I am currently working with a young girl (aged 10) who has been
diagnosed with Friedrich's Ataxia. She also has hypertrophic
cardiomyopathy which I understand is fairly common in this
condition. Does anybody have any information on the progression
of this condition and long term prognosis? She presents with
weakness in her neck muscles - in particular neck flexors, also
muscle weakness in upper extremities.
Thanks,
Erica Bowen
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