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Hi all Can you please remove me from this list Kind regards Hannah On Thu, 10 May 2018, 06:58 Mo Stewart, <[log in to unmask]> wrote: > Thanks Marion > > > > Your commentary has raised a hope that the recent posts are a minority of > opinion within the group. > > > > How much of the ‘language of disability’ in disability research of late > has been influenced by the UK government, and the banner headlines of the > tabloid press demonising chronically ill and disabled people has influenced > recent commentary is unknown, but I would hazard a guess that it has > clearly influenced some commenting in this exchange. > > > > Adopting the DWP’s method of persuasion by publicly humiliating others is > sad to see on this space, to the point where some members have asked to be > removed from the group. > > > > Laura’s comments below are especially helpful, and it is hoped that others > take serious note of her contribution. > > > > Mo > > > > “Our lives begin to end the day we become silent about the things that > matter.” > > Martin Luther-King Jr > > > > Mo Stewart > > Disability studies researcher > > Author of *‘Cash Not Care: the planned demolition of the UK welfare > state’*. New Generation Publishing 2016 > > https://www.researchgate.net/profile/Mo_Stewart/publications > > > > *** The contents of this email are intended for the recipient only and may > be confidential. Permission is not given for this information to be > published, forwarded or distributed further. *** > > > > *From:* The Disability-Research Discussion List [mailto: > [log in to unmask]] *On Behalf Of *m.hersh > *Sent:* 10 May 2018 00:57 > *To:* [log in to unmask] > *Subject:* Re: "Burden" > > > > I agree that we should take care of each other and be polite and > respectful when we disagree. > > However, there are increasing moves to recognise the important work done > by reviewers. Many journals are now listing their reviewers and something > called Publons is working for more recognition for the work involved in > reviewing, giving awards etc. Therefore, I do not consider stating that > you are involved in reviewing as problematical. What would be unethical > would include publicly commenting on unpublished papers, stating which > papers you are reviewing (unless the reviews are being conducted openly) or > plagiarising material from them. > > I think there is a particular issue about language in disability research, > as in research about other minority and/or marginalised groups. Much of > the language used is very negative, about deficits and disorders. Probably > totally unintentionally and without often being aware of it, authors and > researchers are putting down disabled people, being derogatory about them > and writing in a one that can make any disabled readers feel depressed and > reduce their self esteem. I would consider any language model which > implied disabled people (or women, or Black people or LGBT+ people etc) > were inferior to non-disabled people or was disparaging problematical. > However, I would consider this different from imposing a particular model > or understanding of disability or language use about it. I would also > state that respecting different cultures does not require accepting the > marginalisation or belittling of disabled people, any more than it requires > accepting practices or language which is belittling of or dangerous to > women. > > A further issue relates to the responsibility of reviewers when a paper is > technically sound, but uses negative, belittling or offensive language > about disabled people. Clearly the best option is for reviewers and > editors to work with the authors to change the language. This then raises > the issues of what is appropriate conduct when authors continue to use > offensive etc language. > > I think it is important we continue to be able to seek advice from each > other, but in ways that are careful about respecting confidentiality, if > appropriate. Debate, including respectful disagreement, is helpful, in > moving ideas forward. > Marion > > > > On 09/05/2018 23:51, Ruchi Palan wrote: > > Much has already been said about the ethics of the review process so I > > won't dwell further on it. > > > > However, I would reiterate the point made by Kirstein about not assuming > > and asserting a particular model or language as the only one. As a PhD > > student, I researched disabled students' experiences in both the global > > Southern and Northern context. And indeed, to impose the northern > > understanding and definition of disability to the south would in many ways > > mean disregarding the social, cultural, economic and, political contexts > > which shape the experiences of disabled persons and their families in those > > geographies. > > > > I am sure we have all benefited from someone's expertise or suggestion here > > on this forum. So, seconding Daniel, just like to say, let's continue > > taking care of one other. > > > > Kind regards, > > Ruchi > > > > > > On Wed, May 9, 2018 at 11:25 PM, Daisy Hill <[log in to unmask]> <[log in to unmask]> wrote: > > > > It saddens me to see this kind of intellectual bullying playing out in a > > space I have tried to see as a place of dialogue and thoughtful discussion. > > When a person asks for help this is what we indigenous ppl call an > > expression of humility and return we teach we respond with the gift of > > kindness and generosity as we have been offered an opportunity to help > > another. > > > > This list serve is too often a place of rebuke and can be bereft of the > > wisdom that should come from The elders/ scholars who share wisdom and > > insight not the unkindness and unprofessionalsm I am seeing of late. > > Deborah sorry this has been our xommunity’s Response to your question. > > > > Laura Arndt > > Canada > > ------------------------------ > > *From:* The Disability-Research Discussion List < > > [log in to unmask]> on behalf of Deborah Chinn < > > [log in to unmask]> > > *Sent:* May 10, 2018 6:49:20 AM > > *To:* [log in to unmask] > > *Subject:* Re: "Burden" > > > > I did think carefully before posting and did my best refrain from > > including any information that would identify the authors of the article. > > On reflection I should have taken more care so I accept Mark’s criticism, > > though the tone I don’t think is warranted. I do understand that reviewers > > have to maintain their anonymity and that of the authors of the papers they > > review and would feel very upset if the authors felt that I was not taking > > these responsibilities seriously. > > > > I was hoping to elicit some advice from the community of disability > > scholars so that I could contribute a more reflective response to the > > authors. I don’t think I disrespected their work, though did acknowledge > > that they came from a different theoretical perspective than me. i was > > hoping for some guidance on this, but I acknowledge my mistake that I could > > have been a lot less specific about the circumstances of my query which > > would then perhaps have received some helpful comments from the community. > > > > I will let the editors know that I am withdrawing my offer s to do the > > review. We all do this work for free and I was hoping to give more > > thoughtful feedback to the authors, and certainly not to name and shame > > anyone. > > > > It is of course of paramount importance that we maintain standards of > > academic integrity and confidentiality. On the other hand I hope Mark can > > acknowledge that we can make errors of judgement and help each other out > > with doing better in future > > > > Deborah > > > > > > > > On 9 May 2018, at 21:52, Yaw Adjei-Amoako <[log in to unmask]> <[log in to unmask]> wrote: > > > > Hi Mark, > > I am sure you would agree two wrongs never make a right. I believed your > > approach is equally disgraceful, disrespectful and unacceptable. We all > > need to be measured in how we treat others on this platform. > > Thanks > > > > Yaw > > > > > > > > On Wed, May 9, 2018 at 8:37 PM Mark & Molly Sherry < > > [log in to unmask]> wrote: > > > > This is a disgraceful, unethical post. > > The process of peer-review MUST be anonymous, and MUST be professional - > > not a poll among hundreds of scholars. > > For all you know, the person who submitted the paper is on this list. > > You have violated basic principles of academic integrity, confidentiality, > > and peer review. > > Shame on you. > > > > > > Mark Sherry > > > > > > On Wednesday, May 9, 2018, 2:43:15 PM EDT, Deborah Chinn < > > [log in to unmask]> wrote: > > > > > > Dear all > > > > A plea to the community for advice... > > > > From time to time I review papers submitted to the Journal of Applied > > Research in Intellectual Disabilities (JARID). It is one of the few > > journals that focuses on intellectual disability research and has a wide > > range of papers from the very medical model to more critical, qualitative > > and discourse analytic. The Editor in Chief is Chris Hatton who is a great > > - his blog on institutional disablism in health services is terrific. I’ve > > had my own work published in this journal and have received very helpful > > feedback from reviewers. > > > > The paper I’ve been asked to review is about the experiences of parents of > > children with intellectual disabilities. The authors are not from the UK, > > so perhaps some leeway regarding their use of terminology is allowed. > > However, they make free use of the term ‘burden’ in describing the impact > > of having a child with intellectual disabilities - social burden, economic > > burden, emotional burden etc. > > > > My initial response was to equate use of the term ‘burden’ with a > > ‘personal tragedy’ disability discourse and recommend that the authors take > > this term out. What do others feel? I could point the authors towards > > literature that looks more critically at the very pervasive understanding > > of disability as misfortune, though the authors are currently a million > > miles away from a more social model understanding. I could ask them to > > reflect on the negative implications of using the term and to include some > > discussion on how the experience of ‘burden’ is because of social barriers > > to inclusion for disabled children and their parents, rather than the > > children’s own profiles of capabilities and difficulties. > > > > Are there any published reflections on the term that people know of? Have > > any organisations for disabled people disseminated advice on avoiding this > > term? > > > > The paper itself is thorough and on its own terms is methodologically > > sound. Any ideas about how I might initiate a helpful dialogue with the > > authors coming from a very different ontological and epistemological > > starting point to my own? > > > > I’d be really interested to hear your ideas on this. > > > > Many thanks > > > > Deborah Chinn > > KCL, London > > ________________End of message________________ > > > > This Disability-Research Discussion list is managed by the Centre for > > Disability Studies at the University of Leeds (www.leeds.ac.uk/disability- > > studies). > > > > Enquiries about list administration should be sent to > > [log in to unmask] > > > > Archives and tools are located at: www.jiscmail.ac.uk/lists/ > > disability-research.html > > > > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > ________________End of message________________ > > > > This Disability-Research Discussion list is managed by the Centre for > > Disability Studies at the University of Leeds (www.leeds.ac.uk/disability- > > studies). > > > > Enquiries about list administration should be sent to > > [log in to unmask] > > > > Archives and tools are located at: www.jiscmail.ac.uk/lists/ > > disability-research.html > > > > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > > > ________________End of message________________ > > > > This Disability-Research Discussion list is managed by the Centre for > > Disability Studies at the University of Leeds (www.leeds.ac.uk/disability- > > studies). > > > > Enquiries about list administration should be sent to > > [log in to unmask] > > > > Archives and tools are located at: www.jiscmail.ac.uk/lists/ > > disability-research.html > > > > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web > > page. > > > > > > ________________End of message________________ > > > > This Disability-Research Discussion list is managed by the Centre for > > Disability Studies at the University of Leeds (www.leeds.ac.uk/disability- > > studies). > > > > Enquiries about list administration should be sent to > > [log in to unmask] > > > > Archives and tools are located at: www.jiscmail.ac.uk/lists/ > > disability-research.html > > > > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web > > page. > > ________________End of message________________ > > > > This Disability-Research Discussion list is managed by the Centre for > > Disability Studies at the University of Leeds (www.leeds.ac.uk/disability- > > studies). > > > > Enquiries about list administration should be sent to > > [log in to unmask] > > > > Archives and tools are located at: www.jiscmail.ac.uk/lists/ > > disability-research.html > > > > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web > > page. > > > > > > ________________End of message________________ > > > > This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies). > > > > Enquiries about list administration should be sent to [log in to unmask] > > > > Archives and tools are located at: www.jiscmail.ac.uk/lists/disability-research.html > > > > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > > > > > > ________________End of message________________ > > This Disability-Research Discussion list is managed by the Centre for > Disability Studies at the University of Leeds ( > www.leeds.ac.uk/disability-studies). > > Enquiries about list administration should be sent to > [log in to unmask] > > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web > page. > ________________End of message________________ > > This Disability-Research Discussion list is managed by the Centre for > Disability Studies at the University of Leeds ( > www.leeds.ac.uk/disability-studies). > > Enquiries about list administration should be sent to > [log in to unmask] > > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page. > ________________End of message________________ This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies). 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