Hi Daniela
Thank you for your efforts. It's a terrific resource.
Here's another that people may find of value: http://www.carltonconnect.com.au/read-ethical-use-of-digital-data-in-human-research/
Many thank
Greg D’Arcy | Socio-informatician
Social and Cultural Informatics Platform | The University of Melbourne
P: +61 3 8344 0475| W: scip.unimelb.edu.au
-----Original Message-----
From: Research Data Management discussion list [mailto:[log in to unmask]] On Behalf Of Daniela Duca
Sent: Wednesday, 27 July 2016 1:51 AM
To: [log in to unmask]
Subject: Re: Anonymisation advice/training offerings
Hi all,
I have put together the list of resources that has been shared on the anonymization/sensitive data management thread - on to the research data network site: https://research-data-network.readme.io/v1.03/docs/personal-data-resources
I realise there may be many more that I might have missed, so please feel free to suggest edits.
Kind regards,
Daniela
-----Original Message-----
From: Research Data Management discussion list [mailto:[log in to unmask]] On Behalf Of RESEARCH-DATAMAN automatic digest system
Sent: 21 July 2016 00:01
To: [log in to unmask]
Subject: RESEARCH-DATAMAN Digest - 19 Jul 2016 to 20 Jul 2016 (#2016-150)
There are 5 messages totaling 1898 lines in this issue.
Topics of the day:
1. Anonymisation advice/training offerings (2)
2. Fwd: ESA's new interface to Astronomy data released
3. Job vacancy Administrative Data Service
4. iPRES 2016 | REMINDER Detailed Programme & Early Bird Registration
----------------------------------------------------------------------
Date: Wed, 20 Jul 2016 10:38:42 +1000
From: Kate Lemay <[log in to unmask]>
Subject: Re: Anonymisation advice/training offerings
Hi
Here's a few more resources that you might find helpful:
The Australian National Data Service has a Guide to publishing and sharing sensitive data <http://www.ands.org.au/__data/assets/pdf_file/0010/489187/Sensitive-Data-Guide-2016.pdf>,
the guidance on confidentialisation is from page 12 and is partially based on a paper by Iain Hrynaszkiewicz <http://www.bmj.com/content/340/bmj.c181>
med.data.edu.au has guidance on anonymisation <http://med.data.edu.au/anonymisation/>, and refers to the Australian Guidelines for the disclosure of secondary use health information for statistical reporting, research and analysis 2015 <http://www.aihw.gov.au/WorkArea/DownloadAsset.aspx?id=60129553404>, and the American Guidance for methods for de-identification of protected health information in Accordance with the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule <http://www.hhs.gov/hipaa/for-professionals/privacy/special-topics/de-identification/index.html>
Best,
Kate
*Kate LeMay, Senior Research Data Specialist* Australian National Data Service
101 Liversidge Street,
Australian National University, Acton, ACT, 2601
T: +61 2 6125 8538
E: [log in to unmask]
Please note I work Monday, Tuesday, Wednesday ORCID ID: orcid.org/0000-0002-2405-7365
On 18 July 2016 at 18:41, Parsons, Georgina <[log in to unmask]>
wrote:
> Hi all,
>
>
>
> Thanks for the responses to date on anonymization; this is really
> useful input to get us planning.
>
>
>
> The ‘bathwater’ thread is an important angle and we hope to advise on
> when to anonymise as well as how (and then managing access to any data
> that couldn’t be anonymised due to reducing/removing its value…the
> UKDA will be a good reference here).
>
>
>
> All the best,
>
> Georgina
>
>
>
> *From:* Research Data Management discussion list [mailto:
> [log in to unmask]] *On Behalf Of *RICE Robin
> *Sent:* 15 July 2016 14:45
> *To:* [log in to unmask]
> *Subject:* Re: Anonymisation advice/training offerings
>
>
>
> Hi Georgina,
>
>
>
> Due to high interest in the topic, we offer a regularly scheduled two
> hour ‘awareness raising’ session (we call it this to differentiate
> from some of the certified training that is offered elsewhere) on the
> topic of Working with Personal and Sensitive Data. We cover the whole
> data lifecycle, as well as touching on the Data Protection Act and
> anonymisation techniques for different sorts of data, and with an
> underlying message to plan early to be able to share the data in some
> form or some way, as well as to keep it secure during the active research phase.
>
>
>
> It has worked well with both novice and expert attendees from social
> sciences, medical and corporate university attendees; we break it up
> with material for discussion to get them interacting. We don’t pretend
> we know everything on the topic, but we keep learning more by teaching
> it and listening to the attendees.
>
>
>
> The UKDA training materials as well as the ICO’s anonymisation
> guidance around its code of practice are very useful as inputs, as was
> our University’s Records Management section, which is the authority on
> data protection locally, and the local information security policy and
> guidance as well.
>
>
>
> Our RDM training leader also offers bespoke sessions to particular
> groups, where the developed training content can be customised towards
> particular groups.
>
>
>
> Cheers,
>
>
>
> --
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Robin Rice
>
> Data Librarian
>
> EDINA and Data Library
>
> University of Edinburgh
>
>
>
> [log in to unmask]
>
> @sparrowbarley (twitter)
>
> Home: www.ed.ac.uk/is/data-library
>
> #RDMSmooc: www.coursera.org/learn/data-management
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>
>
> The University of Edinburgh is a charitable body, registered in
>
> Scotland, with registration number SC005336.
>
>
>
>
>
>
>
> *From:* Research Data Management discussion list [
> mailto:[log in to unmask]
> <[log in to unmask]>] *On Behalf Of *Parsons, Georgina
> *Sent:* 15 July 2016 10:48
> *To:* [log in to unmask]
> *Subject:* Anonymisation advice/training offerings
>
>
>
> Hi all,
>
>
>
> I’m increasingly getting more in-depth questions about how to
> anonymise data in order to share it more publicly on a repository. I
> recommend the UKAN resources but would like to offer more help.
> Anonymisation falls between the cracks here, with it not really being
> in the remit of the library, research office/ethics, IT, etc, though I
> could see value in it being offered in our suite of training for researchers.
>
>
>
> We’d be keen to hear what others do in terms of supporting that side
> of data management – eg do you get involved in helping individuals to
> anonymise, is training offered, which department takes responsibility,
> are there external courses/consultants you’d recommend, …?
>
>
>
> Many thanks in advance!
>
>
>
> All the best,
>
>
>
> Georgina Parsons
>
> Research Data Manager
>
> Information Services
>
> Building 55, Cranfield University, Cranfield, Bedfordshire MK43 0AL
>
> E: [log in to unmask]
>
> T: +44 (0) 1234 75 4548
>
> W: www.cranfield.ac.uk
>
>
>
>
>
> This email and any attachments to it may be confidential and are
> intended only for the named addressee. If you are not the named
> addressee, please accept our apology, notify the sender immediately
> and then delete the email. We request that you do not disclose, use,
> copy or distribute any information within it.
>
>
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> Any opinions expressed are not necessarily the corporate view of
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> Whilst we have taken steps to ensure that this email and all
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> good computing practice, the recipient should ensure they are actually virus free.
>
>
>
>
>
------------------------------
Date: Wed, 20 Jul 2016 09:32:29 +0000
From: "Tedds, Jonathan A. (Dr.)" <[log in to unmask]>
Subject: Fwd: ESA's new interface to Astronomy data released
This is one of the results of many years of efforts in astronomy and virtual observatory data infrastructure development and likely to be of interest both to these lists and wider end users :)
Cheers
Jonathan
Dr Jonathan A. Tedds
Senior Research Fellow<https://www2.le.ac.uk/departments/health-sciences/research/gen-epi/staff-pages/jat26>: Health And Research Data Informatics<http://uk.linkedin.com/pub/jonathan-tedds/16/79b/769>
PI #BRISSKit<http://brisskit.le.ac.uk/> Biomedical Research Software as a Service Editor-in-Chief, Open Health Data<http://openhealthdata.metajnl.com/> Journal Department of Health Sciences<http://www2.le.ac.uk/departments/health-sciences>
University of Leicester, UK
t: +44 (0)116 229 7780<tel:+44%20116%20229%207780> m: +44 (0)779 504 6277<tel:+44%20779%20504%206277> e: [log in to unmask]<mailto:[log in to unmask]> @: jtedds<http://twitter.com/jtedds>
w: https://www2.le.ac.uk/departments/health-sciences/research/gen-epi/staff-pages/jat26
------Forwarded message------
From: ESAC Science Data Center <[log in to unmask]>
Date: Tue, Jul 19, 2016 at 16:48
Subject: ESA's new interface to Astronomy data released
To: [log in to unmask] <[log in to unmask]>
Dear colleague,
The ESAC Science Data Centre (ESDC) is pleased to announce the roll out of the first version of ESASky :
http://sky.esa.int<http://sky.esa.int/>
This new web service provides direct access to public data from ESA Astronomy missions from a simple web interface that requires neither authentication nor prior knowledge of any of the missions. It uses Aladin lite, from the Centre de Données astronomiques de Strasbourg. ESASky allows one to visualise and retrieve public high-level science-ready imaging data products and source catalogs for the following missions: INTEGRAL, XMM-Newton, SUZAKU, HST, Hipparcos, ISO, Herschel and Planck.
It will be kept up to date with the latest data releases from ESA Astronomy missions and will include spectroscopic data and time-domain features in upcoming versions. The ESDC is also working on similar interfaces for Planetary and Heliophysics missions that will be announced at later times.
More detailed information about what can be done with this application can be found at:
http://www.cosmos.esa.int/web/esdc/esasky-help
And in this short (3 min) demonstration video:
https://youtu.be/OfcKznpxUr4
If you would like to receive updates on new datasets or features added to the service in the future, just subscribe to our newsletter:
http://mailman.esac.esa.int/mailman/listinfo/esasky_newsletter
The ESAC Science Data Centre
http://www.cosmos.esa.int/web/esdc
[ESASky]
This message and any attachments are intended for the use of the addressee or addressees only.
The unauthorised disclosure, use, dissemination or copying (either in whole or in part) of its content is not permitted.
If you received this message in error, please notify the sender and delete it from your system.
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Please consider the environment before printing this email.
------------------------------
Date: Wed, 20 Jul 2016 10:48:48 +0100
From: Neil Walker <[log in to unmask]>
Subject: Re: Anonymisation advice/training offerings
In terms of the "bathwater" thread, it is perhaps worth noting the fate of a dataset that attempted to follow the Hrynaskiewicz standards (and which is often cited as an example of successful anonymisation), the dataset behind:
Sandercock, P. A., Niewada, M., & Członkowska, A. (2011).
The International Stroke Trial database. /Trials/, /12/, 101.
http://doi.org/10.1186/1745-6215-12-101
This was deposited at the Edinburgh DSpace instance as an open dataset:
http://datashare.is.ed.ac.uk/handle/10283/128
This is still available, despite doubts about the level of anonymity achieved.
However, the dataset for the subsequent trial (IST-3):
http://datashare.is.ed.ac.uk/handle/10283/1931
states:
> Please note that, for the time being, in order to comply with UK NHS
> Information Governance, we are only permitted to give access to these
> data to on-site visitors; remote access is not currently available.
which perhaps reflects the difficulty in achieving convincing anonymity, as opposed to simply redacting identifiers?
Yours
Neil
On 20/07/16 01:38, Kate Lemay wrote:
> Hi
>
> Here's a few more resources that you might find helpful:
>
> The Australian National Data Service has a Guide to publishing and
> sharing sensitive data
> <http://www.ands.org.au/__data/assets/pdf_file/0010/489187/Sensitive-D
> ata-Guide-2016.pdf>, the guidance on confidentialisation is from page
> 12 and is partially based on apaper by Iain Hrynaszkiewicz
> <http://www.bmj.com/content/340/bmj.c181>
>
> med.data.edu.au <http://med.data.edu.au> hasguidance on anonymisation
> <http://med.data.edu.au/anonymisation/>, and refers to the Australian
> Guidelines for the disclosure of secondary use health information for
> statistical reporting, research and analysis 2015
> <http://www.aihw.gov.au/WorkArea/DownloadAsset.aspx?id=60129553404>,
> and the American Guidance for methods for de-identification of
> protected health information in Accordance with the Health Insurance
> Portability and Accountability Act (HIPAA) Privacy Rule
> <http://www.hhs.gov/hipaa/for-professionals/privacy/special-topics/de-
> identification/index.html>
>
> Best,
> Kate
>
> *Kate LeMay, Senior Research Data Specialist* Australian National Data
> Service
> 101 Liversidge Street,
> Australian National University, Acton, ACT, 2601
> T: +61 2 6125 8538
> E: [log in to unmask] <mailto:[log in to unmask]> Please note
> I work Monday, Tuesday, Wednesday ORCID ID:
> orcid.org/0000-0002-2405-7365 <http://orcid.org/0000-0002-2405-7365>
>
>
>
>
> On 18 July 2016 at 18:41, Parsons, Georgina
> <[log in to unmask] <mailto:[log in to unmask]>> wrote:
>
> Hi all,
>
> Thanks for the responses to date on anonymization; this is really
> useful input to get us planning.
>
> The ‘bathwater’ thread is an important angle and we hope to advise
> on when to anonymise as well as how (and then managing access to
> any data that couldn’t be anonymised due to reducing/removing its
> value…the UKDA will be a good reference here).
>
> All the best,
>
> Georgina
>
> *From:*Research Data Management discussion list
> [mailto:[log in to unmask]
> <mailto:[log in to unmask]>] *On Behalf Of *RICE Robin
> *Sent:* 15 July 2016 14:45
> *To:* [log in to unmask]
> <mailto:[log in to unmask]>
> *Subject:* Re: Anonymisation advice/training offerings
>
> Hi Georgina,
>
> Due to high interest in the topic, we offer a regularly scheduled
> two hour ‘awareness raising’ session (we call it this to
> differentiate from some of the certified training that is offered
> elsewhere) on the topic of Working with Personal and Sensitive
> Data. We cover the whole data lifecycle, as well as touching on
> the Data Protection Act and anonymisation techniques for different
> sorts of data, and with an underlying message to plan early to be
> able to share the data in some form or some way, as well as to
> keep it secure during the active research phase.
>
> It has worked well with both novice and expert attendees from
> social sciences, medical and corporate university attendees; we
> break it up with material for discussion to get them interacting.
> We don’t pretend we know everything on the topic, but we keep
> learning more by teaching it and listening to the attendees.
>
> The UKDA training materials as well as the ICO’s anonymisation
> guidance around its code of practice are very useful as inputs, as
> was our University’s Records Management section, which is the
> authority on data protection locally, and the local information
> security policy and guidance as well.
>
> Our RDM training leader also offers bespoke sessions to particular
> groups, where the developed training content can be customised
> towards particular groups.
>
> Cheers,
>
> --
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> Robin Rice
>
> Data Librarian
>
> EDINA and Data Library
>
> University of Edinburgh
>
> [log in to unmask] <mailto:[log in to unmask]>
>
> @sparrowbarley (twitter)
>
> Home: www.ed.ac.uk/is/data-library
> <http://www.ed.ac.uk/is/data-library>
>
> #RDMSmooc: www.coursera.org/learn/data-management
> <http://www.coursera.org/learn/data-management>
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> The University of Edinburgh is a charitable body, registered in
>
> Scotland, with registration number SC005336.
>
> *From:*Research Data Management discussion list
> [mailto:[log in to unmask]] *On Behalf Of *Parsons,
> Georgina
> *Sent:* 15 July 2016 10:48
> *To:* [log in to unmask]
> <mailto:[log in to unmask]>
> *Subject:* Anonymisation advice/training offerings
>
> Hi all,
>
> I’m increasingly getting more in-depth questions about how to
> anonymise data in order to share it more publicly on a repository.
> I recommend the UKAN resources but would like to offer more help.
> Anonymisation falls between the cracks here, with it not really
> being in the remit of the library, research office/ethics, IT,
> etc, though I could see value in it being offered in our suite of
> training for researchers.
>
> We’d be keen to hear what others do in terms of supporting that
> side of data management – eg do you get involved in helping
> individuals to anonymise, is training offered, which department
> takes responsibility, are there external courses/consultants you’d
> recommend, …?
>
> Many thanks in advance!
>
> All the best,
>
> Georgina Parsons
>
> Research Data Manager
>
> Information Services
>
> Building 55, Cranfield University, Cranfield, Bedfordshire MK43
> 0AL
>
> E: [log in to unmask]
> <mailto:[log in to unmask]>
>
> T: +44 (0) 1234 75 4548
>
> W: www.cranfield.ac.uk <http://www.cranfield.ac.uk>
>
> This email and any attachments to it may be confidential and are
> intended only for the named addressee. If you are not the named
> addressee, please accept our apology, notify the sender
> immediately and then delete the email. We request that you do not
> disclose, use, copy or distribute any information within it.
>
> Any opinions expressed are not necessarily the corporate view of
> Cranfield University. This email is not intended to be
> contractually binding unless specifically stated and the sender is
> an authorised University signatory.
>
> Whilst we have taken steps to ensure that this email and all
> attachments are free from any virus, we advise that, in keeping
> with good computing practice, the recipient should ensure they are
> actually virus free.
>
>
--
-------------------------------------------------------------------------
Neil Walker (Head of Data Services) email: [log in to unmask]
JDRF/Wellcome Trust Diabetes tel: +44 (0)1223 763210
and Inflammation Laboratory fax: +44 (0)1223 762102
Cambridge, CB2 0XY, UK https://www-gene.cimr.cam.ac.uk/
ORCID: http://orcid.org/0000-0001-9796-7688
-------------------------------------------------------------------------
------------------------------
Date: Wed, 20 Jul 2016 11:26:55 +0000
From: "Corti, Louise" <[log in to unmask]>
Subject: Job vacancy Administrative Data Service
User Services Senior Office, UK Data Archive
The Administrative Data Service (ADS) is seeking to appoint a User Services Senior Officer to develop and deliver the Data and User Services function of the ADS and provide support for users of the Administrative Data Research Network.
The successful candidate will provide front line support for users of the Administrative Data Research Network on queries relating to data acquisition, linking, access, processing and reporting. They will also support applicants to the Network and will be responsible for working with data owners to arrange the provision of data for individual research projects. This will involve negotiating to secure data provision and acting as an advocate for researchers whilst navigating government data access processes.
Among other skills and experience the successful candidate will have an undergraduate degree, or equivalent, in a relevant data-using discipline. They will have excellent written and spoken communication, negotiation skills and experience with sensitive data.
An appreciation of researchers' data needs and requirements will be essential; experience of supporting data users is also desirable.
This post involves access to Government systems, information or data and will be subject to the staff vetting process. Further information can found in the Recruitment Pack.
This is a full time, fixed-term position until September 2018. More information on the post can be found here<https://hrorganiser.essex.ac.uk/tlive_webrecruitment/wrd/run/ETREC107GF.open?VACANCY_ID=098053Ai0s&WVID=9918109NEm&LANG=USA>.
__________________________
Becky Parsons
Senior Communications and Impact Officer Working days: 9.30 - 2.30 Monday, Wednesday, Thursday, Friday __________________________ T +44(0) 1206 872016 E [log in to unmask]<mailto:[log in to unmask]>
W ukdataservice.ac.uk
__________________________
UK Data Service
UK Data Archive
University of Essex
___________________________________
Find out more:
LinkedIn https://www.linkedin.com/company/uk-data-service
Twitter https://twitter.com/UKDataService Data Impact Blog http://blog.ukdataservice.ac.uk/ __________________________ Legal Disclaimer: Any views expressed by the sender of this message are not necessarily those of the UK Data Service or the UK Data Archive.
This email and any files with it are confidential and intended solely for the use of the individual(s) or entity to whom they are addressed.
------------------------------
Date: Wed, 20 Jul 2016 14:53:27 +0000
From: "Strathmann, Stefan" <[log in to unmask]>
Subject: iPRES 2016 | REMINDER Detailed Programme & Early Bird Registration
iPRES 2016, 13th International Conference on Digital Preservation, Bern - Switzerland, October 3-6, 2016
The detailed programme is online at http://www.ipres2016.ch/frontend/index.php?folder_id=353 (click on the red button Online Conference Schedule).
There are still a few days to go until the early bird rate ends on August 1. Please make sure you register in time in order to save money. You have the choice between the Full Conference Package where everything is included or Day Passes.
Rooms in different hotels in Bern have been reserved for iPRES 2016 participants until August 1. You can book them via the iPRES 2016 website. After August 1 these rooms will be released and you will have to book your accomodation either directly with a hotel or via the usual booking services.
We look forward to hosting you in Bern, with a great iPRES 2016 programme, deep intellectual discussions, and the unique charm of the iPRES community!
Sincerely,
Barbara Signori, General Chair of iPRES 2016, and the Programme Committee Chairs:
Natasa Milic-Frayling, Steve Knight, Barbara Sierman, Raivo Ruusalepp, Andrea Goethals and Martin Klein
--
Stefan Strathmann
Georg-August-Universität Göttingen
Göttingen State and University Library
D-37070 Göttingen
Platz der Göttinger Sieben 1 (Central Library, Room 2.23)
+49 551 39-7806 (Tel.)
Papendiek 14 (Historical Building, Room 2.425)
+49 551 39-13454 (Tel.)
+49 551 39-33856 (Fax)
[log in to unmask]
http://www.sub.uni-goettingen.de/
http://www.rdd.sub.uni-goettingen.de/
------------------------------
End of RESEARCH-DATAMAN Digest - 19 Jul 2016 to 20 Jul 2016 (#2016-150)
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