Hello Lilith, I hope to see more responses to your inquiry, as I am interested
in the same sorts of materials and have not found much either. I would highly
recommend Irving Kenneth Zola's 1982 _Missing Pieces: A Chronicle of Living
with a Disability. (Philadelphia: Temple University Press) I found it to be a
great read and an excellent model for scholarship linking personal biography to
broader theoretical issues. I set out quite awhile ago trying to find materials
(models) for research that was based on lives, as lived by the researcher... so
that the experiences and such would have happened whether it was the intention
to write-up research about it or not, but have only found a single article like
that (Rier, David. 2000. "The missing voice of the critically ill: a medical
sociologist's first-person account." Sociology of Health and Illness 22(1):
68-93.) and it is about an experience quite limited in duration... so still not
up to the task of the sociological experiment/experience that has been my
everyday life for the last decade and continues as I write this. A professor
has suggested works in biographical sociology, but I have not found anything
satisfactory yet. I can also pass on several other suggestions I have received
as far as support for a phenomenological approach to research if you would be
interested, but I am just beginning to explore that literature myself and am
reluctant to just toss out a bunch of names I know hardly anything about.
I am looking forward to seeing how your project progresses. Best Wishes.
Jamie L. Przybysz
Department of Sociology
810 Flanner Hall
University of Notre Dame
Notre Dame, IN 46556
LILITH Finkler wrote:
> Hi there! I am writing my thesis proposal and have been looking for examples
> and/or theoretical approaches to participatory research involving people
> with disabilities. Much to my surprise and chagrin, there does not seem to
> be alot around. Am I missing stuff? Anyone have any suggestions? Thanks in
> advance, Lilith Finkler
> P.S. I am a grad student in Environmnetal Studies at York University in
> Toronto, Canada.
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