One of those Fyi things,
Bob Pyke Jr
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> Everyone,
>
> Check out British Medical Journal, January 30, 1999. "Sharing decisions
> with patients: Is the information good enough?"
> Great points: Lots of the stuff in our patient ed materials isn't
> "relevant" to patients (although it may be relevant to health professionals),
> many materials are patronizing, materials must start with needs defined by
> patients, patients must participate in development of materials, the quality
> (i.e., usefulness/practicality) of the information is more important than the
> medium, patients are tired of "didactic" style, patients want more empowerment
> tips and ideas for self-help, patients want more balanced approach, patients
> want quantitative information and "honesty" -- and more!
>
> My belief: We simply must stop guessing what people want to know. We
> need to ask recent patients what they wish they'd known/could have found out,
> listen with full attention, and use THIS information to develop materials for
> future patients.
> Also, patients are not just looking for information; they are looking for
> comfort and support. I think they can only get this from hearing/reading other
> people's stories.
> In our new products, we are including 15 to 50 word "stories" from recent
> patients. Try it!
>
> blessings,
> carol garzona
> [log in to unmask]
>
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