Dear all
I thought that this might be an interesting list (id-research-uk) to use
to check some views about the NICE guideline development process. I've
been looking forward to the time when NICE finally got around to
developing guidelines for various issues faced by children and adults
with learning disability and/or autism. I had in mind that this would be
a positive thing for our field.
I may have been rather stupidly naive. I must admit to paying too little
attention to the NICE guideline on adults with autism when it came out -
perhaps because I wasn't too unhappy with the general conclusions.
However, looking at the draft guideline for the "management" of autism
in children I have some deep concerns about the NICE process. It seems
to me that the same "problems" will emerge with the upcoming process to
develop guidelines for challenging behaviour in adults with learning
disability. If more guidelines are developed for our field, we will keep
hitting the same problems.
Rather than rehearse all the points here, I've written a blog that
(inelegantly) covers the main concerns that I have (focused on the draft
autism guideline but the points are more general). Perhaps if you're
interested, you could take a look?
http://profhastings.blogspot.co.uk/2013/04/autism-and-evidence-6.html
I'd be very interested in a debate on this email list, or just to hear
directly from those of you who might share similar concerns (or not!).
Also, perhaps some of you are aware to feedback loops into NICE where
some of these issues are being debated. Is there something
special/specific to LD/autism that means that the NICE process will be
especially unhelpful if applied without some adaptations?
Of course one implication for researchers (and this is a list for those
interested in LD research) is that we do need to develop bigger and
better studies of interventions for children and adults with LD and
contribute to an evidence base that can stand up to wider scrutiny. I
guess the question is what damage might NICE guidelines do in the interim?
Best wishes
Richard
--
Richard Hastings PhD CPsychol FBPsS FIASSIDD
Professor of Psychology
Twitter: @ProfRHastings
Blog: http://profhastings.blogspot.co.uk/
Research Director, North Wales Clinical Psychology Programme
School of Psychology
Bangor University
Bangor
Gwynedd, LL57 2AS
Wales, UK
Tel: +44 1248 388214
e-mail: [log in to unmask]
Web: http://www.bangor.ac.uk/psychology/research/staff_profile.php?person=richard_hastings
--
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