My sister, who has Down's Syndrome is an ex-resident of Prudoe & Monkton
Hospital in Northumberland (UK) where she lived for more than 30 years.
Apparently while she was there she was a participant in a study looking at
the link between Downs' Syndome and dementia.
As my sister's nearest relative, I have been contacted by a Dr. Marisa
Lana, Clinical Research Associate, Prudoe Hospital, Northumberland (Tel:
01661-514400) who has requested that I consider giving approval for my
sister's brain to be examined after her death to further scientific study
into the link between DS and Alzheimers Disease.
I work in a policy position in the Disability field here in Victoria,
Australia and am aware of the link between DS and Altzheimer's.
As Jacqueline's husband (who also had DS) died with dementia, I personally
have a positive attitude towards this research but, I wish to know what
other research is going on in this area and what has it found.
I have not been able to find an email address or internet site for the
research team or Prudoe Hospital (or Northgate & Prudoe NHS Trust) and
cannot find a reference to the study which they are conducting. Could
anyone providing me with a source of independent advice about the worth of
this Project; and/or an email address for the researchers as I find doing
serious business by FAX or by phone to be rather ineffective.
John Storey
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Phone: +61 3 9616 7956 FAX: +61 3 9616 8555
Email: BH: [log in to unmask] AH: [log in to unmask]
Statewide IHAS Coordinator, Coordinated Care, Service Devt, Disability
Services Branch, Victorian Department of Human Services 18/555 Collins St
(PO Box 4057), MELBOURNE, Victoria 3162 , AUSTRALIA
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