Thanks for the feedback regarding conferences.
As a registered nurse, from a paediatric, acute care background, I am
travelling on an interesting journey in attempting to ground a study of
the health care experiences of disabled children within a social model
perspective. As a novice in the area of disability studies this has
presented me with some issues that I would welcome assistance to clarify.
1. Using a participatory approach requires the researcher to involve the
participants at all stages of the research process. My query relates to
consulting with children during the interpretive phase. I am quite sure
that is the right thing to do, but not sure how to get around what
Mayall (1996) describes as the data being 'set in amber'. Mayall is a
sociologist who has worked extensively in the area of social
constructions of childhood. I'm not being very clear. I intend to use a
series of 'research conversations' with the participants over a period
of time, probably one year. It is inevitable that children will develop
their opinions within that time, possibly exacerbated by being part of
the study. I am concerned that the participants will have difficulty
validating earlier perspectives, because of their own personal growth.
Any suggestions?
2. Having explored disability literature and sociological literature
relating to researching childhood, I am getting a handle on ethical
parameters and the complexities of working with children as research
subjects. However there is very little about data interpretation, when
the participants are children. How can I interpret their experiences
accurately and somehow ignore my middle-aged perspective. I'd be
interested to hear from anyone who has undertaken this type of research,
as to how they approached this part of the process.
3. While I am committed to working from a social model perspective, I am
concerned about the ethical implications when talking with children who
for a range of reasons are grounded in an individual model. Do I as a
researcher have any right to introduce them to different ways of
thinking, or is this unethical and way beyond my remit?
4. I have now located a reasonable amount of UK literature that explores
the inclusion of children and especially disabled children in research.
Recognising the Atlantic puddle - is there similar literature in the US,
or anywhere else, of which I am not aware? I do have 'Disability is not
Measles'.
Really looking forwards to the views of list members Gill Bricher
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<DIV><FONT size=2>I am a doctoral student exploring the health care
experiences
of disabled children in South Australia. As a registered nurse, from a
paediatric, acute care background, I am travelling on an interesting
journey in
attempting to ground this study on a social model perspective. This has
presented some issues that I would welcome some assistance to
clarify.
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