Hi Monica
A few more references for you in the area of design and health information:
1) A group of designers at Mayo Clinic are working together with clinicians/researchers to design information with and for use by patients and clinicians. This group is in part led by designer Maggie Breslin and Dr. Victor Montori. Their work is grounded in a combination of methodology characteristic both of design practice and evidence-based research. The design approaches heavily influence their development work, while randomized trials are carried out to measure results. For an example, see
Montori VM, Breslin M, Maleska M, Weymiller AJ (2007) Creating a conversation: Insights from the development of a decision aid. PLoS Med 4(8): e233. doi:10.1371/journal.pmed.0040233
Mullan et al. The Diabetes Mellitus Medication Choice Decision Aid. A Randomized Trial:
Arch Intern Med. 2009;169(17):1560-1568
2) I work as a designer/researcher in an environment with a very similar approach as the group at Mayo. In 2004 I started working in a Norwegian institute with a strong foothold in the evidence-based (or evidence-informed, as it is more commonly refered to now) health care domain, and with close ties to the Cochrane Collaboration. I work closely with the Global Health unit and we focus on ways of moving research results into both health care practice and into policy making. My colleagues have warmly welcomed methods I've brought in from design practice, such as: participatory design processes, methods for user testing, collecting feedback from other stakeholders, a framework for exploring user experience, and the general principle of iterative development. We publish (so far) only in the health-care literature; but some examples of our work can be found in my PhD:
Rosenbaum SE. Improving the user experience of evidence. A design approach to evidence-informed health care. PhD thesis, Oslo College of Architecture and Design. December 2010.
If you want more information about our work, you can contact me offline.
3) In 2011 AHRQ (Agency for Healthcare Research and Quality) published a review of design methods and recommendations for improving consumer health IT application development. This report "summarizes and synthesizes findings related to design methods used for the development of successful consumer products in industries other than health care. It offers recommendations for developers of consumer health IT applications and provides directions for future research." AHRQ's approach in this review is both unconventional and convincing - the authors have identified successful "designed" products and gathered data about how each of these products were developed. The resulting analysis is "evidence" (of sorts) about the effectiveness of various design methods which I found compelling (though it was far from a randomized trial explicitly measuring effectiveness).
Agarwal R, Anderson C, Crowley K, Kannan PK. Understanding Development Methods From Other Industries to Improve the Design of Consumer Health IT: Background Report. (Prepared by Westat, under Contract No. HHSA290200900023I.) AHRQ Publication No. 11-0065-EF. Rockville, MD: Agency for Healthcare Research and Quality. May 2011.
Hope this is of help to you. Good luck with your work.
Sarah Rosenbaum
Designer/researcher
Norwegian Knowledge Centre for the Health Services
www.nokc.no
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