There is a Retts Snydrome Disease Society in the UK and there used to be a
physio nationally advising others attached to the society. I suggest you
can either contact the CSP for her name or the Retts Disease Society direct.
Having had some limited contact with a patient and her family with this
problem in the past i'm sure you'll enjoy the work. Rita Kenny.
rita [log in to unmask] (previosly a physio working with adults with
learning disabilities)
>From: Kathryn Clark <[log in to unmask]>
>Reply-To: [log in to unmask]
>To: [log in to unmask]
>Subject: Rett Syndrome
>Date: Tue, 01 Feb 2000 16:21:39 +1000
>
>I would like to talk with therapists who treat girls with Rett Syndrome, as
>we are setting up our first multidisciplinary clinic for these patients at
>present.
>
>Please contact me if you have experience in this area,
>
>Kathryn Clark
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