Judy is not ABSOLUTELY right, she's half right. The difference it seems
between you and me, I that I said I acknowledge the limitations to my
'knowledge' and am constantly seeking to change that. I find the latter
exercise extremely hard when faced with the kind of absolutisms that you
uphold. Would you agree with Johnson then John, that as a 'fount of
knowledge' as a parent, that you too are a voyeur who looks through a
different window at disability and at disabled people in a way that
sometimes doesn't allow us to speak for ourselves? This includes those
silent voices writing off list who are not able to take the kind of
battering you are giving me.
Mairian
>Judy is absulutely right.
>
>You may know a lot about being deaf Marian, and about deaf people, you may
>well be the fountainhead of knowledge; but when it comes to other
>disabilities you are just an other voyeur like Laurence (no offence
>Laurence) looking through the window, but not FEELING the rain.
>
>Have a good weekend, what's left of it.
>
>rgds John
>
>-----Original Message-----
>From: Judy Singer <[log in to unmask]>
>To: Disability Research <[log in to unmask]>
>Date: 24 July, 1999 23:47
>Subject: Re: parents of (and)
>
>
>>Marian, you wrote:
>>
>>> I feel I want to ask the obvious - respite from what? From the
>>> responsibility of 'caring'? From disability? From impairment?
>>
>>What are you asking??? How about respite from being repeatedly
>>dive-bombed by an obsessive, peseverative, highly strung, hair-trigger
>>sensitive, empathy-less when stressed, illogical, mind-numbingly boring
>>and repetitive, chaos-making, labour intensive, screechy voiced
>>demanding little person who never sleeps???-
>>
>>And I hope I can say this without anyone jumping to any conclusions
>>about my relationship with my child, based on a good century of Freudian
>>inspired parent-blaming -
>>
>>If you or Laurence have any concrete ideas on how "society" or "social
>>services" can improve this situation, I'd love to know.
>>
>>And can you explain what you mean by respite versus support - what is
>>this "respite" or "support" supposed to look like?
>>
>>I fully expect everyone to be up in arms, but I think that's because
>>when disability theorists talk about the universal category of
>>disability, what they're really thinking about is perfectly nice,
>>rational people with physical impairments, and several University
>>degrees just like themselves - Mairian, when you talk about disability,
>>you seem to be talking about the deaf, but what is your understanding of
>>the lived experience of people with intellectual/ communicative/
>>neurological disorders and their families?
>>
>>Judy SInger
>>
>>
>>
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