In a message dated 27/02/2001 11:18:30 GMT Standard Time,
[log in to unmask] writes [cut down]:
<< Whether they should need to seek consent for this is seems to
be an issue for this group. My own personal feeling, is that it is very
sad to try and restrict health professional from gathering information
to treat patients on an evidence based basis. >>
------------------
Su
Information on the treatments given for evidence-based research should not be
affected by the DPA nor is it what this discussion should be concentrating
on. Where the information is effectively depersonalised there should be no
problem in using the data for research purposes.
Where the information cannot be separated from the personal data this points
to a problem with the systems and if the NHS is introducing a computer
program with no privacy technology included then it should be ashamed of
itself. If the end result is that the only way the research can take place
is via a piece of legislation to override the consent and privacy issues then
the government ought to be ashamed as well.
The issue of consent (for processing data about an identified living
individual) has been known about since the EC Directive was adopted nearly
six years ago.
None of us, as far as I know, are anti-NHS or even anti-research but as
people become more aware of their rights to know what is happening with their
data, their organs, or whatever, the NHS will have to ensure it has the
appropriate consent.
Personally, if information about my treatment or a piece of my body tissue
could help another individual I would not object to it being used for that
purpose. But it would be nice if you asked me first - is that too much to
ask?
Ian B
MD
Keep IT Legal Ltd
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