadsden AHRIM
Information Governance Officer
Information Services Department
North Cumbria Acute Hospitals NHS Trust
Cumberland Infirmary
Carlisle CA2 7HY
01228 814539 (direct line)
e-mail: [log in to unmask]
>>> Tim Trent <[log in to unmask]> 14/07/2006 09:52
>>>
I have never, ever, seen a Fair Processing Notice from the NHS. I had no
idea this was happening without my express consent. I do see the benefits,
BUT see also:
http://www.computerweekly.com/Articles/Article.aspx?liArticleID=216882&liFla
vourID=1
I also see grave dangers.
-----Original Message-----
From: This list is for those interested in Data Protection issues
[mailto:[log in to unmask]] On Behalf Of Tinsley, Chris
Sent: 14 July 2006 09:05
To: [log in to unmask]
Subject: Re: [data-protection] Debate over Patient Consent for Electronic
Records
This is a case of if the law makes work a bit harder and slightly
inconvenient we won't bother to follow it, after all think of the benefits.
Chris Tinsley
Wiltshire County Council
Tel:01225 713644
-----Original Message-----
From: This list is for those interested in Data Protection issues
[mailto:[log in to unmask]] On Behalf Of Nick Landau
Sent: 13 July 2006 20:28
To: [log in to unmask]
Subject: [data-protection] Debate over Patient Consent for Electronic
Records
Quote from [log in to unmask]
>> Debate over Patient Consent for Electronic Records
The current policy of loading patients' medical records onto national
electronic records systems unless they request otherwise is likely to remain
in place, despite condemnation from doctors.
> http://www.informatics.nhs.uk/item/1909
Nick Landau
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