Marian, you wrote:
> I feel I want to ask the obvious - respite from what? From the
> responsibility of 'caring'? From disability? From impairment?
What are you asking??? How about respite from being repeatedly
dive-bombed by an obsessive, peseverative, highly strung, hair-trigger
sensitive, empathy-less when stressed, illogical, mind-numbingly boring
and repetitive, chaos-making, labour intensive, screechy voiced
demanding little person who never sleeps???-
And I hope I can say this without anyone jumping to any conclusions
about my relationship with my child, based on a good century of Freudian
inspired parent-blaming -
If you or Laurence have any concrete ideas on how "society" or "social
services" can improve this situation, I'd love to know.
And can you explain what you mean by respite versus support - what is
this "respite" or "support" supposed to look like?
I fully expect everyone to be up in arms, but I think that's because
when disability theorists talk about the universal category of
disability, what they're really thinking about is perfectly nice,
rational people with physical impairments, and several University
degrees just like themselves - Mairian, when you talk about disability,
you seem to be talking about the deaf, but what is your understanding of
the lived experience of people with intellectual/ communicative/
neurological disorders and their families?
Judy SInger
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