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Please,
Do remove me from this list.
With many thanks.

> On May 9, 2018, at 6:51 PM, Ruchi Palan <[log in to unmask]> wrote:
> 
> Much has already been said about the ethics of the review process so I won't dwell further on it. 
> 
> However, I would reiterate the point made by Kirstein about not assuming and asserting a particular model or language as the only one. As a PhD student, I researched disabled students' experiences in both the global Southern and Northern context. And indeed, to impose the northern understanding and definition of disability to the south would in many ways mean disregarding the social, cultural, economic and, political contexts which shape the experiences of disabled persons and their families in those geographies. 
> 
> I am sure we have all benefited from someone's expertise or suggestion here on this forum. So, seconding Daniel, just like to say, let's continue taking care of one other.
> 
> Kind regards,
> Ruchi
> 
> 
> On Wed, May 9, 2018 at 11:25 PM, Daisy Hill <[log in to unmask] <mailto:[log in to unmask]>> wrote:
> It saddens me to see this kind of intellectual bullying playing out in a space I have tried to see as a place of dialogue and thoughtful discussion. When a person asks for help this is what we indigenous ppl call an expression of humility and return we teach we respond with the gift of kindness and generosity as we have been offered an opportunity to help another.  
> 
> This list serve is too often a place of rebuke and can be bereft of the wisdom that should come from The elders/ scholars who share wisdom and insight not the unkindness and unprofessionalsm I am seeing of late.
> Deborah sorry this has been our xommunity’s Response to your question.
> 
> Laura Arndt 
> Canada
> From: The Disability-Research Discussion List <[log in to unmask] <mailto:[log in to unmask]>> on behalf of Deborah Chinn <[log in to unmask] <mailto:[log in to unmask]>>
> Sent: May 10, 2018 6:49:20 AM
> To: [log in to unmask] <mailto:[log in to unmask]>
> Subject: Re: "Burden"
>  
> I did think carefully before posting and did my best refrain from including any information that would identify the authors of the article.  On reflection I should have taken more care so I accept Mark’s criticism, though the tone I don’t think is warranted.  I do understand that reviewers have to maintain their anonymity and that of the authors of the papers they review and would feel very upset if the authors felt that I was not taking these responsibilities seriously.
> 
> I was hoping to elicit some advice from the community of disability scholars so that I could contribute a more reflective response to the authors.  I don’t think I disrespected their work, though did acknowledge that they came from a different theoretical perspective than me. i was hoping for some guidance on this, but I acknowledge my mistake that I could have been a lot less specific about the circumstances of my query which would then perhaps have received some helpful comments from the community.
> 
> I will let the editors know that I am withdrawing my offer s to do the review.  We all do this work for free and I was hoping to give more thoughtful feedback to the authors, and certainly not to name and shame anyone.  
> 
> It is of course of paramount importance that we maintain standards of academic integrity and confidentiality.  On the other hand I hope Mark can acknowledge that we can make errors of judgement and help each other out with doing better in future
> 
> Deborah
> 
> 
> 
>> On 9 May 2018, at 21:52, Yaw Adjei-Amoako <[log in to unmask] <mailto:[log in to unmask]>> wrote:
>> 
>> Hi Mark,
>> I am sure you would agree two wrongs never make a right. I believed your approach is equally disgraceful, disrespectful and unacceptable. We all need to be measured in how we treat others on this platform. 
>> Thanks
>> 
>> Yaw 
>> 
>> 
>> 
>> On Wed, May 9, 2018 at 8:37 PM Mark & Molly Sherry <[log in to unmask] <mailto:[log in to unmask]>> wrote:
>> This is a disgraceful, unethical post.
>> The process of peer-review MUST be anonymous, and MUST be professional - not a poll among hundreds of scholars.
>> For all you know, the person who submitted the paper is on this list.
>> You have violated basic principles of academic integrity, confidentiality, and peer review.
>> Shame on you.
>> 
>> 
>> Mark Sherry
>>  
>> 
>> On Wednesday, May 9, 2018, 2:43:15 PM EDT, Deborah Chinn <[log in to unmask] <mailto:[log in to unmask]>> wrote:
>> 
>> 
>> Dear all
>> 
>> A plea to the community for advice...
>> 
>> From time to time I review papers submitted to the Journal of Applied Research in Intellectual Disabilities (JARID).  It is one of the few journals that focuses on intellectual disability research and has a wide range of papers from the very medical model to more critical, qualitative and discourse analytic.  The Editor in Chief is Chris Hatton who is a great - his blog on institutional disablism in health services is terrific.  I’ve had my own work published in this journal and have received very helpful feedback from reviewers.
>> 
>> The paper I’ve been asked to review is about the experiences of parents of children with intellectual disabilities.  The authors are not from the UK, so perhaps some leeway regarding their use of terminology is allowed.  However, they make free use of the term ‘burden’ in describing the impact of having a child with intellectual disabilities - social burden, economic burden, emotional burden etc.
>> 
>> My initial response was to equate use of the term ‘burden’ with a ‘personal tragedy’ disability discourse and recommend that the authors take this term out.  What do others feel?  I could point the authors towards literature that looks more critically at the very pervasive understanding of disability as misfortune, though the authors are currently a million miles away from a more social model understanding.  I could ask them to reflect on the negative implications of using the term and to include some discussion on how the experience of ‘burden’ is because of social barriers to inclusion for disabled children and their parents, rather than the children’s own profiles of capabilities and difficulties.
>> 
>> Are there any published reflections on the term that people know of?  Have any organisations for disabled people disseminated advice on avoiding this term?
>> 
>> The paper itself is thorough and on its own terms is methodologically sound.  Any ideas about how I might initiate a helpful dialogue with the authors coming from a very different ontological and epistemological starting point to my own?
>> 
>> I’d be really interested to hear your ideas on this.
>> 
>> Many thanks
>> 
>> Deborah Chinn
>> KCL, London
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