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Hi You can also change you digest options or view the topics in different ways on the list web page at https://www.jiscmail.ac.uk/cgi-bin/webadmin?A0=disability-research Best wishes Mark -----Original Message----- From: The Disability-Research Discussion List [mailto:[log in to unmask]] On Behalf Of Bo Myers Sent: 07 May 2009 07:02 To: [log in to unmask] Subject: Re: DISABILITY-RESEARCH Digest - 5 May 2009 to 6 May 2009 (#2009-107) OK, so I regret having to admit this, but the formatting of this list is hard for someone like me to follow, whereas I usually do not have such difficulties. Numerically identifying the topic 'entries' would be a great start... Thanks for an amazing resource. Best, Bo Quoting DISABILITY-RESEARCH automatic digest system <[log in to unmask]>: > There are 10 messages totalling 1039 lines in this issue. > > Topics of the day: > > 1. Press releas;- AUTISTICS EXCLUDED FROM DOWNING STREET AUTISM EVENT > 2. Surveillance and disabled people (5) > 3. Liberty are a disgrace on basic human rights and civil liberties towards > Disabled People... You were right Mike and Nick!!! (2) > 4. Resources & Info RE: Surveillance and disabled people > 5. Recent articles in Anthropology Venues about the NAPA-OT Field School on > anthropology, occupational therapy/science, and disability studies! > > ________________End of message________________ > > This Disability-Research Discussion list is managed by the Centre > for Disability Studies at the University of Leeds > (www.leeds.ac.uk/disability-studies). > Enquiries about list administration should be sent to > [log in to unmask] > > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > > > ---------------------------------------------------------------------- > > Date: Wed, 6 May 2009 09:53:59 +0000 > From: Rebecca Phillips <[log in to unmask]> > Subject: Re: Press releas;- AUTISTICS EXCLUDED FROM DOWNING STREET > AUTISM EVENT > > Preston = > > Bravo Colin et al. =0A=C2=A0=0A=C2=A0=0A=C2=A0=0A=C2=A0=0A=0A=C2=A0Preston = > Disc is part of the Disability LIB Alliance that aims to help 200 Disabled = > People's Organisations in England with a range of support. Preston Disc is = > part of an alliance in partnership with Disability Awareness in Action, Peo= > ple First, the United Kingdom Disabled People's Council, Alliance for Inclu= > sive Education, the Equalities National Council and Scope. All the organisa= > tions in the alliance are DPOs apart from Scope. =0A=0A=0ARegistration numb= > er: 5506903 Cardiff=0A=0A=0APreston DISC 103-104 Church Street. Preston PR1= > 3BS=0A=0A=0AThis e mail and attachments may be confidential and intended s= > olely for the use of the individual to whom it is addressed. Any views or o= > pinions expressed are solely those of the autor and do not necessarily repr= > esent those of Preston DISC.=0AIf you are not the intended recipient of thi= > s email and attachments you must take not action based upon them, nor must = > you copy or show them to anyone. Please contact the sender if you believe y= > ou have received this email in error. =0A=0A=0A=0A=0A______________________= > __________=0AFrom: Colin REvell <[log in to unmask]>=0ATo: DISABILITY-RES= > [log in to unmask]: Tuesday, 5 May, 2009 12:37:05=0ASubject: FW: P= > ress releas;- AUTISTICS EXCLUDED FROM DOWNING STREET AUTISM EVENT=0A=0ASubj= > ect: Press release=0A=0APlease find attached (see below) the press release = > which was sent to all the London newspapers last night. Feel free to distri= > bute it further.=0A=0AThe leaflet and LARM's letter are appended to the pre= > ss release.=0A=0AMy photo is on there purely because I am told that having = > a face makes publication more likely! If there are some good photos taken t= > his =0Aevening I would be more than happy to send those out with a further = > press release saying what happened.=0A=0AAll the best for this evening to t= > hose of you who can be there.=0A=0ASelina..... Press release below....=0A= > =0A=0APress Release=0AFOR IMMEDIATE RELEASE - MONDAY 4TH MAY 2009=0A=0AAUTI= > STICS EXCLUDED FROM DOWNING STREET AUTISM EVENT=0A=0APhoto opportunity: =0A= > =0A5.30 p.m. Tuesday 5th May 2009=0Aoutside the gates of Downing Street, We= > stminster SW1A=0Amembers of autistic-led organisations will be drawing atte= > ntion to their exclusion from a reception to celebrate World Autism Awarene= > ss Day, =0Acontact Selina Postgate (of Autreach Online) on 0117 907 0721 = > =0Aor 07531 888 365 or email southwestarm@ googlemail.com=0A=0AAutistic peo= > ple are furious that nobody has been invited to represent any of their user= > -led organisations at a major Downing Street event =E2=80=93 an event held = > to celebrate awareness of autism!=C2=A0 =0A=0ASome of those spurned will be= > making their presence felt outside the Downing Street gates, by asking the= > people attending the reception to record messages of support on video.=C2= > =A0 Many other representatives of autistic-led groups will be unable to att= > end even this media call, as the personal assistance they need to travel to= > the event has not been funded.=0A=0AAutistic-led organisations excluded fr= > om the celebration include:=0A=0AAutscape (a thriving annual conference run= > by and for autistics) www.autscape.org =0ANeurodiversity International htt= > p://www.neurodiversityinternational.org.uk =0ALondon Autistic Rights Moveme= > nt c/o [log in to unmask] Rights Group Highland http://www.arghi= > ghland.co.uk/=0AAutism North East http://www.neurodiversity-northeast.org.u= > k/=0AAutistic Organisation Mid-Wales http://www.autisticorganisation.co.uk/= > =0ABirmingham Autistic Rights Movement c/o [log in to unmask] > e Autistic Rights Movement c/o [log in to unmask] addition, no r= > epresentative from any of the National Autistic Society=E2=80=99s User Repr= > esentation Groups appears to have been invited, nor any of their autistic c= > ouncillors or trustees.=0A=0AQuotes:=C2=A0 (all quotes may be attributed to= > Selina Postgate of Autreach Online)=0A=0A"How invisible are we?=C2=A0 It m= > akes me wonder whether some of these charities aren't frightened of real, l= > ive autistic grown-ups!" =0A=0A"I feel so let down. The NAS [National Autis= > tic Society] recently ran a campaign about autistic adults called =E2=80=9C= > I Exist=E2=80=9D.=C2=A0 So they know we=E2=80=99re here, but they still did= > n=E2=80=99t invite any of their autistic members to the party.=E2=80=9D=0A= > =0A"This is a highly symbolic event, and a highly symbolic omission"=0A=0A= > =0A"How well do these charities represent the interests of the people they = > purport to represent when it doesn't occur to them to invite even their own= > user representation groups, or their autistic trustees and councillors?"= > =0A=0A=E2=80=9CPeople from all the major autism charities will be there.=C2= > =A0 It's scandalous that not even representatives from non-political autist= > ic-led groups, such as the highly active and effective Autscape, have been = > invited."=0A=0A=E2=80=9CAutistic children become autistic adults. Sometimes= > I think =E2=80=9CAutism Speaks=E2=80=9D wishes we didn=E2=80=99t, because = > we=E2=80=99re not so pretty and appealing to funders.=C2=A0 That still does= > n=E2=80=99t give them the right to exclude our organisations en masse from = > a significant government event.=E2=80=9D [Autism Speaks was given the job o= > f compiling the invitation list.]=0A=0A=E2=80=9CIt=E2=80=99s a civil rights= > issue. Local autistic rights groups have been springing up around the coun= > try as for several years now, and it=E2=80=99s time those who have been use= > d to patronising us realised we are not going away.=E2=80=9D=0A=0A=E2=80=9C= > The well-worn disability rights slogan =E2=80=98Nothing about us without us= > =E2=80=99 applies to autistics too!=E2=80=9D=0A=0ANotes for Editors=0A=0ATh= > e Reception will take place at 11 Downing Street between 6 and 8 p.m.=C2=A0= > Representatives of autistic-led organisations will be gathering outside th= > e Downing Street gates from 5.30 p.m. with leaflets and video equipment.=C2= > =A0 This is not a political demonstration, but a media call.=0A=0AThe guest= > list for the even was drawn up by =E2=80=98Autism Speaks=E2=80=99, a relat= > ive newcomer to the UK charity scene which has come under fire in the USA f= > or its poor treatment of autistic adults.=0A=0ASelina Postgate, pictured be= > low, runs =E2=80=98Autreach Online=E2=80=99, a network connecting UK and Eu= > ropean Autistic-led organisations, and is on the planning committee for the= > well respected annual Autscape Conference. She is among the autistic adult= > s who will not be attending the Downing Street reception to celebrate World= > Autism Awareness Day.=0A=0A=0AOn following pages are a copy of the leaflet= > which members of autistic-led organisations will be distributing and a let= > ter from the London Autistic Rights Movement, also for distribution.=0A=0A= > =0A=0ATuesday 5th May 6 =E2=80=93 8 p.m., 11 Downing Street=0A=0AYou are in= > vited to a Reception to celebrate =0A=0AWorld Autism Awareness Day=0A=0A"I'= > m sure it's just an oversight=E2=80=9D=C2=A0 =0A=C2=A0 =C2=A0 a non-autisti= > c NAS council member=0A=0A=0AAutistic-led organisations which have not been= > invited to send a representative today include:=0A=0A=0AAutscape (annual c= > onference run by and for autistics) www.autscape.org =0ANeurodiversity Inte= > rnational http://www.neurodiversityinternational.org.uk =0AAutism Rights Gr= > oup Highland http://www.arghighland.co.uk/=0AAutistic Organisation (Mid-Wal= > es) http://www.autisticorganisation.co.uk/=0AAutism North East http://www.n= > eurodiversity-northeast.org.uk/=0ALondon Autistic Rights Movement c/o rocob= > [log in to unmask] Autistic Rights Movement c/o [log in to unmask] > net=0ALancashire Autistic Rights Movement c/o [log in to unmask] > addition, no representative from any of the NAS=E2=80=99s User Representat= > ion Groups =0Aappears to have been invited, nor any autistic councillors or= > trustees.=0A=C2=A0 =0AIgnored and excluded - by the very charities who say= > they work our behalf!=0AWe Exist!=0APlease come and tell us your thoughts.= > =C2=A0 We are here with video cameras to record the support we are shown.= > =C2=A0 =0ALook out for the We Exist! sign.=0ANOTHING ABOUT AUTISTICS WITHOU= > T AUTISTICS=0ALeaflet produced by Autreach Online (http://autreach.backpack= > it.com/pub/1382191) on behalf of all the above groups=0A=0A=0ALetter from L= > ondon Autistic Rights Movement (LARM):=0ADear all,=0A=0AThe London Autistic= > Rights Movement, as an organisation controlled by autistic people, deplore= > s the resolution issued by the UN to mark the first World Autism Awareness = > Day. Aside from its complete failure to address any of the access issues wh= > ich neurodiverse, including autistic, people have, it is also a deeply pejo= > rative statement, which focuses exclusively on treatment and portrays autis= > tics as disordered and requiring treatment, rather than the correct practic= > e of seeking to ensure inclusion. This would require such things as alterin= > g design standards to end the tyranny of noisy, busy, open plan environment= > s and replace them with flexi-plan and cellular environments, as well as en= > forcing stringent noise insulation and regulation, ending strip lighting, a= > nd creating low arousal environments. Also, tackling metabolic (especially = > food and medicine) access issues. Furthermore, we also insist that autistic= > s' right to communicate and to control the kind > of services that are available to us must be acted upon and seen as centra= > l.=C2=A0 =0AIn adopting the tone and content it has done in its resolution,= > the UN allows the continuation and perpetuation of a status quo which cond= > ones the locking up and drugging up of huge numbers of neurodiverse includi= > ng autistic people, and the exclusion of most of us from the workplace and = > most other aspects of life. This situation only benefits those "service pro= > viders" seeking to make a huge profit at the expense of autistic people. = > =0A=0AWe welcome in principle the UN's creation of an Autism Awareness Day = > in perpetuity on April 2 of each year, in accordance with General Assembly = > UN Resolution 62/139. World Autism Awareness Day of 21 January 2008. Howeve= > r, the work around World Autism Day is unlikely to have a positive impact o= > n the lives of neurodiverse including autistic people and to meet our real = > needs. The meeting of neurodiverse/ autistic-led organisations with the Com= > mission on Access to the Built Environment (CABE) under the auspices of the= > Equality and Human Rights Commission (EHRC) is much more likely to be of p= > ractical use.=0ASimilarly, We welcome the UN Convention on the Rights of Pe= > rsons With Disabilities (hereafter Disability Convention), and other UN Hum= > an Rights Conventions and provisions, as mentioned in the Resolution itself= > . But, we note also the failure of the UN to apply the principles of its ow= > n Disability Convention to involve disabled people and the organisations we= > control in all matters which affect us. And especially to involve in any w= > ay whatsoever, autistic-led organisations. This included in the drafting of= > the Disability Convention itself, in which no attempt was made to ensure t= > hat neurodiverse including autistic-led organisations were actually able to= > address the UN itself or were in any way involved in actually drafting the= > Disability Convention. This was in marked contrast to the involvement of o= > rganisations higher up the "hierarchy of impairments" representing the far = > less common impairments of deafness, blindness and partially sightedness, a= > mputees, > wheelchair users and other more obvious (and/or less stigmatised) impairme= > nts.=0AInstead, in a move akin to nineteenth century conferences about wome= > n's rights only inviting organisations led by men to speak, the United Nati= > ons has trampled over the spirit and the letter of its own Disability Conve= > ntion by organising World Autism Awareness Day through an organisation not = > controlled by autistic people and with no intention of ever becoming so, an= > d which has described autism as a "plague" and an "epidemic", namely Autism= > Speaks. =0A=0AScientifically, autism is, of course, neither. Nor is it a d= > isorder. Rather it is a difference which society needs to accommodate. Unfo= > rtunately, Autism Speaks describes autism in entirely negative terms. There= > is no mention of positive aspects of autism or of our talents, or of the n= > eed to change access standards, including over sensory issues. Only of "aut= > istic spectrum disorders", not of "autistic spectrum differences". This is = > a flagrant violation of the spirit and letter of the UK Government's commit= > ment under the Disability Discrimination Act 2005 Disability Equality Duty = > to involve disabled people's organisations and to create a "positive image = > of disabled people".=0A=0AAll World Autism Awareness Days must be led, run,= > managed and controlled by autistic-led organisations. And all UN resolutio= > ns on the subject should meet with the approval of our autistic-led organis= > ations, and involve them at the drafting stage (at the expense of the UN). = > And at every other stage of the process. This has been supported by Neil Cr= > owther, Senior Policy Manager on Disability at the UK's Equality And Human = > Rights Commission, the main official body tasked with the promotion of the = > rights of disabled people. As he says:=C2=A0 =0A"the principle of 'nothing = > about us without us' has and continues to be critical to the evolution of d= > isabled people's rights and full participation in society, and that is in t= > he spirit of both the UN Convention and the DDA."=0AWe therefore demand:=0A= > 1.=C2=A0 The admission of our disabled people-led including neurodiverse an= > d autistic-led organisations' representatives to this reception on May 5th,= > 2009 at no.11 Downing Street.=0A2.=C2=A0 The reading out and distribution = > of this letter at the reception by our representatives.=0A3.=C2=A0 That the= > programme of the reception and the official statements issued at it be re-= > organised to meet our satisfaction.=0A4.=C2=A0 That the full costs of disab= > led people-led including neurodiverse and autistic-led organisations attend= > ing the reception are met. Including compensation for any time taken off wo= > rk.=0A5.=C2=A0 That the reception emphasise the need, in accordance with th= > e social model of disability, to=C2=A0 have our access needs met through le= > gal revision of access standards.=0A6.=C2=A0 And the need to transfer the c= > ontrol of disability organisations to the people they claim to represent an= > d speak on behalf of.=0A=0A=0A_____________________________________________= > ____________________=0AShare your photos with Windows Live Photos =E2=80=93= > Free.=0Ahttp://clk.atdmt.com/UKM/go/134665338/direct/01/=0A_______________= > _End of message________________=0A=0AThis Disability-Research Discussion li= > st is managed by the Centre for Disability Studies at the University of Lee= > ds (www.leeds.ac.uk/disability-studies).=0AEnquiries about list administrat= > ion should be sent to [log in to unmask] > ves and tools are located at:=0Awww.jiscmail.ac.uk/lists/disability-researc= > h.html=0AYou can VIEW, POST, JOIN and LEAVE the list by logging in to this = > web page.=0A=0A=0A=0A > > ________________End of message________________ > > This Disability-Research Discussion list is managed by the Centre > for Disability Studies at the University of Leeds > (www.leeds.ac.uk/disability-studies). > Enquiries about list administration should be sent to > [log in to unmask] > > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > ------------------------------ > > Date: Wed, 6 May 2009 05:32:57 -0700 > From: Vanmala H <[log in to unmask]> > Subject: Surveillance and disabled people > > Hi, > > I was wondering if anyone has any information on surveillance of > people with disabilities, particularly welfare recipients in US, > Canada, UK or European countries. A colleague in Canada, who is a > counselor and social work educator and practitioner, had mentioned > that people with disabilities in Nova Scotia, Canada, who are on > social assistance are watched daily by case workers (aka the state?) > by using powerful video cameras trained at their open windows, > curtains, backyards etc to watch their daily activities. This is to > ensure that the disabled person is not living, say with a partner, > or earning an income, etc. > > Has this issue been explored? I have been quite appalled by this -- > I am aware such human rights violations are being perpetrated, > particularly post 9/11, on non-white peoples, immigrants, activists, > foreigners and those viewed as the 'Other', but I wasn't aware that > people with disabilities in "developed" countries are also subject > to such surveillance and 24/7 monitoring. > > I wonder if this is the situation all over Canada --- is this so in > US, UK, Europe as well? Any leads? > > Thanks in advance, > > Vanmala Hiranandani > > > > > > ________________End of message________________ > > This Disability-Research Discussion list is managed by the Centre > for Disability Studies at the University of Leeds > (www.leeds.ac.uk/disability-studies). > Enquiries about list administration should be sent to > [log in to unmask] > > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > ------------------------------ > > Date: Wed, 6 May 2009 08:48:50 -0400 > From: Andrea Shettle <[log in to unmask]> > Subject: Re: Surveillance and disabled people > > I have no idea of the research in this, if any. But in reading the BBC > Ouch discussion board, I gather that in the UK most media coverage of > disabled people focuses either on the so-called "super crip" image or > on the "dead beat" image, i.e. people who are actually just faking it > to get government assistance. Furthermore, I gather (and I'm not > actually in the UK, I just read discussions from people who are) that > there are apparently public spot commercials encouraging ordinary > members of the public to report to a hotline if they think a neighbor > is faking their disability in order to receive assistance. This can > create a lot of stress for people who have widely varying, > unpredictable impairments because they feel like they have to pretend > to have a limp or something even if it is actually on a good day for > them, or make a point of showing it in their face expression when they > experience pain instead of covering it up as would be their usual > instinct. So in the UK, it sounds kind of like the whole country is > asked to be your "Big Brother" watcher if you're disabled. Since I > know there are so many people from the UK on this list, I hope they can > serve further enlightenment. But I wonder if that shouldn't be looked > at also--not just surveillance from the state but actively encouraged > surveillance from one's own neighbors doesn't sound that much more > pleasant to live under. > > The BBC Ouch discussion board is at > http://www.bbc.co.uk/dna/mbouch/F2322273 > > BBC Ouch doesn't have a good search facility. But if you use the > advanced search feature at google.com and plug in the URL for BBC Ouch > then that serves well enough. > > Andrea > [log in to unmask] > > > On May 6, 2009, at 8:32 AM, Vanmala H wrote: > >> Hi, >> >> I was wondering if anyone has any information on surveillance of >> people with disabilities, particularly welfare recipients in US, >> Canada, UK or European countries. A colleague in Canada, who is a >> counselor and social work educator and practitioner, had mentioned >> that people with disabilities in Nova Scotia, Canada, who are on >> social assistance are watched daily by case workers (aka the state?) >> by using powerful video cameras trained at their open windows, >> curtains, backyards etc to watch their daily activities. This is to >> ensure that the disabled person is not living, say with a partner, or >> earning an income, etc. >> >> Has this issue been explored? I have been quite appalled by this -- I >> am aware such human rights violations are being perpetrated, >> particularly post 9/11, on non-white peoples, immigrants, activists, >> foreigners and those viewed as the 'Other', but I wasn't aware that >> people with disabilities in "developed" countries are also subject to >> such surveillance and 24/7 monitoring. >> >> I wonder if this is the situation all over Canada --- is this so in >> US, UK, Europe as well? Any leads? >> >> Thanks in advance, >> >> Vanmala Hiranandani >> >> >> >> >> >> ________________End of message________________ >> >> This Disability-Research Discussion list is managed by the Centre for >> Disability Studies at the University of Leeds >> (www.leeds.ac.uk/disability-studies). >> Enquiries about list administration should be sent to >> [log in to unmask] >> >> Archives and tools are located at: >> www.jiscmail.ac.uk/lists/disability-research.html >> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web >> page. >> > > ________________End of message________________ > > This Disability-Research Discussion list is managed by the Centre > for Disability Studies at the University of Leeds > (www.leeds.ac.uk/disability-studies). > Enquiries about list administration should be sent to > [log in to unmask] > > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > ------------------------------ > > Date: Wed, 6 May 2009 16:06:54 +0100 > From: Emma Rowlett <[log in to unmask]> > Subject: Re: Surveillance and disabled people > > Hi, > > I live in the UK and am aware of the posters that Andrea mentions. > They suggest that benefit cheats aren't cheating the government but > are cheating you (i.e. the person reading the poster) and so it is in > your interests to report such people. I claim disability benefits and > this makes me very nervous as although my visual impairment and > hearing impairment are fairly static, I have a back problem and some > days struggle to walk to my garden gate and other days I can walk > miles! I know at least one of my neighbours has started rumours about > me but I don't think she's reported me yet! > > I've heard that people are employed to use cameras in drinks cans and > things to secretly film people doing things they say they can't do or > working when they are claiming benefits. I don't know if this is true > but it is a scary idea. > > Details about the latest government campaign in the UK can be found > at: http://www.dwp.gov.uk/campaigns/benefit-thieves/ > > Good luck with your research, > > Emma > > On 06/05/2009, Andrea Shettle <[log in to unmask]> wrote: >> I have no idea of the research in this, if any. But in reading the BBC O= > uch >> discussion board, I gather that in the UK most media coverage of disabled >> people focuses either on the so-called "super crip" image or on the "dead >> beat" image, i.e. people who are actually just faking it to get governmen= > t >> assistance. Furthermore, I gather (and I'm not actually in the UK, I jus= > t >> read discussions from people who are) that there are apparently public sp= > ot >> commercials encouraging ordinary members of the public to report to a >> hotline if they think a neighbor is faking their disability in order to >> receive assistance. This can create a lot of stress for people who have >> widely varying, unpredictable impairments because they feel like they hav= > e >> to pretend to have a limp or something even if it is actually on a good d= > ay >> for them, or make a point of showing it in their face expression when the= > y >> experience pain instead of covering it up as would be their usual instinc= > t. >> So in the UK, it sounds kind of like the whole country is asked to be you= > r >> "Big Brother" watcher if you're disabled. Since I know there are so many >> people from the UK on this list, I hope they can serve further >> enlightenment. But I wonder if that shouldn't be looked at also--not jus= > t >> surveillance from the state but actively encouraged surveillance from one= > 's >> own neighbors doesn't sound that much more pleasant to live under. >> >> The BBC Ouch discussion board is at >> http://www.bbc.co.uk/dna/mbouch/F2322273 >> >> BBC Ouch doesn't have a good search facility. But if you use the advanc= > ed >> search feature at google.com and plug in the URL for BBC Ouch then that >> serves well enough. >> >> Andrea >> [log in to unmask] >> >> >> >> On May 6, 2009, at 8:32 AM, Vanmala H wrote: >> >> >> > Hi, >> > >> > I was wondering if anyone has any information on surveillance of people >> with disabilities, particularly welfare recipients in US, Canada, UK or >> European countries. A colleague in Canada, who is a counselor and social >> work educator and practitioner, had mentioned that people with disabiliti= > es >> in Nova Scotia, Canada, who are on social assistance are watched daily by >> case workers (aka the state?) by using powerful video cameras trained at >> their open windows, curtains, backyards etc to watch their daily activiti= > es. >> This is to ensure that the disabled person is not living, say with a >> partner, or earning an income, etc. >> > >> > Has this issue been explored? I have been quite appalled by this -- I a= > m >> aware such human rights violations are being perpetrated, particularly po= > st >> 9/11, on non-white peoples, immigrants, activists, foreigners and those >> viewed as the 'Other', but I wasn't aware that people with disabilities i= > n >> "developed" countries are also subject to such surveillance and 24/7 >> monitoring. >> > >> > I wonder if this is the situation all over Canada --- is this so in US, >> UK, Europe as well? Any leads? >> > >> > Thanks in advance, >> > >> > Vanmala Hiranandani >> > >> > >> > >> > >> > >> > ________________End of message________________ >> > >> > This Disability-Research Discussion list is managed by the Centre for >> Disability Studies at the University of Leeds >> (www.leeds.ac.uk/disability-studies). >> > Enquiries about list administration should be sent to >> [log in to unmask] >> > >> > Archives and tools are located at: >> > www.jiscmail.ac.uk/lists/disability-research.html >> > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web >> page. >> > >> > >> >> ________________End of message________________ >> >> This Disability-Research Discussion list is managed by the Centre for >> Disability Studies at the University of Leeds >> (www.leeds.ac.uk/disability-studies). >> Enquiries about list administration should be sent to >> [log in to unmask] >> >> Archives and tools are located at: >> www.jiscmail.ac.uk/lists/disability-research.html >> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web pa= > ge. >> > > > --=20 > Emma Jane Rowlett (n=C3=A9e Wright) > School of Sociology and Social Policy > University of Nottingham > > [log in to unmask] > > www.accessingmaterials.org.uk > > ________________End of message________________ > > This Disability-Research Discussion list is managed by the Centre > for Disability Studies at the University of Leeds > (www.leeds.ac.uk/disability-studies). > Enquiries about list administration should be sent to > [log in to unmask] > > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > ------------------------------ > > Date: Wed, 6 May 2009 11:50:04 -0400 > From: Maria Barile <[log in to unmask]> > Subject: Re: Surveillance and disabled people > > Hi Vanmala > I don't know about Nova Scotia, it is not the practice in Qu=E9bec. Howe= > ver I=20 > would be very surprise. You may want to consult CCD (councilof Canadian=20 > with disability) as far as I know, this is not even legal in Canada. > > However what to keep me inform. > Maria > ----- Original Message -----=20 > From: "Vanmala H" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, May 06, 2009 8:32 AM > Subject: Surveillance and disabled people > > >> Hi, >> >> I was wondering if anyone has any information on surveillance of people= > =20 >> with disabilities, particularly welfare recipients in US, Canada, UK or= > =20 >> European countries. A colleague in Canada, who is a counselor and socia= > l=20 >> work educator and practitioner, had mentioned that people with=20 >> disabilities in Nova Scotia, Canada, who are on social assistance are=20 >> watched daily by case workers (aka the state?) by using powerful video=20 >> cameras trained at their open windows, curtains, backyards etc to watch= > =20 >> their daily activities. This is to ensure that the disabled person is n= > ot=20 >> living, say with a partner, or earning an income, etc. >> >> Has this issue been explored? I have been quite appalled by this -- I a= > m=20 >> aware such human rights violations are being perpetrated, particularly=20 >> post 9/11, on non-white peoples, immigrants, activists, foreigners and=20 >> those viewed as the 'Other', but I wasn't aware that people with=20 >> disabilities in "developed" countries are also subject to such=20 >> surveillance and 24/7 monitoring. >> >> I wonder if this is the situation all over Canada --- is this so in US,= > =20 >> UK, Europe as well? Any leads? >> >> Thanks in advance, >> >> Vanmala Hiranandani >> >> >> >> >> >> ________________End of message________________ >> >> This Disability-Research Discussion list is managed by the Centre for=20 >> Disability Studies at the University of Leeds=20 >> (www.leeds.ac.uk/disability-studies). >> Enquiries about list administration should be sent to=20 >> [log in to unmask] >> >> Archives and tools are located at: >> www.jiscmail.ac.uk/lists/disability-research.html >> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web=20 >> page. >> =20 > > ________________End of message________________ > > This Disability-Research Discussion list is managed by the Centre > for Disability Studies at the University of Leeds > (www.leeds.ac.uk/disability-studies). > Enquiries about list administration should be sent to > [log in to unmask] > > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > ------------------------------ > > Date: Wed, 6 May 2009 18:27:21 +0100 > From: Colin REvell <[log in to unmask]> > Subject: Liberty are a disgrace on basic human rights and civil > liberties towards Disabled People... You were right Mike and Nick!!! > > Shami Chackrabarti and Liberty have showed therir true 'disabilist' colours= > !!! (Yes Mike=2C Nick=2C I will swallow my pride amnd say that you were bo= > th right and warned everyone about this!!!) > =20 > What do we do next?..=20 > =20 > Their staff 'disabilist attituides and behaviour has caused me great trauma= > and upset this afternoon as an Autistic/NeuroDiverse disabled person. The= > y have intentionally gone out to cause me harm and also disability hate cri= > mes. They are a disgrace!!! They even will not alllow me access to complain= > ts procedure. What does this say on basic human rights? > =20 > I have reported them to the EHRC. I intend to make complaints to the Chari= > ties Commission too and the Courts. > =20 > We need a DAN Action and Allies outside Liberty's office to express our fee= > lings. Make sure we get full publicity on this too.=20 > =20 > Martin=2C make sure this letter goes on NDI website.... They have had Adria= > n=2C others and I on a string for 4 1/2 years with their promies to DAN and= > our Allies and I within the Disabled Peoples' movement=2C sionce Adrian an= > d I challengedf Shami Chakrabarti on 'disability-issues' at the European So= > cial Forum=2CIn London 2004. > =20 > She also promised to meet us again lasy year when she came to the East Ridi= > ng for David Davis civil liberties debate.... > =20 > DAN and our allies have been blatantly lied too by Shami Chackrabarti and o= > thers at Liberty. > =20 > Let's get outside their offices ASAP and let them know how we feel within D= > AN. > =20 > Colin... Copy of letter attached below... > LIBERY=20 > http://www.liberty-human-rights.org.uk > =20 > Mr Colin Revell [log in to unmask] > > > Dear Mr Revell=2C=20 > > 6th May 2009=20 > > For several months now colleagues of mine within the Operations Team at Lib= > erty have been attempting to arrange for you to meet with Liberty's Directo= > r. Unfortunately=2C this is proving to be an extremely difficult thing to a= > chieve.=20 > > When the Director initially agreed to meet with you=2C it was on the unders= > tanding that it was a meeting between yourself and her. Subsequently=2C you= > advised us that the meeting was to be widened to include several colleague= > s of yours.=20 > We reluctantly agreed to this=2C and attempted to arrange for a meeting to = > be held in London=2C and a date was identified. At this point=2C you inform= > ed us that you were no longer in a position to travel to London.=20 > > Since then=2C we have tried to re-arrange a meeting between you and Liberty= > 's mrector nearer to you.=20 > > However=2C this has also proved to be extremely difficult=2C and we are now= > at a stage where my colleagues are spending an increasing amount of time d= > ealing with this and other matters relating to you. My colleagues are findi= > ng it extremely stressful dealing with considerably lengthy calls and corre= > spondence from you and your now former personal assistant.=20 > I have now come to the conclusion that it will not be possible for us to ar= > range a meeting between you and the Liberty Director. I regret having to ta= > ke this decision=2C but I feel that we have done as much as we can to facil= > itate the agreed meeting=2C and have been faced with obstacles beyond our c= > ontrol on every occasion.=20 > > In view of my decision=2C I must ask you to refrain from calling members of= > the Liberty Operations Team with immediate effect. Should you do so=2C my = > colleagues have been instructed not to take your call.=20 > Yours sincerely=2C=20 > =20 > > Raj Chandarana Director of Operations=20 > THE NATIONAL COUNCiL FOR CiVlL UBERTIES=20 > > =20 > Hi Linda et al... > =20 > As I said=2C if Shami Chackrabarti and others within Liberty have totally d= > isrespect and ignorance towards DAN and our Allies=2C then we should make e= > veryone aware of this. > =20 > DAN and our allies should organise a campaign against Liberrty for their co= > ntinued 'Disabilism' and the way they are ignorant to our 'disability-issue= > s'. > =20 > We need now to up our campaign against Liberty.=20 > =20 > I know Adrian and I was expecting this bad news from them=2C but even expec= > ting it=2C the news has still caused me alarm and distress and triggered a = > response which Liberty have heard this afternoon. This letter and their 'di= > sabilist attitudes=2C conduct and behaviour by the insentivitive 'disablist= > ' staff has also triggered my autitistic/neurodiverse 'behaviours'and traum= > a this afternoon too. > =20 > It is cruel and inhumane their behaviour towards Adrian and I and DAN=2C RA= > DAR=2C Autistic/NeuroDiverse Rights Movement and our allies by having us ha= > nging on a string all these years=2C since 2004=2C at the European Social F= > orum ion London=2C then again Shami promised this meeting again=2C in front= > of loads of witnesses=2C at the David Davis MP 'civil-liberties' debate wh= > en she visited the East Riding last year. > =20 > How can any of us ever trust Shami and Liberty ever again? > =20 > If you look at Liberty's website there are plenty of opportunities for DAN = > and our allies to oragnise our protest against Liberty:- > http://www.liberty-human-rights.org.uk > =20 > ***You have my permission to share this letter within all your networks. > =20 > FREEOURPEOPLE > > =20 > Colin Revell=2C Hull and E.Riding DAN regional Co-ordinator and CEO NeuroDi= > versity International > > =20 > _________________________________________________________________ > Share your photos with Windows Live Photos =96 Free. > http://clk.atdmt.com/UKM/go/134665338/direct/01/= > > ________________End of message________________ > > This Disability-Research Discussion list is managed by the Centre > for Disability Studies at the University of Leeds > (www.leeds.ac.uk/disability-studies). > Enquiries about list administration should be sent to > [log in to unmask] > > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > ------------------------------ > > Date: Wed, 6 May 2009 18:40:19 +0100 > From: Larry Arnold <[log in to unmask]> > Subject: Re: Surveillance and disabled people > > I think they would need the full resources of MI5 to follow me about = > sometimes, because of my frequent rail travel, you can't just follow me = > onto a train, you need a ticket, and I would certainly know if anyone = > were following me onto a bus. Anyway whoever said that being disabled = > was incompatible with being a student at an out of town University? > > There are surveillance cameras in our street, but they were not even = > good enough to catch someone vandalising my Landie some time back. > > If anyone were watching me, it probably would be MI5 (waves) > > Larry > >> -----Original Message----- >> From: The Disability-Research Discussion List [mailto:DISABILITY- >> [log in to unmask]] On Behalf Of Emma Rowlett >> Sent: 06 May 2009 16:07 >> To: [log in to unmask] >> Subject: Re: Surveillance and disabled people >> =20 >> Hi, >> =20 >> I live in the UK and am aware of the posters that Andrea mentions. >> They suggest that benefit cheats aren't cheating the government but >> are cheating you (i.e. the person reading the poster) and so it is in >> your interests to report such people. I claim disability benefits and >> this makes me very nervous as although my visual impairment and >> hearing impairment are fairly static, I have a back problem and some >> days struggle to walk to my garden gate and other days I can walk >> miles! I know at least one of my neighbours has started rumours about >> me but I don't think she's reported me yet! >> =20 >> I've heard that people are employed to use cameras in drinks cans and >> things to secretly film people doing things they say they can't do or >> working when they are claiming benefits. I don't know if this is true >> but it is a scary idea. >> =20 >> Details about the latest government campaign in the UK can be found >> at: http://www.dwp.gov.uk/campaigns/benefit-thieves/ >> =20 >> Good luck with your research, >> =20 >> Emma >> =20 > can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > ________________End of message________________ > > This Disability-Research Discussion list is managed by the Centre > for Disability Studies at the University of Leeds > (www.leeds.ac.uk/disability-studies). > Enquiries about list administration should be sent to > [log in to unmask] > > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > ------------------------------ > > Date: Wed, 6 May 2009 14:00:45 -0400 > From: LILITH Finkler <[log in to unmask]> > Subject: Resources & Info RE: Surveillance and disabled people > > HI Emma. Please find links below to websites that may offer helpful informa= > tion with regard to your query. Please note that social assistance legislat= > ion in Canada is enacted provincially rather than federally. That means eac= > h province will make its own rules and maintain its own appeal tribunal. It= > also means two provinces may have similar laws on the books but civil serv= > ants may implement them differently. > > =20 > > It seems to me disabled social assistance recipients in Ontario may well be= > subject to surveillance=2C whether such provisions exist in law or in pol= > icy. It depends to some extent whether they are in receipt of welfare payme= > nts under the Ontario Works Act (OWA) or in receipt of disability payments = > under the Ontario Disability Support Program Act (ODSPA). Although "welfare= > " is supposed to be for those who are temporarily unemployed=2C disabled p= > ersons may be in receipt of welfare because they may not be deemed to meet = > the rigid eligibity requirements under the ODSPA. For further information= > =2C please see below. Lilith > > =20 > > E-laws provides free access to Ontario legislation > > http://www.e-laws.gov.on.ca/index.html > > =20 > > ARCH is a free clinic for disabled persons > > http://www.archdisabilitylaw.ca/ > > =20 > > The Income Security legal clinic provides free information=2C representatio= > n for persons in receipt of social assistance > > http://www.incomesecurity.org/ > > =20 > > CLEO provides free brochures in plain english about various laws that perta= > in to disabled persons and persons living on low incomes. > > http://www.cleonet.ca/ > > =20 > > Thought that this article might be of interest.=20 > > http://www.accessibilitynews.ca/cwdo/activities/odsp_committee.php?activiti= > es-odsp=3D522 > > _________________________________________________________________ > Create a cool=2C new character for your Windows Live=99 Messenger.=20 > http://go.microsoft.com/?linkid=3D9656621= > > ________________End of message________________ > > This Disability-Research Discussion list is managed by the Centre > for Disability Studies at the University of Leeds > (www.leeds.ac.uk/disability-studies). > Enquiries about list administration should be sent to > [log in to unmask] > > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > ------------------------------ > > Date: Wed, 6 May 2009 19:07:00 +0100 > From: Colin REvell <[log in to unmask]> > Subject: Re: Liberty are a disgrace on basic human rights and civil > liberties towards Disabled People... You were right Mike and Nick!!! > > Cc. Includes Liz Sayce=2C CEO of RADAR. > > PLEASE FEEL FREE TO FORWARD WITH ATTACHMENT > > Dear all=2C > > While I did not witness Colin's phone calls=2C or those of his personal ass= > istants (as these were made from his home and they were not conference call= > s)=2C I can confirm that we were publicly promised a meeting with Shami Cha= > krabarti=2C when we met her at the European Social Forum a few years back n= > ow. I was acting as Colin's Peer Personal Assistant and Peer Advocate at th= > e time as the Personal Assistant supplied by the European Social Forum was = > on a break. This was made plain to Shami Chakrabarti and those with her. We= > did not ask for a meeting with her. She promised it unprompted. > > This meeting was always intended to be about two things: > > 1. Colin's cases. We were specifically told that Shami Chakrabarti would me= > et with Colin in Yorkshire about this. That offer came from Liberty as it w= > as pointed out that the Chair of Liberty's Board lives in Yorkshire. Colin = > was happy to participate in the meeting by telephone or using internet vide= > ophone technology. This saves him the stress of travel and accompanying sen= > sory overload. He was also willing to call you from his personal telephone = > line to minimise Liberty's costs. > > 2. Disability rights in general and what Liberty could do to promote them a= > s a human rights issue=2C in conjunction with leading disabled people led o= > rganisations. We have=2C for example=2C involved Liz Sayce=2C CEO of RADAR= > =2C in this. Liberty recently contacted me about setting an agenda for this= > and a time for this. We spoke for over an hour on the phone about this. An= > d I followed up by email. It was specified that we needed two separate meet= > ings=2C if at all possible. We also wanted other organisations=2C such as t= > he UKCODP=2C and members of the Disabled People's Direct Action Network (DA= > N) to attend=2C as well as NCIL. > > So=2C I have a few questions for Liberty: > > Why was the volume of calls and staff time dealing with Colin not raised as= > an issue before now to his colleagues? > Why were solutions not sought? > Why was there no warning whatsoever that you might not want to meet with Co= > lin=2C after all? > What does Liberty intend to do about the second meeting=2C even if it is no= > t prepared to help Colin to take his cases forward? > What does Liberty intend to do about the gross overrepresentation of disabl= > ed people in the prison system? > What does Liberty intend to do about tackling the endemic ignoring of the D= > isability Equality Duty? > What does Liberty intend to do about the proposed Single Equality Duty? > And about accessing its own internal complaints system? > And about providing accessible communication? > And about making its own website fully accessible to all disabled people?=20 > Or at least complying with the law on web access? > What disability equality training does Liberty have for its staff=2C volunt= > eers and directors? > What training does it give them about the hierarchy of impairments? > And the hierarchy of equalities? > And the hierarchy of differences? > Is it normal practice for people to wait over four and a half years for a p= > romised meeting and then to be refused it? > What proportion of its cases are on behalf of disabled people? > What is the breakdown of impairments in those cases? > What proportion of its directors=2C volunteers and staff are disabled peopl= > e? > What is the breakdown of their impairments? > Can Liberty supply a full breakdown of its client base and also of access t= > o its complaints system=2C as well as of statistical outcomes? > Please feel free to add your own questions. > > We seek a conciliatory outcome as we want Liberty to be our ally. And I wou= > ld encourage people to join Liberty so that they can work to improve its as= > members of Liberty. > > As Chair I could insist that Liberty's letter be taken down from Neurodiver= > sity International's website. But=2C you have not specified that it should = > be private and confidential. > > Therefore it is time to give the issues a full public airing. > > Yours > > Adrian Whyatt=2C Chair=2C Neurodiversity International (official capacity)= > =3B RADAR Trustee (personal capacity)=2C inter alia (amongst other things).= > P.S. I must be off now. Hope to hear from you all soon. > =20 > _________________________________________________________________ > Beyond Hotmail =97 see what else you can do with Windows Live. > http://clk.atdmt.com/UKM/go/134665375/direct/01/= > > ________________End of message________________ > > This Disability-Research Discussion list is managed by the Centre > for Disability Studies at the University of Leeds > (www.leeds.ac.uk/disability-studies). > Enquiries about list administration should be sent to > [log in to unmask] > > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > ------------------------------ > > Date: Wed, 6 May 2009 12:32:49 -0700 > From: Devva Kasnitz <[log in to unmask]> > Subject: Recent articles in Anthropology Venues about the NAPA-OT > Field School on anthropology, occupational therapy/science, and > disability studies! > > Here are 2 articles that announce the new NAPA-OT Field School on > anthropology, occupational therapy/science, and disability studies! > > Best, > > Devva > > > >> Apr 2009 Anthro News NAPA OT Field School.PDF >> >> >> Note: To protect against computer viruses, e-mail programs may prevent >> sending or receiving certain types of file attachments. Check your e-mail >> security settings to determine how attachments are handled. >> > > > Cell Phone: 510-206-5767 > > Devva Kasnitz, PhD > Anthropology > University of California, Berkeley > > EMAIL: <[log in to unmask]> > > Eureka Home Mailing Address: > 1614 D St > Eureka, CA 95501 > Voice: 707-443-1973 > > ________________End of message________________ > > This Disability-Research Discussion list is managed by the Centre > for Disability Studies at the University of Leeds > (www.leeds.ac.uk/disability-studies). > Enquiries about list administration should be sent to > [log in to unmask] > > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > ------------------------------ > > End of DISABILITY-RESEARCH Digest - 5 May 2009 to 6 May 2009 (#2009-107) > ************************************************************************ > ________________End of message________________ This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies). Enquiries about list administration should be sent to [log in to unmask] Archives and tools are located at: www.jiscmail.ac.uk/lists/disability-research.html You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. ________________End of message________________ This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies). Enquiries about list administration should be sent to [log in to unmask] Archives and tools are located at: www.jiscmail.ac.uk/lists/disability-research.html You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.