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Hi all, We deal with medical data a fait bit at the Archive. Our advice on anonymisation covers quant and qual data in general that contain disclosive identifiers, whether direct or indirect. http://www.data-archive.ac.uk/create-manage/consent-ethics/anonymisation?index=0 Our resources link to some useful guidance and pointers on this, including the medical sphere: http://www.data-archive.ac.uk/create-manage/consent-ethics/resources Best, Louise From: Research Data Management discussion list [mailto:[log in to unmask]] On Behalf Of Stephanie Suhr Sent: 11 February 2013 14:54 To: [log in to unmask] Subject: Re: Risks of de-anonymizing data Importance: High Hi James, Although this is definitely on our radar, in www.biomedbridges.eu<http://www.biomedbridges.eu> we're not advanced enough to advise on this - but maybe the social sciences colleagues at www.dasish.eu<http://www.dasish.eu> could be of help, or www.p-medicine.eu<http://www.p-medicine.eu> concerning medical data? Best, Steffi ___________________________________________________ Dr Stephanie Suhr BioMedBridges Project Manager www.biomedbridges.eu European Bioinformatics Institute Wellcome Trust Genome Campus Hinxton Cambridge CB10 1SD Tel: +44 (0)1223 492567 Fax: +44 (0)1223 494470 ___________________________________________________ From: Research Data Management discussion list [mailto:[log in to unmask]] On Behalf Of James Wilson Sent: 11 February 2013 14:38 To: [log in to unmask]<mailto:[log in to unmask]> Subject: Risks of de-anonymizing data Dear Colleagues, Here at the Damaro Project we've started fretting about the increased risk of anonymized medical (& social sciences) data being de-anonymized as more and more datasets become available and the opportunities for cross-searching increase. We'll be preparing some RDM training for medical researchers shortly, and it would be good if we knew a bit more about the issues involved. Is this even something worth worrying about (I'm not very familiar with medical data)? Could any of you point us in the direction of any advice? Yours All, James --- Dr. James A. J. Wilson, Project Manager, DaMaRO Project University of Oxford IT Services, 13 Banbury Road, Oxford. OX2 6NN Tel. (01865) 613489 email: [log in to unmask]<mailto:[log in to unmask]>