Thanks Sarah,

Indeed yes. Leeds is establishing LIDA (http://www.lida.leeds.ac.uk/), an institute for data analytics that gets those working on CDRC and those working on the MRC Centre for Medical Bioinformatics projects (and others working on other things) in the same physical space. It should be a good place to have meetings and bring people and ideas together.

I should catch up with a few people locally as I don't know much about the links are between LIDA and the ADRN, but it is something I will ask about when I get an opportunity.

Thanks for the link. I will read up and get back to you about the BDN. It is extremely relevant.
 
There is a lot of potential good that can be done by linking data from industry (telecoms, financial transactions, purchases), government (DWP etc), medical (NHS and private) and from other sectors (including education). AND there are concerns about linking data and making it easy to link data and it is important to think about and mitigate the risks proactively. This is something that I personally have been thinking about for a long time.

So thanks again. LIDA was on our radar, but so too now is BDN and I am going to try to bend that tangent so we can have a look and maybe bring it into a form of complex orbit!

BTW. Thanks to everyone that has replied on this thread. I am compiling the information into the work plan document, and I hope to get back to you all soon.

I read the ESRC Framework for research ethics Updated January 2015 this week. This has put a greater emphasis on audit, long terms impacts of research, clarified personal data with respect to data already in the public domain and perhaps most importantly focuses on data reuse and our ethical obligations to it with respect to publicly funded research. ESRC have of course a great deal of expertise with regard sensitive data (as do other research councils), but the need to hand sensitive research data is now common to perhaps all research councils.

Best wishes,

Andy
http://www.geog.leeds.ac.uk/people/a.turner/index.html
 

-----Original Message-----
From: Research Data Management discussion list [mailto:[log in to unmask]] On Behalf Of Sarah Currier
Sent: 05 March 2015 10:49
To: [log in to unmask]
Subject: Re: Managing Sensitive Data

Hi Andy et al,

Andy is no doubt aware of this given his connections at Leeds (see CDRC, part-located at Leeds Uni http://cdrc.ac.uk/) - but for everyone else's info, the ESRC's Big Data Network programme may be of interest, as the Phase 1 projects are looking specifically at sensitive and confidential data (ADRN http://adrn.ac.uk/) and the Phase 2 projects are working closely with them (we are one) where researchers using our services wish to use (and possibly create) confidential data (BDN2 http://www.esrc.ac.uk/research/major-investments/Big-Data/BDN-Phase2.aspx).

Although these big data centres are a little tangential to what you are discussing, methods for curating, storing and making available sensitive data are very much in the programme's remit.

Best wishes,

Sarah


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Sarah Currier
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-----Original Message-----
From: Research Data Management discussion list [mailto:[log in to unmask]] On Behalf Of Andy Turner
Sent: 03 March 2015 23:56
To: [log in to unmask]
Subject: Managing Sensitive Data

Hi,

(Apologies for cross posting and if the RDA posting is barking up the wrong tree (and if so please direct me).)

As part of the UK Jisc Research Data Spring (http://www.jisc.ac.uk/rd/projects/research-data-spring) I have got involved in planning a project that if funded will look at classifying sensitive research data and mapping this onto storage options for these data at different parts of the research data life-cycle. The main output from this work would be some guidance documentation aimed at UK institutions and researchers that are to be disseminated by the UK Digital Curation Centre. The early phases of the work involve surveying the landscape and coming up with some clear and usable definitions. Community engagement will be key to the success of this project if it gets the go ahead. We are compiling a list of individuals and organisations to liaise with and hope that this sparks some interesting from here.

I should hear back in about a weeks time if the initial phase of this work is selected to be funded. I hope you are interested enough to have a look and feedback as appropriate on the draft project plan that is available for comment on Google Docs:

https://docs.google.com/document/d/1juRGZwksZXFuhOS6ge72YMcqNGxW1dF8uBaKNv0T38s/edit 

Best wishes,

Andy
http://www.geog.leeds.ac.uk/people/a.turner/index.html