More for the mix!
On the opt-out form which I was given at my GP practice (as set out
in my first post on the question) the two opt-out options are worded
as follows:
"If you want to object to the extraction of your Personal Confidential
Data (PCD) from leaving the practice (or from any other health
organisation) please complete the reply slip below and return it to
Reception. We will then amend your medical record accordingly."
And the "reply slip" has two items:
Make Your Choice(s) below:
1. I do not wish information that identifies me to be shared outside
of my GP practice. (Code XaZ89) [tick-box]
2. I do not want information that identifies me to be used by other
healthcare organisations such as Hospitals, Community Services,
and research projects. (This will, in the future, prevent any of
your Personal Confidential Data leaving the Health and Social Care
Information Centre (SCIC). (Code XaaVL) [tick-box]
There was not information about what Codes "XaZ89" or "XaaVL" meant.
So I have googled on "Code XaZ89". Amongst the results are several
links to opt-out forms from different GP practices, such as:
[1]
http://www.trafalgarmedicalpractice.co.uk/website/
B82088/files/Care_Data_Opt_Out_Form.pdf
[2]
http://www.haxbygroup.co.uk/wp-content/uploads/2013/10/
Patient-Care-Data-Opt-out-Form.doc
[3]
http://www.culverhaysurgery.com/website/L84027/files/
HSCIC_Data_Sharing_Opt_Out_Form.pdf
[4]
http://www.stgeorges-littleport.co.uk/website/D81021/files/
Care_Data_patient_opt_out_form.doc
[5]
http://www.combsfordsurgery.org.uk/website/D83079/files/
care.data_and_edsm_consent_and_dissent.doc
and many more ... And these are all differently worded!
Similar results emerge from googling on "Code XaaVL", which was
associated with the second opt-out option.
In particular, none of [1], [2], [3], [5] above (I have not read
further) have the apparent inconsistency between the information
leaflet (as dropped though my door) and opt-out option number 2
(which was what got me going in the first place -- from its wording,
by opting out I would prevent medical infromation which identifies
me from going to Hospitals, among other destinations, which struck
me as strange).
My own GP practice is in fact number [4] above, so you can check what
I said about the inconsistency!
When I pointed out to the receptionist that this second option did
not seem to be consistent with the information leaflet, she seemed
non-plussed; when I asked whether the form had been prepared at the
practice, she said no, it was what they had been given. (Of course
she could have been mistaken about that).
So it sseems that, by virtue of the variations in wording, patients
in different practices will be under the impression that they are
choosing to opt out of different arrangements, according to practice!
Ah well! Now why did not the NHS supply a standard form to be used
by all practices???? Each practice seems to have concocted its own
version! Surely this is a shambles!
Best wishes to all,
Ted.
-------------------------------------------------
E-Mail: (Ted Harding) <[log in to unmask]>
Date: 01-Feb-2014 Time: 20:06:56
This message was sent by XFMail
-------------------------------------------------
******************************************************
Please note that if you press the 'Reply' button your
message will go only to the sender of this message.
If you want to reply to the whole list, use your mailer's
'Reply-to-All' button to send your message automatically
to [log in to unmask]
Disclaimer: The messages sent to this list are the views of the sender and cannot be assumed to be representative of the range of views held by subscribers to the Radical Statistics Group. To find out more about Radical Statistics and its aims and activities and read current and past issues of our newsletter you are invited to visit our web site www.radstats.org.uk.
*******************************************************
|