Hi,
And it might also be that those who have highly visible impairments might make negative comments and/or be in positions of power over those who have non-apparent impairments? There's an interesting area here for research in the power relationships within the disabled community.
ATB
Claire
Operations Manager
Vassall Centre Trust
http://www.vassallcentre.org/
Tel: 0117 961 7596
Please note this email was composed using voice recognition software and may contain small errors.
-----Original Message-----
From: The Disability-Research Discussion List [mailto:[log in to unmask]] On Behalf Of Paul Sullivan
Sent: 11 November 2011 12:46
To: [log in to unmask]
Subject: Re: The psychopathology of the non-disabled: a call for stories
Hi Karen,
This is very interesting.
I think Dan was talking about comments by people generally,
on the Bus or train so to speak, rather than by those in
particular positions of power over us. Unless you believe
that not having an impairment puts you in a position of
power over someone who does automatically.
I wonder if there is not a power in balance between
different disabled people too. I suspect that it is the
people who have their needs met the most, or who can find
ways of working round their particular impairments, who
disparage other disabled people the most.
Any thoughts?
Paul
----- Original Message -----
From: "Karen Beauchamp-Pryor" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, November 11, 2011 11:53 AM
Subject: Re: The psychopathology of the non-disabled: a call
for stories
Hi,
Another thought about the 'us' and 'them' divide in terms of
the
inappropriateness use of comments: it is about the divide
between those who
hold power and those who lack power and in many situations
it is the
disabled person who lacks power and lacks a voice. When I
was researching
the experiences of disabled students in higher education I
attended a number
of meetings as an observer. At one of these meetings a
remark was made
about whether the experiences of disabled students needed to
be taken into
consideration and a senior manager responded: 'well we are
talking about odd
balls'. For me, it is about the power behind such a comment
and,
personally, if I was called an 'odd ball' I would react
differently
depending on who made the remark and in what context.
Karen
----- Original Message -----
From: "Paul Sullivan" <[log in to unmask]>
To: <Another thought about the 'us' and 'them' divide in
terms of the
inappropriateness use of comments: it is about the divide
between those who
hold power and those who lack power and in many situations
it is the
disabled person who lacks power and lacks a voice. When I
was researching
the experiences of disabled students in higher education I
attended a number
of meetings as an observer. At one of these meetings a
remark was made
about whether the experiences of disabled students needed to
be taken into
consideration and a senior manager responded: 'well we are
talking about odd
balls'. For me, it is about the power behind such a comment
and,
personally, if I was called an 'odd ball' I would react
differently
depending on who made the remark and in what context.
Karen
>
Sent: Thursday, November 10, 2011 6:38 PM
Subject: Re: The psychopathology of the non-disabled: a call
for stories
Hi Dan,
Don't you think that disabled people make such comments
about other disabled people with impairments different from
their own? I think they do. In fact I have heard them.
I think we need to stop talking about "them" and "us" and
recognise that we are all "us".
Just a thought, and not an original one either.
Paul
----- Original Message -----
From: "Dan Goodley" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, November 10, 2011 2:42 PM
Subject: Re: The psychopathology of the non-disabled: a call
for stories
Comrades
I have already received many, many powerful responses to my
request last month. I have responded to people individually
but wanted also to say a big collective thanks. Also, I
wanted to send one further email request out for those that
might have missed it. Many thanks Dan.
The psychopathology of the non-disabled: a call for stories
Comrades
I am writing a slightly tongue in cheek (as you can tell by
the working title) but also, I hope, serious, article
exploring non-disabled people's reaction to disability. I
would like to collect stories from list members about
non-disabled people's verbal or other responses to
disability that you have witnessed.
In writing the article I will be making clear that not all
non-disabled people engage in such responses, that many
non-disabled people are allies, friends, supporters and
parents of disabled people and that we are all marked by
differences associated with class, gender, age, sexuality,
ethnicity, etc. Moreover, of course, what counts as
non/disabled is open to debate. However, I do want the
article to expose, hopefully explain and also challenge some
of the common reactions of non-disabled society to
disability.
I have already collected a number of stories from existing
disability studies texts, research and my own personal
accounts. Some of these include:
You get that all the time people stare, people comment, or
people ... I would rather people said to me, 'What's wrong?'
rather than just stare. Then you can hear them as soon as
you walk past, [whisper sounds]. (Jemma, mother of a
disabled child reported in McLaughlin et al, 2008).
When people comment on my impaired experience I am shocked,
amused and angered all at once (Hewitt, 2004: 13).
A lifetime with psychic armour as sure as skin ... where
thousands of daily encounters are layered with danger,
disgust or distress (Lurie, 2004: 85)
'Your child's the naughty boy in my child's class, isn't he?'
(A parent's question to the mother of a child with the label
of ADHD).
'I never think of you as disabled' (A common 'positive'
comment from friends of the disabled writer Michalko, 2002)
'At least he's not too disabled' (A health visitors comments
to the mother of a new-born baby).
'Did you read on the web that 52% of the American public
would prefer to be dead than disabled?' (Bar chat on a
November night).
'You are just so brave, I don't know how you cope' (A mother's
comment to another mother of a disabled child in the
playground).
'I don't know how you can work with those people ... It must
be so rewarding to work with those people' (Contradictory
comments from a friend to a key worker for people with
learning difficulties).
'I've had coins dropped in my lap by strangers in the street'
(Hewitt, 2004)
'Don't worry about paying love, we don't charge for retards'
(comment from a fairground assistant to the mother of a
disabled child, from Goodley and Runswick Cole,
forthcoming).
If you would be willing to share some similar (or not!)
stories then please could you email them to
[log in to unmask] Any reference to these stories in the
article would recognise the source (e.g. as shared by Jon
Smith, 2011, personal communication) but, of course, if you
would prefer to keep these anonymous then that would be
totally fine too.
Thanks for reading
Dan Goodley
Dr Dan Goodley
Professor of Psychology and Disability Studies
Manchester Metropolitan University
Department of Psychology
Manchester, M13 0JA
http://cdsmmu.posterous.com/
http://www.hpsc.mmu.ac.uk/psychology/
http://mmu.academia.edu/DanGoodley
http://post-blair.posterous.com/
Visiting Professor, University of Iceland
Visiting Professorial Fellow, University of New South Wales
Before acting on this email or opening any attachments you
should read the Manchester Metropolitan University's email
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________________________________________
From: The Disability-Research Discussion List
[[log in to unmask]] on behalf of Allan
Sutherland [[log in to unmask]]
Sent: Wednesday, October 05, 2011 3:35 PM
To: [log in to unmask]
Subject: Re: Sorry Wrong Link this is what I meant
Thanks for that link, Larry. It encapsulates a great deal
of what I feel
about being epileptic.
Best wishes
Allan Sutherland
----- Original Message -----
From: "larry Arnold" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, October 05, 2011 11:43 AM
Subject: Sorry Wrong Link this is what I meant
Sorry I sent the wrong link I was looking for this
instead: -
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