Really?
Respite is an interesting condundrum and to say more about it here would
actually be done without the ethics I am bounden too within this "masonic"
fraternity (Josiah of Brum that is)
Respite for whom is a very good question, I have lots to say about that I
cannot say publicly unfortunately, however in my time as a disability
advocate, carer and crip myself I have a lot of stories accumulated in my
anecdotage.
I have even more to say about ACER too but that is another story, if not a
warning :)
Larry
> -----Original Message-----
> From: The Disability-Research Discussion List
> [mailto:[log in to unmask]] On Behalf Of Mitzi Waltz
> Sent: 28 November 2008 10:06
> To: [log in to unmask]
> Subject: Re: Liz
>
> Liz:
> It sounds like your practice is exactly what we would
> advocate at ACER. In fact, it's required (throw some Valuing
> People and requisite NHS documents on "patient" voice at
> them.) More importantly, leisure provision is a service for
> the *children* rather than their parents, so I can't imagine
> that their parents would be likely to have greater insight.
> The ability express a choice (even if it's only yes or no) is
> really crucial.
> David Preece's article on consultation with children with ASD
> on their experiences of short breaks/respite might be useful
> as well:
> http://www3.interscience.wiley.com/journal/118926272/abstract?
> CRETRY=1&SRETRY=0
>
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