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dear Jenny
just to reiterate what a previous post-er said: there are a number, in fact quite a large number of journal and articles which deal directly with this issue, firstly identifying examples of such 'lay publics' , publics (such as patients) with 'embodied expertise' and so on, and secondly a large body of empirical and theoretical work associated with this.
for some broad searches i'd stick your keywords into google scholar and/ or the search engines of these journals
science, technology and human values
bioethics
science,technology and society
theory, culture and society
public understanding of science

below is a quick bib of some key articles. i might make a quick plug for my book which focuses directly on lay publics' engagement with human genetics and associated areas of biomedical science and health policy. i'd reccomend ann kerr and sarah cunningham- burley's work. also check out work by Michel Nahman (i dont have her refs to hand sorry)

•	Plows A (2010) Debating Human Genetics: Contemporary Issues in Public Policy and Ethics, Routledge (paperback)

i also have a working paper which is currently at peer review which you might find useful, if so email me and i'll send you a copy.
a quick bib of some good refs follows below, hope useful all best alex
A. Irwin & M. Michael. 2003. Science, Theory and Public Knowledge Maidenhead: Open University Press 
  A. Kerr, S. Cunningham-Burley & A. Amos 'The New Genetics and Health: Mobilizing Lay Expertise' Public Understanding of Science 1998; 7: 41-60. 
  B. Wynne 1996 May the Sheep Safely Graze? A Reflexive View of the Expert-Lay Knowledge Divide in S. Lash, B. Szerszynski & B. Wynne. eds  Risk, Environment & Modernity: Towards a New Ecology London: Sage; 
Epstein, S. 1996. Impure Science: AIDS, Activism, and the Politics of Knowledge. Berkeley: University of California Press.
A. Irwin. The Politics of Talk: Coming to Terms with the New Scientific Governance Social Studies of Science 2006; 36,2: 299-320
P. Lehoux. Moving Beyond Our Mutual Ignorance. Or, How would Engaging the Public Benefit the Personalized Medicine Community? Current Pharmacogenomics and Personalized Medicine, 2011; 9: 76-79
M. Pickersgill.  Research, Engagement and Public Bioethics: Promoting Socially Robust Science J Med Ethics 2011;37:698-701; 
U. Felt, M. Fochler, A. Müller, and M. Strassnig . Unruly Ethics: On the Difficulties of a Bottom-up Approach to Ethics in the Field of Genomics. Public Understanding of Science  2009; 18, no. 3 354 -371; 
 K. O’Doherty, Einsiedel, Edna, eds. 2012. (forthcoming) Publics + Emerging Technologies: Cultures, Contexts + Challenges. Vancouver & Toronto: UBC 

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