The following is from a study published in The Journal of Stereotactic and
Functional Neurosurgery:
“About 11-15% of patients with Friedreich’s Ataxia experience painful muscle
spasms or muscle contractions, but little is known about the underlying
processes that cause this complication.”
With Friedreich’s Ataxia, the spasms and other irritants, have driven me to
become innovative with the methods employed to alleviate the pain of these
involuntarily movements. This has become the cornerstone of my life.
So here again is a difficult issue that I must face. Do I undergo a
procedure to reduce spasms, which in turn could potentially reduce my
cognitive capacity?
In my recent blog post, I discuss the relationship between deteriorating
muscle spasms and my individualistic style of Friedreich’s Ataxia. Read it
here:
https://petergibilisco.wordpress.com/2019/06/27/the-independence-of-friedrei
chs-ataxia-and-its-relationship-with-deteriorating-muscle-spasms/
Yours Sincerely,
Peter Gibilisco, B Bus (Acc) Ph.D. (Melb).
Honorary Fellow University of Melbourne.
New Book: 6 & 1/2 Years on a Dunghill: Life in Specialist Disability
Accommodation.
See my web-site http://petergibilisco.com.au/
________________End of message________________
This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies).
Enquiries about list administration should be sent to [log in to unmask]
Archives and tools are located at: www.jiscmail.ac.uk/lists/disability-research.html
You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
|