At the age of 14, I was diagnosed with Friedreich’s Ataxia. My parents were
growing increasingly concerned about the curvature of my spine, and the main
reason for their call was to seek a medical answer for it. It was a
frightening picture for my family, because I had in fact, been developing
severe scoliosis. This physical attribute of Friedreich’s Ataxia was the
tipping point which led to my diagnosis.
At 25 I was given more devastating news. At this time, when I sought medical
checkups for Scoliosis, I was told that if my spine continues to bend, it
would also severely damage my heart even more.
Today, I am in a position to understand my disability through a pragmatic
perspective. I am confident in what I know, and how to manage my disability
to achieve the best outcomes for me.
In my recent blog post, I discuss the relationship between Scoliosis,
Cardiomyopathy and my individualistic style of Friedreich’s Ataxia. Read it
Peter Gibilisco, B Bus (Acc) Ph.D. (Melb).
Honorary Fellow University of Melbourne.
New Book: 6 & 1/2 Years on a Dunghill: Life in Specialist Disability
See my web-site http://petergibilisco.com.au/
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