Dear Kip (or anyone else),
I was wondering if I could ask you some questions related to my work which
may resonate with some of yours which I do apologise for not knowing very
well. I am doing a study looking at the experiences of patients who opt not
to dialyse and the impact this has on carers. I am trying to use BNIM at
first and second interview but as my study is longitudinal I am interviewing more regularly.
I am not going to use BNIM to analyse
my data as I am hoping to present some global messages esp. in the renal
arena as very little work has been done in this area and renal patients are
a marginalized group who miss out on palliative care.
One carer has given a very rich story of the impact the renal disease has
had on her life, the main thing being that her mother is going to die. But she
also talks about her early life with her mother who has always had mental
illness, didn't speak English, was a single parent and wasn't able to look
after her. She was placed in care on several occasions but always ran back
to her mother.
This carer has been a carer all her life and the impact of this is far
reaching for her I think. I was wondering if you had any thoughts on how I
might progress at future interviews. Could you direct me to any literature
that might help. I don't want to loose the impact of the renal disease but
as I am finding with most of my patients/carers there is much more in life
than just that and I will need to bring all that together somehow!
I realise I have only given you a very brief sketch of my issue but please
do ask me to expand if that is helpful.
Many thanks
Helen
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