That sounds really terrible, David. The CPAP machine is like something
devised by torture chamber suppliers.
Good to see you joke, even at Pat's expense.
best
Randolph
On 25/05/2012 12:46, David Bircumshaw wrote:
> This is painful to read or hear, Chris, but also of some interest to me. I
>
> have symptoms very like those covered by CFS, in my case diagnoses have
> taken the form of 'fibromyalgia', (not established), COPD (established) and
> obstructive sleep apnea (established) plus a helping of other nomenclature
>
> like 'supraspinatus impingement' and that old favourite 'osteo-arthiritis'.
> All of those together, like system of bad rivers, produce what is very like
> the descriptions of CFS I've read. But, still, in my case, they do not lead
> to a cure, rather instead to minor palliative treatments (ironically these
>
> include the Australian invented CPAP machine, which is rather like a
> mini-vacuum cleaner, which I have to wear on my head each night :) and
> which provides some relief but not that of the panacea it is touted as over
> here).
> My suspicion, in both your case and mine, it is a matter of there being
> undiagnosed factors at work, my own doctors have just put me through
> another round of blood-tests, but looking at the history of CFS I notice
> that it's early reports, such as Royal Free Disease, seem to be of a viral
>
> nature, environmentally viral at that, and I wonder if there's not
> something like that at work. I know that pneumonia has multiple causes,
> including viral, and pneumonia is what my 'exacerbations' develop into if
> not caught by antibiotics in time ( I have become a very alert watcher of
> the horizon.
> Either that or, in case some wonder if this has nothing to with poetry, I'm
> suffering from the effects of reading snaps by Patrick every week since
> 2003, which could explain things :) - I couldn't resist that - you keep
> fighting man
>
> care
>
> David
>
|