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That sounds really terrible, David. The CPAP machine is like something devised by torture chamber suppliers. Good to see you joke, even at Pat's expense. best Randolph On 25/05/2012 12:46, David Bircumshaw wrote: > This is painful to read or hear, Chris, but also of some interest to me. I > > have symptoms very like those covered by CFS, in my case diagnoses have > taken the form of 'fibromyalgia', (not established), COPD (established) and > obstructive sleep apnea (established) plus a helping of other nomenclature > > like 'supraspinatus impingement' and that old favourite 'osteo-arthiritis'. > All of those together, like system of bad rivers, produce what is very like > the descriptions of CFS I've read. But, still, in my case, they do not lead > to a cure, rather instead to minor palliative treatments (ironically these > > include the Australian invented CPAP machine, which is rather like a > mini-vacuum cleaner, which I have to wear on my head each night :) and > which provides some relief but not that of the panacea it is touted as over > here). > My suspicion, in both your case and mine, it is a matter of there being > undiagnosed factors at work, my own doctors have just put me through > another round of blood-tests, but looking at the history of CFS I notice > that it's early reports, such as Royal Free Disease, seem to be of a viral > > nature, environmentally viral at that, and I wonder if there's not > something like that at work. I know that pneumonia has multiple causes, > including viral, and pneumonia is what my 'exacerbations' develop into if > not caught by antibiotics in time ( I have become a very alert watcher of > the horizon. > Either that or, in case some wonder if this has nothing to with poetry, I'm > suffering from the effects of reading snaps by Patrick every week since > 2003, which could explain things :) - I couldn't resist that - you keep > fighting man > > care > > David >