Well that is a relief!
Please ignore my last email..
Apart from the memoriy of the Iceland genome project in 2004!
The conspiracy theory of the coincidental apparent suspension of the website
goes: what about the real misleading public information put out by DH (data
would be anonymised) - and the statement in the article that clinicians
would be able to access the genomic data of their patients?
Mary Hawking
Save the date
PHCSG AGM & Annual Conference 15th/16th October 2015
-----Original Message-----
From: GP-UK [mailto:[log in to unmask]] On Behalf Of Julia Hippisley-Cox
Sent: 21 May 2015 08:05
To: [log in to unmask]
Subject: Re: Transparency, public information and the 100,000 genome program
its was just a technical fault - the link will be live again later today.
Bang goes the conspiracy theory in which UK plc shut it down
Julia
-----Original Message-----
From: Hippisley-Cox Julia
Sent: 21 May 2015 07:19
To: [log in to unmask]
Subject: RE: Transparency, public information and the 100,000 genome program
it was definitely there last night!
their twitter account is still live @Ethicsand Julia
-----Original Message-----
From: GP-UK [mailto:[log in to unmask]] On Behalf Of Chris Salter
Sent: 21 May 2015 00:13
To: [log in to unmask]
Subject: Re: Transparency, public information and the 100,000 genome program
On 20/05/2015 16:35, Mary Hawking maryhawking-at-TIGERS.DEMON.CO.UK
|GP-UK/Gollum| wrote:
> It looks as though the general lack of Transparency in NHS England
> (and
> HSCIC) programs extends far beyond the Care Data Program Board!
>
> Have a look at this article on the 100,000 Genomics Program
>
> http://www.ethicsandgenetics.org/blog/privacy-and-the-100-000-genome-p
> roject/
[snip]
Curiously, on attempting to access the above just before midnight the
following is returned: "This Account Has Been Suspended". This would appear
to be the case for the whole site.
Anyway, further checks identified the article having also been published in
the Guardian on the 10th March 2015.
http://www.theguardian.com/science/political-science/2015/mar/10/privacy-and
-the-100000-genome-project
or
http://preview.tinyurl.com/o2azsza
Chris S
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