Hi there! I am writing my thesis proposal and have been looking for examples
and/or theoretical approaches to participatory research involving people
with disabilities. Much to my surprise and chagrin, there does not seem to
be alot around. Am I missing stuff? Anyone have any suggestions? Thanks in
advance, Lilith Finkler
P.S. I am a grad student in Environmnetal Studies at York University in
Toronto, Canada.
Here are a few ideas
Hartman, A., DePoy, E., , Francis, C. and Gilmer, D. (2000) Adolescents with special health care needs in transition: Three life histories. Social Work &Health Care, 31,4,3-58.
DePoy, E. & Gilmer, D. (2000) Adolescents with disabilities and chronic illness in transition: a community action needs assessment. Disability Studies Quarterly, Spring, 2000.
Gilson, S. F., Bricout, J. C., & Baskind, F. R. (1998). Listening to the voices of individuals with disabilities. Families in Society, 79(2), 188-196.
Social work literature, research, and practice on disabilities has lagged behind other topical areas dealing with oppressed groups. The social work literature remains "expert focused" and generally fragmented into discussions of specific
disabilities or subpopulations. A viable general model that deals with the personal experience of disability is not available. This exploratory study presents a social work literature search and analysis as well as interviews with six individuals
with disabilities about their experiences with social workers and provides a base for follow-up research on models of consumer-focused social work practice in the area of disability. (Journal abstract.)(edited)
Cook, P., Cook, M., Tran, L., & Tu, W. (1997). Children enabling change: a multicultural, participatory, community-based rehabilitation research project involving Chinese children with disabilities and their families. Chil and Youth Care Forum,
26(3), 205-219.
A participatory, action-oriented research approach was used in developing community-based services for children with disabilities in an urban Chinese community. The findings of the research are discussed with the aim of building on community
strengths to reinforce existing family support programs and involve families and children with a disability in such processes in a culturally appropriate manner.
Beaulaurier, R. L., & Taylor, S. H. (1999). Self-determination and consumer control: Guiding principles in the empowerment model as utilized by the disability rights movement. In W. Shera & L. Wells (Eds.), Empowerment practice: Developing richer
conceptual foundations (pp. 159-177). Toronto: Canadian Scholars Press.
Heather MacDuffie
Center for Community Inclusion
University of Maine
5717 Corbett Hall
Orono, ME 04469-5717
581-1468
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