Apologies for cross posting:
Statisticians working in biomedical fields in the UK should be aware that a consultation on changes to the NHS Constitution has recently opened and will run until 28 January 2013. There is a section on data in the document which is being expanded to be more specific about rights (to confidentiality and opting out of sharing data) as well as pledges ("to anonymise the data ... and use it to support research and improve care for others", inter alia). The question the Department of Health asks is "Do the proposed changes to the NHS Constitution make clear how the NHS will safeguard and use patient data?"
This is an opportunity to influence the detail in this document, which will define the most basic aims of managing health service data in years to come, across all provider organisations from public, private and voluntary sectors. Whatever your views are, it is important that the Department of Health hears from people with expertise in managing and using such data. Anyone can respond but it might help if you spell out your experience and affiliations.
All the information is in this single document:
https://www.wp.dh.gov.uk/publications/files/2012/11/Consultation-on-strengthening-the-NHS-Constitution.pdf
Robert Grant
Senior Research Fellow in Quantitative Methods
Faculty of Health and Social Care Sciences
Kingston University and St George’s, University of London
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