Hi
You can also change you digest options or view the topics in different ways on the list web page at
https://www.jiscmail.ac.uk/cgi-bin/webadmin?A0=disability-research
Best wishes
Mark
-----Original Message-----
From: The Disability-Research Discussion List [mailto:[log in to unmask]] On Behalf Of Bo Myers
Sent: 07 May 2009 07:02
To: [log in to unmask]
Subject: Re: DISABILITY-RESEARCH Digest - 5 May 2009 to 6 May 2009 (#2009-107)
OK, so I regret having to admit this, but the formatting of this list
is hard for someone like me to follow, whereas I usually do not have
such difficulties. Numerically identifying the topic 'entries' would
be a great start...
Thanks for an amazing resource.
Best,
Bo
Quoting DISABILITY-RESEARCH automatic digest system <[log in to unmask]>:
> There are 10 messages totalling 1039 lines in this issue.
>
> Topics of the day:
>
> 1. Press releas;- AUTISTICS EXCLUDED FROM DOWNING STREET AUTISM EVENT
> 2. Surveillance and disabled people (5)
> 3. Liberty are a disgrace on basic human rights and civil liberties towards
> Disabled People... You were right Mike and Nick!!! (2)
> 4. Resources & Info RE: Surveillance and disabled people
> 5. Recent articles in Anthropology Venues about the NAPA-OT Field School on
> anthropology, occupational therapy/science, and disability studies!
>
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre
> for Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
> www.jiscmail.ac.uk/lists/disability-research.html
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>
>
>
> ----------------------------------------------------------------------
>
> Date: Wed, 6 May 2009 09:53:59 +0000
> From: Rebecca Phillips <[log in to unmask]>
> Subject: Re: Press releas;- AUTISTICS EXCLUDED FROM DOWNING STREET
> AUTISM EVENT
>
> Preston =
>
> Bravo Colin et al. =0A=C2=A0=0A=C2=A0=0A=C2=A0=0A=C2=A0=0A=0A=C2=A0Preston =
> Disc is part of the Disability LIB Alliance that aims to help 200 Disabled =
> People's Organisations in England with a range of support. Preston Disc is =
> part of an alliance in partnership with Disability Awareness in Action, Peo=
> ple First, the United Kingdom Disabled People's Council, Alliance for Inclu=
> sive Education, the Equalities National Council and Scope. All the organisa=
> tions in the alliance are DPOs apart from Scope. =0A=0A=0ARegistration numb=
> er: 5506903 Cardiff=0A=0A=0APreston DISC 103-104 Church Street. Preston PR1=
> 3BS=0A=0A=0AThis e mail and attachments may be confidential and intended s=
> olely for the use of the individual to whom it is addressed. Any views or o=
> pinions expressed are solely those of the autor and do not necessarily repr=
> esent those of Preston DISC.=0AIf you are not the intended recipient of thi=
> s email and attachments you must take not action based upon them, nor must =
> you copy or show them to anyone. Please contact the sender if you believe y=
> ou have received this email in error. =0A=0A=0A=0A=0A______________________=
> __________=0AFrom: Colin REvell <[log in to unmask]>=0ATo: DISABILITY-RES=
> [log in to unmask]: Tuesday, 5 May, 2009 12:37:05=0ASubject: FW: P=
> ress releas;- AUTISTICS EXCLUDED FROM DOWNING STREET AUTISM EVENT=0A=0ASubj=
> ect: Press release=0A=0APlease find attached (see below) the press release =
> which was sent to all the London newspapers last night. Feel free to distri=
> bute it further.=0A=0AThe leaflet and LARM's letter are appended to the pre=
> ss release.=0A=0AMy photo is on there purely because I am told that having =
> a face makes publication more likely! If there are some good photos taken t=
> his =0Aevening I would be more than happy to send those out with a further =
> press release saying what happened.=0A=0AAll the best for this evening to t=
> hose of you who can be there.=0A=0ASelina..... Press release below....=0A=
> =0A=0APress Release=0AFOR IMMEDIATE RELEASE - MONDAY 4TH MAY 2009=0A=0AAUTI=
> STICS EXCLUDED FROM DOWNING STREET AUTISM EVENT=0A=0APhoto opportunity: =0A=
> =0A5.30 p.m. Tuesday 5th May 2009=0Aoutside the gates of Downing Street, We=
> stminster SW1A=0Amembers of autistic-led organisations will be drawing atte=
> ntion to their exclusion from a reception to celebrate World Autism Awarene=
> ss Day, =0Acontact Selina Postgate (of Autreach Online) on 0117 907 0721 =
> =0Aor 07531 888 365 or email southwestarm@ googlemail.com=0A=0AAutistic peo=
> ple are furious that nobody has been invited to represent any of their user=
> -led organisations at a major Downing Street event =E2=80=93 an event held =
> to celebrate awareness of autism!=C2=A0 =0A=0ASome of those spurned will be=
> making their presence felt outside the Downing Street gates, by asking the=
> people attending the reception to record messages of support on video.=C2=
> =A0 Many other representatives of autistic-led groups will be unable to att=
> end even this media call, as the personal assistance they need to travel to=
> the event has not been funded.=0A=0AAutistic-led organisations excluded fr=
> om the celebration include:=0A=0AAutscape (a thriving annual conference run=
> by and for autistics) www.autscape.org =0ANeurodiversity International htt=
> p://www.neurodiversityinternational.org.uk =0ALondon Autistic Rights Moveme=
> nt c/o [log in to unmask] Rights Group Highland http://www.arghi=
> ghland.co.uk/=0AAutism North East http://www.neurodiversity-northeast.org.u=
> k/=0AAutistic Organisation Mid-Wales http://www.autisticorganisation.co.uk/=
> =0ABirmingham Autistic Rights Movement c/o [log in to unmask]
> e Autistic Rights Movement c/o [log in to unmask] addition, no r=
> epresentative from any of the National Autistic Society=E2=80=99s User Repr=
> esentation Groups appears to have been invited, nor any of their autistic c=
> ouncillors or trustees.=0A=0AQuotes:=C2=A0 (all quotes may be attributed to=
> Selina Postgate of Autreach Online)=0A=0A"How invisible are we?=C2=A0 It m=
> akes me wonder whether some of these charities aren't frightened of real, l=
> ive autistic grown-ups!" =0A=0A"I feel so let down. The NAS [National Autis=
> tic Society] recently ran a campaign about autistic adults called =E2=80=9C=
> I Exist=E2=80=9D.=C2=A0 So they know we=E2=80=99re here, but they still did=
> n=E2=80=99t invite any of their autistic members to the party.=E2=80=9D=0A=
> =0A"This is a highly symbolic event, and a highly symbolic omission"=0A=0A=
> =0A"How well do these charities represent the interests of the people they =
> purport to represent when it doesn't occur to them to invite even their own=
> user representation groups, or their autistic trustees and councillors?"=
> =0A=0A=E2=80=9CPeople from all the major autism charities will be there.=C2=
> =A0 It's scandalous that not even representatives from non-political autist=
> ic-led groups, such as the highly active and effective Autscape, have been =
> invited."=0A=0A=E2=80=9CAutistic children become autistic adults. Sometimes=
> I think =E2=80=9CAutism Speaks=E2=80=9D wishes we didn=E2=80=99t, because =
> we=E2=80=99re not so pretty and appealing to funders.=C2=A0 That still does=
> n=E2=80=99t give them the right to exclude our organisations en masse from =
> a significant government event.=E2=80=9D [Autism Speaks was given the job o=
> f compiling the invitation list.]=0A=0A=E2=80=9CIt=E2=80=99s a civil rights=
> issue. Local autistic rights groups have been springing up around the coun=
> try as for several years now, and it=E2=80=99s time those who have been use=
> d to patronising us realised we are not going away.=E2=80=9D=0A=0A=E2=80=9C=
> The well-worn disability rights slogan =E2=80=98Nothing about us without us=
> =E2=80=99 applies to autistics too!=E2=80=9D=0A=0ANotes for Editors=0A=0ATh=
> e Reception will take place at 11 Downing Street between 6 and 8 p.m.=C2=A0=
> Representatives of autistic-led organisations will be gathering outside th=
> e Downing Street gates from 5.30 p.m. with leaflets and video equipment.=C2=
> =A0 This is not a political demonstration, but a media call.=0A=0AThe guest=
> list for the even was drawn up by =E2=80=98Autism Speaks=E2=80=99, a relat=
> ive newcomer to the UK charity scene which has come under fire in the USA f=
> or its poor treatment of autistic adults.=0A=0ASelina Postgate, pictured be=
> low, runs =E2=80=98Autreach Online=E2=80=99, a network connecting UK and Eu=
> ropean Autistic-led organisations, and is on the planning committee for the=
> well respected annual Autscape Conference. She is among the autistic adult=
> s who will not be attending the Downing Street reception to celebrate World=
> Autism Awareness Day.=0A=0A=0AOn following pages are a copy of the leaflet=
> which members of autistic-led organisations will be distributing and a let=
> ter from the London Autistic Rights Movement, also for distribution.=0A=0A=
> =0A=0ATuesday 5th May 6 =E2=80=93 8 p.m., 11 Downing Street=0A=0AYou are in=
> vited to a Reception to celebrate =0A=0AWorld Autism Awareness Day=0A=0A"I'=
> m sure it's just an oversight=E2=80=9D=C2=A0 =0A=C2=A0 =C2=A0 a non-autisti=
> c NAS council member=0A=0A=0AAutistic-led organisations which have not been=
> invited to send a representative today include:=0A=0A=0AAutscape (annual c=
> onference run by and for autistics) www.autscape.org =0ANeurodiversity Inte=
> rnational http://www.neurodiversityinternational.org.uk =0AAutism Rights Gr=
> oup Highland http://www.arghighland.co.uk/=0AAutistic Organisation (Mid-Wal=
> es) http://www.autisticorganisation.co.uk/=0AAutism North East http://www.n=
> eurodiversity-northeast.org.uk/=0ALondon Autistic Rights Movement c/o rocob=
> [log in to unmask] Autistic Rights Movement c/o [log in to unmask]
> net=0ALancashire Autistic Rights Movement c/o [log in to unmask]
> addition, no representative from any of the NAS=E2=80=99s User Representat=
> ion Groups =0Aappears to have been invited, nor any autistic councillors or=
> trustees.=0A=C2=A0 =0AIgnored and excluded - by the very charities who say=
> they work our behalf!=0AWe Exist!=0APlease come and tell us your thoughts.=
> =C2=A0 We are here with video cameras to record the support we are shown.=
> =C2=A0 =0ALook out for the We Exist! sign.=0ANOTHING ABOUT AUTISTICS WITHOU=
> T AUTISTICS=0ALeaflet produced by Autreach Online (http://autreach.backpack=
> it.com/pub/1382191) on behalf of all the above groups=0A=0A=0ALetter from L=
> ondon Autistic Rights Movement (LARM):=0ADear all,=0A=0AThe London Autistic=
> Rights Movement, as an organisation controlled by autistic people, deplore=
> s the resolution issued by the UN to mark the first World Autism Awareness =
> Day. Aside from its complete failure to address any of the access issues wh=
> ich neurodiverse, including autistic, people have, it is also a deeply pejo=
> rative statement, which focuses exclusively on treatment and portrays autis=
> tics as disordered and requiring treatment, rather than the correct practic=
> e of seeking to ensure inclusion. This would require such things as alterin=
> g design standards to end the tyranny of noisy, busy, open plan environment=
> s and replace them with flexi-plan and cellular environments, as well as en=
> forcing stringent noise insulation and regulation, ending strip lighting, a=
> nd creating low arousal environments. Also, tackling metabolic (especially =
> food and medicine) access issues. Furthermore, we also insist that autistic=
> s' right to communicate and to control the kind
> of services that are available to us must be acted upon and seen as centra=
> l.=C2=A0 =0AIn adopting the tone and content it has done in its resolution,=
> the UN allows the continuation and perpetuation of a status quo which cond=
> ones the locking up and drugging up of huge numbers of neurodiverse includi=
> ng autistic people, and the exclusion of most of us from the workplace and =
> most other aspects of life. This situation only benefits those "service pro=
> viders" seeking to make a huge profit at the expense of autistic people. =
> =0A=0AWe welcome in principle the UN's creation of an Autism Awareness Day =
> in perpetuity on April 2 of each year, in accordance with General Assembly =
> UN Resolution 62/139. World Autism Awareness Day of 21 January 2008. Howeve=
> r, the work around World Autism Day is unlikely to have a positive impact o=
> n the lives of neurodiverse including autistic people and to meet our real =
> needs. The meeting of neurodiverse/ autistic-led organisations with the Com=
> mission on Access to the Built Environment (CABE) under the auspices of the=
> Equality and Human Rights Commission (EHRC) is much more likely to be of p=
> ractical use.=0ASimilarly, We welcome the UN Convention on the Rights of Pe=
> rsons With Disabilities (hereafter Disability Convention), and other UN Hum=
> an Rights Conventions and provisions, as mentioned in the Resolution itself=
> . But, we note also the failure of the UN to apply the principles of its ow=
> n Disability Convention to involve disabled people and the organisations we=
> control in all matters which affect us. And especially to involve in any w=
> ay whatsoever, autistic-led organisations. This included in the drafting of=
> the Disability Convention itself, in which no attempt was made to ensure t=
> hat neurodiverse including autistic-led organisations were actually able to=
> address the UN itself or were in any way involved in actually drafting the=
> Disability Convention. This was in marked contrast to the involvement of o=
> rganisations higher up the "hierarchy of impairments" representing the far =
> less common impairments of deafness, blindness and partially sightedness, a=
> mputees,
> wheelchair users and other more obvious (and/or less stigmatised) impairme=
> nts.=0AInstead, in a move akin to nineteenth century conferences about wome=
> n's rights only inviting organisations led by men to speak, the United Nati=
> ons has trampled over the spirit and the letter of its own Disability Conve=
> ntion by organising World Autism Awareness Day through an organisation not =
> controlled by autistic people and with no intention of ever becoming so, an=
> d which has described autism as a "plague" and an "epidemic", namely Autism=
> Speaks. =0A=0AScientifically, autism is, of course, neither. Nor is it a d=
> isorder. Rather it is a difference which society needs to accommodate. Unfo=
> rtunately, Autism Speaks describes autism in entirely negative terms. There=
> is no mention of positive aspects of autism or of our talents, or of the n=
> eed to change access standards, including over sensory issues. Only of "aut=
> istic spectrum disorders", not of "autistic spectrum differences". This is =
> a flagrant violation of the spirit and letter of the UK Government's commit=
> ment under the Disability Discrimination Act 2005 Disability Equality Duty =
> to involve disabled people's organisations and to create a "positive image =
> of disabled people".=0A=0AAll World Autism Awareness Days must be led, run,=
> managed and controlled by autistic-led organisations. And all UN resolutio=
> ns on the subject should meet with the approval of our autistic-led organis=
> ations, and involve them at the drafting stage (at the expense of the UN). =
> And at every other stage of the process. This has been supported by Neil Cr=
> owther, Senior Policy Manager on Disability at the UK's Equality And Human =
> Rights Commission, the main official body tasked with the promotion of the =
> rights of disabled people. As he says:=C2=A0 =0A"the principle of 'nothing =
> about us without us' has and continues to be critical to the evolution of d=
> isabled people's rights and full participation in society, and that is in t=
> he spirit of both the UN Convention and the DDA."=0AWe therefore demand:=0A=
> 1.=C2=A0 The admission of our disabled people-led including neurodiverse an=
> d autistic-led organisations' representatives to this reception on May 5th,=
> 2009 at no.11 Downing Street.=0A2.=C2=A0 The reading out and distribution =
> of this letter at the reception by our representatives.=0A3.=C2=A0 That the=
> programme of the reception and the official statements issued at it be re-=
> organised to meet our satisfaction.=0A4.=C2=A0 That the full costs of disab=
> led people-led including neurodiverse and autistic-led organisations attend=
> ing the reception are met. Including compensation for any time taken off wo=
> rk.=0A5.=C2=A0 That the reception emphasise the need, in accordance with th=
> e social model of disability, to=C2=A0 have our access needs met through le=
> gal revision of access standards.=0A6.=C2=A0 And the need to transfer the c=
> ontrol of disability organisations to the people they claim to represent an=
> d speak on behalf of.=0A=0A=0A_____________________________________________=
> ____________________=0AShare your photos with Windows Live Photos =E2=80=93=
> Free.=0Ahttp://clk.atdmt.com/UKM/go/134665338/direct/01/=0A_______________=
> _End of message________________=0A=0AThis Disability-Research Discussion li=
> st is managed by the Centre for Disability Studies at the University of Lee=
> ds (www.leeds.ac.uk/disability-studies).=0AEnquiries about list administrat=
> ion should be sent to [log in to unmask]
> ves and tools are located at:=0Awww.jiscmail.ac.uk/lists/disability-researc=
> h.html=0AYou can VIEW, POST, JOIN and LEAVE the list by logging in to this =
> web page.=0A=0A=0A=0A
>
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre
> for Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
> www.jiscmail.ac.uk/lists/disability-research.html
> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
>
> ------------------------------
>
> Date: Wed, 6 May 2009 05:32:57 -0700
> From: Vanmala H <[log in to unmask]>
> Subject: Surveillance and disabled people
>
> Hi,
>
> I was wondering if anyone has any information on surveillance of
> people with disabilities, particularly welfare recipients in US,
> Canada, UK or European countries. A colleague in Canada, who is a
> counselor and social work educator and practitioner, had mentioned
> that people with disabilities in Nova Scotia, Canada, who are on
> social assistance are watched daily by case workers (aka the state?)
> by using powerful video cameras trained at their open windows,
> curtains, backyards etc to watch their daily activities. This is to
> ensure that the disabled person is not living, say with a partner,
> or earning an income, etc.
>
> Has this issue been explored? I have been quite appalled by this --
> I am aware such human rights violations are being perpetrated,
> particularly post 9/11, on non-white peoples, immigrants, activists,
> foreigners and those viewed as the 'Other', but I wasn't aware that
> people with disabilities in "developed" countries are also subject
> to such surveillance and 24/7 monitoring.
>
> I wonder if this is the situation all over Canada --- is this so in
> US, UK, Europe as well? Any leads?
>
> Thanks in advance,
>
> Vanmala Hiranandani
>
>
>
>
>
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre
> for Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
> www.jiscmail.ac.uk/lists/disability-research.html
> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
>
> ------------------------------
>
> Date: Wed, 6 May 2009 08:48:50 -0400
> From: Andrea Shettle <[log in to unmask]>
> Subject: Re: Surveillance and disabled people
>
> I have no idea of the research in this, if any. But in reading the BBC
> Ouch discussion board, I gather that in the UK most media coverage of
> disabled people focuses either on the so-called "super crip" image or
> on the "dead beat" image, i.e. people who are actually just faking it
> to get government assistance. Furthermore, I gather (and I'm not
> actually in the UK, I just read discussions from people who are) that
> there are apparently public spot commercials encouraging ordinary
> members of the public to report to a hotline if they think a neighbor
> is faking their disability in order to receive assistance. This can
> create a lot of stress for people who have widely varying,
> unpredictable impairments because they feel like they have to pretend
> to have a limp or something even if it is actually on a good day for
> them, or make a point of showing it in their face expression when they
> experience pain instead of covering it up as would be their usual
> instinct. So in the UK, it sounds kind of like the whole country is
> asked to be your "Big Brother" watcher if you're disabled. Since I
> know there are so many people from the UK on this list, I hope they can
> serve further enlightenment. But I wonder if that shouldn't be looked
> at also--not just surveillance from the state but actively encouraged
> surveillance from one's own neighbors doesn't sound that much more
> pleasant to live under.
>
> The BBC Ouch discussion board is at
> http://www.bbc.co.uk/dna/mbouch/F2322273
>
> BBC Ouch doesn't have a good search facility. But if you use the
> advanced search feature at google.com and plug in the URL for BBC Ouch
> then that serves well enough.
>
> Andrea
> [log in to unmask]
>
>
> On May 6, 2009, at 8:32 AM, Vanmala H wrote:
>
>> Hi,
>>
>> I was wondering if anyone has any information on surveillance of
>> people with disabilities, particularly welfare recipients in US,
>> Canada, UK or European countries. A colleague in Canada, who is a
>> counselor and social work educator and practitioner, had mentioned
>> that people with disabilities in Nova Scotia, Canada, who are on
>> social assistance are watched daily by case workers (aka the state?)
>> by using powerful video cameras trained at their open windows,
>> curtains, backyards etc to watch their daily activities. This is to
>> ensure that the disabled person is not living, say with a partner, or
>> earning an income, etc.
>>
>> Has this issue been explored? I have been quite appalled by this -- I
>> am aware such human rights violations are being perpetrated,
>> particularly post 9/11, on non-white peoples, immigrants, activists,
>> foreigners and those viewed as the 'Other', but I wasn't aware that
>> people with disabilities in "developed" countries are also subject to
>> such surveillance and 24/7 monitoring.
>>
>> I wonder if this is the situation all over Canada --- is this so in
>> US, UK, Europe as well? Any leads?
>>
>> Thanks in advance,
>>
>> Vanmala Hiranandani
>>
>>
>>
>>
>>
>> ________________End of message________________
>>
>> This Disability-Research Discussion list is managed by the Centre for
>> Disability Studies at the University of Leeds
>> (www.leeds.ac.uk/disability-studies).
>> Enquiries about list administration should be sent to
>> [log in to unmask]
>>
>> Archives and tools are located at:
>> www.jiscmail.ac.uk/lists/disability-research.html
>> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web
>> page.
>>
>
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre
> for Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
> www.jiscmail.ac.uk/lists/disability-research.html
> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
>
> ------------------------------
>
> Date: Wed, 6 May 2009 16:06:54 +0100
> From: Emma Rowlett <[log in to unmask]>
> Subject: Re: Surveillance and disabled people
>
> Hi,
>
> I live in the UK and am aware of the posters that Andrea mentions.
> They suggest that benefit cheats aren't cheating the government but
> are cheating you (i.e. the person reading the poster) and so it is in
> your interests to report such people. I claim disability benefits and
> this makes me very nervous as although my visual impairment and
> hearing impairment are fairly static, I have a back problem and some
> days struggle to walk to my garden gate and other days I can walk
> miles! I know at least one of my neighbours has started rumours about
> me but I don't think she's reported me yet!
>
> I've heard that people are employed to use cameras in drinks cans and
> things to secretly film people doing things they say they can't do or
> working when they are claiming benefits. I don't know if this is true
> but it is a scary idea.
>
> Details about the latest government campaign in the UK can be found
> at: http://www.dwp.gov.uk/campaigns/benefit-thieves/
>
> Good luck with your research,
>
> Emma
>
> On 06/05/2009, Andrea Shettle <[log in to unmask]> wrote:
>> I have no idea of the research in this, if any. But in reading the BBC O=
> uch
>> discussion board, I gather that in the UK most media coverage of disabled
>> people focuses either on the so-called "super crip" image or on the "dead
>> beat" image, i.e. people who are actually just faking it to get governmen=
> t
>> assistance. Furthermore, I gather (and I'm not actually in the UK, I jus=
> t
>> read discussions from people who are) that there are apparently public sp=
> ot
>> commercials encouraging ordinary members of the public to report to a
>> hotline if they think a neighbor is faking their disability in order to
>> receive assistance. This can create a lot of stress for people who have
>> widely varying, unpredictable impairments because they feel like they hav=
> e
>> to pretend to have a limp or something even if it is actually on a good d=
> ay
>> for them, or make a point of showing it in their face expression when the=
> y
>> experience pain instead of covering it up as would be their usual instinc=
> t.
>> So in the UK, it sounds kind of like the whole country is asked to be you=
> r
>> "Big Brother" watcher if you're disabled. Since I know there are so many
>> people from the UK on this list, I hope they can serve further
>> enlightenment. But I wonder if that shouldn't be looked at also--not jus=
> t
>> surveillance from the state but actively encouraged surveillance from one=
> 's
>> own neighbors doesn't sound that much more pleasant to live under.
>>
>> The BBC Ouch discussion board is at
>> http://www.bbc.co.uk/dna/mbouch/F2322273
>>
>> BBC Ouch doesn't have a good search facility. But if you use the advanc=
> ed
>> search feature at google.com and plug in the URL for BBC Ouch then that
>> serves well enough.
>>
>> Andrea
>> [log in to unmask]
>>
>>
>>
>> On May 6, 2009, at 8:32 AM, Vanmala H wrote:
>>
>>
>> > Hi,
>> >
>> > I was wondering if anyone has any information on surveillance of people
>> with disabilities, particularly welfare recipients in US, Canada, UK or
>> European countries. A colleague in Canada, who is a counselor and social
>> work educator and practitioner, had mentioned that people with disabiliti=
> es
>> in Nova Scotia, Canada, who are on social assistance are watched daily by
>> case workers (aka the state?) by using powerful video cameras trained at
>> their open windows, curtains, backyards etc to watch their daily activiti=
> es.
>> This is to ensure that the disabled person is not living, say with a
>> partner, or earning an income, etc.
>> >
>> > Has this issue been explored? I have been quite appalled by this -- I a=
> m
>> aware such human rights violations are being perpetrated, particularly po=
> st
>> 9/11, on non-white peoples, immigrants, activists, foreigners and those
>> viewed as the 'Other', but I wasn't aware that people with disabilities i=
> n
>> "developed" countries are also subject to such surveillance and 24/7
>> monitoring.
>> >
>> > I wonder if this is the situation all over Canada --- is this so in US,
>> UK, Europe as well? Any leads?
>> >
>> > Thanks in advance,
>> >
>> > Vanmala Hiranandani
>> >
>> >
>> >
>> >
>> >
>> > ________________End of message________________
>> >
>> > This Disability-Research Discussion list is managed by the Centre for
>> Disability Studies at the University of Leeds
>> (www.leeds.ac.uk/disability-studies).
>> > Enquiries about list administration should be sent to
>> [log in to unmask]
>> >
>> > Archives and tools are located at:
>> > www.jiscmail.ac.uk/lists/disability-research.html
>> > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web
>> page.
>> >
>> >
>>
>> ________________End of message________________
>>
>> This Disability-Research Discussion list is managed by the Centre for
>> Disability Studies at the University of Leeds
>> (www.leeds.ac.uk/disability-studies).
>> Enquiries about list administration should be sent to
>> [log in to unmask]
>>
>> Archives and tools are located at:
>> www.jiscmail.ac.uk/lists/disability-research.html
>> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web pa=
> ge.
>>
>
>
> --=20
> Emma Jane Rowlett (n=C3=A9e Wright)
> School of Sociology and Social Policy
> University of Nottingham
>
> [log in to unmask]
>
> www.accessingmaterials.org.uk
>
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre
> for Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
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> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
>
> ------------------------------
>
> Date: Wed, 6 May 2009 11:50:04 -0400
> From: Maria Barile <[log in to unmask]>
> Subject: Re: Surveillance and disabled people
>
> Hi Vanmala
> I don't know about Nova Scotia, it is not the practice in Qu=E9bec. Howe=
> ver I=20
> would be very surprise. You may want to consult CCD (councilof Canadian=20
> with disability) as far as I know, this is not even legal in Canada.
>
> However what to keep me inform.
> Maria
> ----- Original Message -----=20
> From: "Vanmala H" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Wednesday, May 06, 2009 8:32 AM
> Subject: Surveillance and disabled people
>
>
>> Hi,
>>
>> I was wondering if anyone has any information on surveillance of people=
> =20
>> with disabilities, particularly welfare recipients in US, Canada, UK or=
> =20
>> European countries. A colleague in Canada, who is a counselor and socia=
> l=20
>> work educator and practitioner, had mentioned that people with=20
>> disabilities in Nova Scotia, Canada, who are on social assistance are=20
>> watched daily by case workers (aka the state?) by using powerful video=20
>> cameras trained at their open windows, curtains, backyards etc to watch=
> =20
>> their daily activities. This is to ensure that the disabled person is n=
> ot=20
>> living, say with a partner, or earning an income, etc.
>>
>> Has this issue been explored? I have been quite appalled by this -- I a=
> m=20
>> aware such human rights violations are being perpetrated, particularly=20
>> post 9/11, on non-white peoples, immigrants, activists, foreigners and=20
>> those viewed as the 'Other', but I wasn't aware that people with=20
>> disabilities in "developed" countries are also subject to such=20
>> surveillance and 24/7 monitoring.
>>
>> I wonder if this is the situation all over Canada --- is this so in US,=
> =20
>> UK, Europe as well? Any leads?
>>
>> Thanks in advance,
>>
>> Vanmala Hiranandani
>>
>>
>>
>>
>>
>> ________________End of message________________
>>
>> This Disability-Research Discussion list is managed by the Centre for=20
>> Disability Studies at the University of Leeds=20
>> (www.leeds.ac.uk/disability-studies).
>> Enquiries about list administration should be sent to=20
>> [log in to unmask]
>>
>> Archives and tools are located at:
>> www.jiscmail.ac.uk/lists/disability-research.html
>> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web=20
>> page.
>> =20
>
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre
> for Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
> www.jiscmail.ac.uk/lists/disability-research.html
> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
>
> ------------------------------
>
> Date: Wed, 6 May 2009 18:27:21 +0100
> From: Colin REvell <[log in to unmask]>
> Subject: Liberty are a disgrace on basic human rights and civil
> liberties towards Disabled People... You were right Mike and Nick!!!
>
> Shami Chackrabarti and Liberty have showed therir true 'disabilist' colours=
> !!! (Yes Mike=2C Nick=2C I will swallow my pride amnd say that you were bo=
> th right and warned everyone about this!!!)
> =20
> What do we do next?..=20
> =20
> Their staff 'disabilist attituides and behaviour has caused me great trauma=
> and upset this afternoon as an Autistic/NeuroDiverse disabled person. The=
> y have intentionally gone out to cause me harm and also disability hate cri=
> mes. They are a disgrace!!! They even will not alllow me access to complain=
> ts procedure. What does this say on basic human rights?
> =20
> I have reported them to the EHRC. I intend to make complaints to the Chari=
> ties Commission too and the Courts.
> =20
> We need a DAN Action and Allies outside Liberty's office to express our fee=
> lings. Make sure we get full publicity on this too.=20
> =20
> Martin=2C make sure this letter goes on NDI website.... They have had Adria=
> n=2C others and I on a string for 4 1/2 years with their promies to DAN and=
> our Allies and I within the Disabled Peoples' movement=2C sionce Adrian an=
> d I challengedf Shami Chakrabarti on 'disability-issues' at the European So=
> cial Forum=2CIn London 2004.
> =20
> She also promised to meet us again lasy year when she came to the East Ridi=
> ng for David Davis civil liberties debate....
> =20
> DAN and our allies have been blatantly lied too by Shami Chackrabarti and o=
> thers at Liberty.
> =20
> Let's get outside their offices ASAP and let them know how we feel within D=
> AN.
> =20
> Colin... Copy of letter attached below...
> LIBERY=20
> http://www.liberty-human-rights.org.uk
> =20
> Mr Colin Revell [log in to unmask]
>
>
> Dear Mr Revell=2C=20
>
> 6th May 2009=20
>
> For several months now colleagues of mine within the Operations Team at Lib=
> erty have been attempting to arrange for you to meet with Liberty's Directo=
> r. Unfortunately=2C this is proving to be an extremely difficult thing to a=
> chieve.=20
>
> When the Director initially agreed to meet with you=2C it was on the unders=
> tanding that it was a meeting between yourself and her. Subsequently=2C you=
> advised us that the meeting was to be widened to include several colleague=
> s of yours.=20
> We reluctantly agreed to this=2C and attempted to arrange for a meeting to =
> be held in London=2C and a date was identified. At this point=2C you inform=
> ed us that you were no longer in a position to travel to London.=20
>
> Since then=2C we have tried to re-arrange a meeting between you and Liberty=
> 's mrector nearer to you.=20
>
> However=2C this has also proved to be extremely difficult=2C and we are now=
> at a stage where my colleagues are spending an increasing amount of time d=
> ealing with this and other matters relating to you. My colleagues are findi=
> ng it extremely stressful dealing with considerably lengthy calls and corre=
> spondence from you and your now former personal assistant.=20
> I have now come to the conclusion that it will not be possible for us to ar=
> range a meeting between you and the Liberty Director. I regret having to ta=
> ke this decision=2C but I feel that we have done as much as we can to facil=
> itate the agreed meeting=2C and have been faced with obstacles beyond our c=
> ontrol on every occasion.=20
>
> In view of my decision=2C I must ask you to refrain from calling members of=
> the Liberty Operations Team with immediate effect. Should you do so=2C my =
> colleagues have been instructed not to take your call.=20
> Yours sincerely=2C=20
> =20
>
> Raj Chandarana Director of Operations=20
> THE NATIONAL COUNCiL FOR CiVlL UBERTIES=20
>
> =20
> Hi Linda et al...
> =20
> As I said=2C if Shami Chackrabarti and others within Liberty have totally d=
> isrespect and ignorance towards DAN and our Allies=2C then we should make e=
> veryone aware of this.
> =20
> DAN and our allies should organise a campaign against Liberrty for their co=
> ntinued 'Disabilism' and the way they are ignorant to our 'disability-issue=
> s'.
> =20
> We need now to up our campaign against Liberty.=20
> =20
> I know Adrian and I was expecting this bad news from them=2C but even expec=
> ting it=2C the news has still caused me alarm and distress and triggered a =
> response which Liberty have heard this afternoon. This letter and their 'di=
> sabilist attitudes=2C conduct and behaviour by the insentivitive 'disablist=
> ' staff has also triggered my autitistic/neurodiverse 'behaviours'and traum=
> a this afternoon too.
> =20
> It is cruel and inhumane their behaviour towards Adrian and I and DAN=2C RA=
> DAR=2C Autistic/NeuroDiverse Rights Movement and our allies by having us ha=
> nging on a string all these years=2C since 2004=2C at the European Social F=
> orum ion London=2C then again Shami promised this meeting again=2C in front=
> of loads of witnesses=2C at the David Davis MP 'civil-liberties' debate wh=
> en she visited the East Riding last year.
> =20
> How can any of us ever trust Shami and Liberty ever again?
> =20
> If you look at Liberty's website there are plenty of opportunities for DAN =
> and our allies to oragnise our protest against Liberty:-
> http://www.liberty-human-rights.org.uk
> =20
> ***You have my permission to share this letter within all your networks.
> =20
> FREEOURPEOPLE
>
> =20
> Colin Revell=2C Hull and E.Riding DAN regional Co-ordinator and CEO NeuroDi=
> versity International
>
> =20
> _________________________________________________________________
> Share your photos with Windows Live Photos =96 Free.
> http://clk.atdmt.com/UKM/go/134665338/direct/01/=
>
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre
> for Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
> www.jiscmail.ac.uk/lists/disability-research.html
> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
>
> ------------------------------
>
> Date: Wed, 6 May 2009 18:40:19 +0100
> From: Larry Arnold <[log in to unmask]>
> Subject: Re: Surveillance and disabled people
>
> I think they would need the full resources of MI5 to follow me about =
> sometimes, because of my frequent rail travel, you can't just follow me =
> onto a train, you need a ticket, and I would certainly know if anyone =
> were following me onto a bus. Anyway whoever said that being disabled =
> was incompatible with being a student at an out of town University?
>
> There are surveillance cameras in our street, but they were not even =
> good enough to catch someone vandalising my Landie some time back.
>
> If anyone were watching me, it probably would be MI5 (waves)
>
> Larry
>
>> -----Original Message-----
>> From: The Disability-Research Discussion List [mailto:DISABILITY-
>> [log in to unmask]] On Behalf Of Emma Rowlett
>> Sent: 06 May 2009 16:07
>> To: [log in to unmask]
>> Subject: Re: Surveillance and disabled people
>> =20
>> Hi,
>> =20
>> I live in the UK and am aware of the posters that Andrea mentions.
>> They suggest that benefit cheats aren't cheating the government but
>> are cheating you (i.e. the person reading the poster) and so it is in
>> your interests to report such people. I claim disability benefits and
>> this makes me very nervous as although my visual impairment and
>> hearing impairment are fairly static, I have a back problem and some
>> days struggle to walk to my garden gate and other days I can walk
>> miles! I know at least one of my neighbours has started rumours about
>> me but I don't think she's reported me yet!
>> =20
>> I've heard that people are employed to use cameras in drinks cans and
>> things to secretly film people doing things they say they can't do or
>> working when they are claiming benefits. I don't know if this is true
>> but it is a scary idea.
>> =20
>> Details about the latest government campaign in the UK can be found
>> at: http://www.dwp.gov.uk/campaigns/benefit-thieves/
>> =20
>> Good luck with your research,
>> =20
>> Emma
>> =20
> can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
>
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre
> for Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
> www.jiscmail.ac.uk/lists/disability-research.html
> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
>
> ------------------------------
>
> Date: Wed, 6 May 2009 14:00:45 -0400
> From: LILITH Finkler <[log in to unmask]>
> Subject: Resources & Info RE: Surveillance and disabled people
>
> HI Emma. Please find links below to websites that may offer helpful informa=
> tion with regard to your query. Please note that social assistance legislat=
> ion in Canada is enacted provincially rather than federally. That means eac=
> h province will make its own rules and maintain its own appeal tribunal. It=
> also means two provinces may have similar laws on the books but civil serv=
> ants may implement them differently.
>
> =20
>
> It seems to me disabled social assistance recipients in Ontario may well be=
> subject to surveillance=2C whether such provisions exist in law or in pol=
> icy. It depends to some extent whether they are in receipt of welfare payme=
> nts under the Ontario Works Act (OWA) or in receipt of disability payments =
> under the Ontario Disability Support Program Act (ODSPA). Although "welfare=
> " is supposed to be for those who are temporarily unemployed=2C disabled p=
> ersons may be in receipt of welfare because they may not be deemed to meet =
> the rigid eligibity requirements under the ODSPA. For further information=
> =2C please see below. Lilith
>
> =20
>
> E-laws provides free access to Ontario legislation
>
> http://www.e-laws.gov.on.ca/index.html
>
> =20
>
> ARCH is a free clinic for disabled persons
>
> http://www.archdisabilitylaw.ca/
>
> =20
>
> The Income Security legal clinic provides free information=2C representatio=
> n for persons in receipt of social assistance
>
> http://www.incomesecurity.org/
>
> =20
>
> CLEO provides free brochures in plain english about various laws that perta=
> in to disabled persons and persons living on low incomes.
>
> http://www.cleonet.ca/
>
> =20
>
> Thought that this article might be of interest.=20
>
> http://www.accessibilitynews.ca/cwdo/activities/odsp_committee.php?activiti=
> es-odsp=3D522
>
> _________________________________________________________________
> Create a cool=2C new character for your Windows Live=99 Messenger.=20
> http://go.microsoft.com/?linkid=3D9656621=
>
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre
> for Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
> www.jiscmail.ac.uk/lists/disability-research.html
> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
>
> ------------------------------
>
> Date: Wed, 6 May 2009 19:07:00 +0100
> From: Colin REvell <[log in to unmask]>
> Subject: Re: Liberty are a disgrace on basic human rights and civil
> liberties towards Disabled People... You were right Mike and Nick!!!
>
> Cc. Includes Liz Sayce=2C CEO of RADAR.
>
> PLEASE FEEL FREE TO FORWARD WITH ATTACHMENT
>
> Dear all=2C
>
> While I did not witness Colin's phone calls=2C or those of his personal ass=
> istants (as these were made from his home and they were not conference call=
> s)=2C I can confirm that we were publicly promised a meeting with Shami Cha=
> krabarti=2C when we met her at the European Social Forum a few years back n=
> ow. I was acting as Colin's Peer Personal Assistant and Peer Advocate at th=
> e time as the Personal Assistant supplied by the European Social Forum was =
> on a break. This was made plain to Shami Chakrabarti and those with her. We=
> did not ask for a meeting with her. She promised it unprompted.
>
> This meeting was always intended to be about two things:
>
> 1. Colin's cases. We were specifically told that Shami Chakrabarti would me=
> et with Colin in Yorkshire about this. That offer came from Liberty as it w=
> as pointed out that the Chair of Liberty's Board lives in Yorkshire. Colin =
> was happy to participate in the meeting by telephone or using internet vide=
> ophone technology. This saves him the stress of travel and accompanying sen=
> sory overload. He was also willing to call you from his personal telephone =
> line to minimise Liberty's costs.
>
> 2. Disability rights in general and what Liberty could do to promote them a=
> s a human rights issue=2C in conjunction with leading disabled people led o=
> rganisations. We have=2C for example=2C involved Liz Sayce=2C CEO of RADAR=
> =2C in this. Liberty recently contacted me about setting an agenda for this=
> and a time for this. We spoke for over an hour on the phone about this. An=
> d I followed up by email. It was specified that we needed two separate meet=
> ings=2C if at all possible. We also wanted other organisations=2C such as t=
> he UKCODP=2C and members of the Disabled People's Direct Action Network (DA=
> N) to attend=2C as well as NCIL.
>
> So=2C I have a few questions for Liberty:
>
> Why was the volume of calls and staff time dealing with Colin not raised as=
> an issue before now to his colleagues?
> Why were solutions not sought?
> Why was there no warning whatsoever that you might not want to meet with Co=
> lin=2C after all?
> What does Liberty intend to do about the second meeting=2C even if it is no=
> t prepared to help Colin to take his cases forward?
> What does Liberty intend to do about the gross overrepresentation of disabl=
> ed people in the prison system?
> What does Liberty intend to do about tackling the endemic ignoring of the D=
> isability Equality Duty?
> What does Liberty intend to do about the proposed Single Equality Duty?
> And about accessing its own internal complaints system?
> And about providing accessible communication?
> And about making its own website fully accessible to all disabled people?=20
> Or at least complying with the law on web access?
> What disability equality training does Liberty have for its staff=2C volunt=
> eers and directors?
> What training does it give them about the hierarchy of impairments?
> And the hierarchy of equalities?
> And the hierarchy of differences?
> Is it normal practice for people to wait over four and a half years for a p=
> romised meeting and then to be refused it?
> What proportion of its cases are on behalf of disabled people?
> What is the breakdown of impairments in those cases?
> What proportion of its directors=2C volunteers and staff are disabled peopl=
> e?
> What is the breakdown of their impairments?
> Can Liberty supply a full breakdown of its client base and also of access t=
> o its complaints system=2C as well as of statistical outcomes?
> Please feel free to add your own questions.
>
> We seek a conciliatory outcome as we want Liberty to be our ally. And I wou=
> ld encourage people to join Liberty so that they can work to improve its as=
> members of Liberty.
>
> As Chair I could insist that Liberty's letter be taken down from Neurodiver=
> sity International's website. But=2C you have not specified that it should =
> be private and confidential.
>
> Therefore it is time to give the issues a full public airing.
>
> Yours
>
> Adrian Whyatt=2C Chair=2C Neurodiversity International (official capacity)=
> =3B RADAR Trustee (personal capacity)=2C inter alia (amongst other things).=
> P.S. I must be off now. Hope to hear from you all soon.
> =20
> _________________________________________________________________
> Beyond Hotmail =97 see what else you can do with Windows Live.
> http://clk.atdmt.com/UKM/go/134665375/direct/01/=
>
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre
> for Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
> www.jiscmail.ac.uk/lists/disability-research.html
> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
>
> ------------------------------
>
> Date: Wed, 6 May 2009 12:32:49 -0700
> From: Devva Kasnitz <[log in to unmask]>
> Subject: Recent articles in Anthropology Venues about the NAPA-OT
> Field School on anthropology, occupational therapy/science, and
> disability studies!
>
> Here are 2 articles that announce the new NAPA-OT Field School on
> anthropology, occupational therapy/science, and disability studies!
>
> Best,
>
> Devva
>
>
>
>> Apr 2009 Anthro News NAPA OT Field School.PDF
>>
>>
>> Note: To protect against computer viruses, e-mail programs may prevent
>> sending or receiving certain types of file attachments. Check your e-mail
>> security settings to determine how attachments are handled.
>>
>
>
> Cell Phone: 510-206-5767
>
> Devva Kasnitz, PhD
> Anthropology
> University of California, Berkeley
>
> EMAIL: <[log in to unmask]>
>
> Eureka Home Mailing Address:
> 1614 D St
> Eureka, CA 95501
> Voice: 707-443-1973
>
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre
> for Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
> www.jiscmail.ac.uk/lists/disability-research.html
> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
>
> ------------------------------
>
> End of DISABILITY-RESEARCH Digest - 5 May 2009 to 6 May 2009 (#2009-107)
> ************************************************************************
>
________________End of message________________
This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies).
Enquiries about list administration should be sent to [log in to unmask]
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This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies).
Enquiries about list administration should be sent to [log in to unmask]
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