This is indeed interesting! And it has the appearance of being well
researched!
Looking at "File --> Properties" when this PDF is opened in Acrobat
Reader shows "Author: Dr Neil Bhatia". This may provide a lead.
Also visible is:
"Created: 19/11/13 22:27:59"
"Modified: 10/01/14 19:121:24"
Googling on "Dr Neil Bhatia" locates him at the Oaklands Practice,
Yately [Hampshire] Medical Centre: http://www.ymcentre.info/staff1.aspx
He seems to be strongly involved in information protectionn etc.,
as illustrated in:
https://www.whatdotheyknow.com/user/dr_neil_bhatia/
http://www.neilb.demon.co.uk/
http://www.hampshirehealthrecord.info/
[many other hits]
However, note that the four opt-out codes 9Ndo/9Nu0/9Nu4/93C1 which
are discussed by Dr Neil Bhatia are not the same as the opt-out codes
given in the "Care.Data Patient Choice Form":
XaZ89 for option 1 (not "to be shared outside GP practice")
XaaVL for option 2 (not "to be used by other healthcare organisations")
[quoting the wording on the form from my GP practice]
so, despite the apparent clarity of Dr Neil Bhatia's document, I still
wonder to what extent it is relevant to the current Care.Data issue!
Best wishes,
Ted.
On 04-Feb-2014 09:45:22 Kornbrot, Diana wrote:
> This appears a brilliantly clear way of presenting the options
> Many, many thanks
>
> Do you know the source? Or how might one find the source
>
> This is the way the NHS should present data and I intend checking it is
> correct with Head of the HRA
>
> I and NO IDEA there were 4 different opt-outs a person could choose!
>
> best
>
> Diana
>
>
>
> On 3 Feb 2014, at 17:47, Ben Anderson
> <[log in to unmask]<mailto:[log in to unmask]>> wrote:
>
> I've not seen this posted to the list, apologies if it has but it _appears_
> to lay out the various potential data flows and the codes being used to flag
> objections.
>
> https://dl.dropboxusercontent.com/u/14156524/control.pdf
>
> I’d welcome informed comment on it’s validity!
>
> Some of these codes appear to have other forms (but the same effects) judging
> by various emails & opt in/out forms I have seen. It does all appear to have
> been constructed to encourage people to opt out in response to fears over
> potential (unknown) commercial uses of identifiable data - and thus negate
> the value of the data.
>
> Will opt-outers be missing at random? Doubt it.
>
> Ben
>
> On 3 Feb 2014, at 10:29, Macfarlane, Alison <[log in to unmask]>
> wrote:
>
> See below
>
> new article by Alison Macfarlane and Allyson Pollock here
> http://www.opendemocracy.net/ournhs/allyson-pollock-alison-macfarlane/opting-o
> ut-of-caredata-is-not-answer
>
> would encourage people to share and use the comments facility
>
> best
> caroline
>
> --
> mobile 07931 302507 / tel 01453 753700
> @carolinejmolloy
>
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E-Mail: (Ted Harding) <[log in to unmask]>
Date: 04-Feb-2014 Time: 10:44:49
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