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-----Original Message-----
From: The Disability-Research Discussion List [mailto:[log in to unmask]] On Behalf Of DISABILITY-RESEARCH automatic digest system
Sent: 27 June 2012 00:01
To: [log in to unmask]
Subject: DISABILITY-RESEARCH Digest - 25 Jun 2012 to 26 Jun 2012 (#2012-155)
There are 6 messages totaling 1248 lines in this issue.
Topics of the day:
1. Physician Assisted Suicide
2. The National Disability Arts Collection and Archive needs your support.
3. research & social media
4. Win £20- physically disabled participants needed,10 minute online survey
5. Call for Papers
6. Devaluing People with Disabilities, Medical Procedures that Violate Civil
Rights
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Date: Tue, 26 Jun 2012 13:31:24 +1200
From: "Pauline Boyles [CCDHB]" <[log in to unmask]>
Subject: Re: Physician Assisted Suicide
Sent from my HTC Wildfire S on Telecom's XT mobile network.
----- Reply message -----
From: "Rebecca Jay Dutneall" <[log in to unmask]>
To: "[log in to unmask]" <[log in to unmask]>
Subject: Physician Assisted Suicide
Date: Tue, Jun 26, 2012 4:46 am
Dear collogues.
I wanted to write to you the other week, but I wasn't feeling well, however because the debate is still active and is now being discussed in the English High Court because of a case brought by Tony Nickinson I now feel I want to speak my mind.
I don't know the people personally who have alerted us to the polls on the issue of Physician Assisted Suicide but I do have my concerns when the poster appears to influence our thinking and tells us how to vote
- this is not a democracy. Each of us should be proud that with the right to make our own choices in life.
If this singles me out as an outcast, then so be it, but I'd ask you to consider what that makes you.
For the record, I am pro Physician Assisted Suicide and I support the efforts of Tony Nickinson and his legal team.
Thanks.
Becky.
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(1C_S1)
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------------------------------
Date: Tue, 26 Jun 2012 12:31:03 +0100
From: Allan Sutherland <[log in to unmask]>
Subject: The National Disability Arts Collection and Archive needs your support.
The National Disability Arts Collection and Archive (NDACA) is putting together a major bid to the Heritage Lottery Fund.
They need messages of support, and indications of how this resource could be of use to researchers, curators and others.
Further information about this important project, and an opportunity to leave messages are at:
http://www.disabilityartsonline.org.uk/support-NDACA
Or you can contact NDACA directly at:
[log in to unmask]
Please support this application if you possibly can. Some of us in Disability Arts have put a lot of work into developing NDACA and its collection so that the history of our movement, and the work that has come out of it, is not lost. This bid could ensure the development of NDACA as a major resource for the disability world, and anyone who wishes to carry outresearch into Disability Arts in particular.
All the best
Allan Sutherland
Read 'Neglected Voices', four cycles of transcription poems by Allan Sutherland, based on interviews with disabled people.
http://www.disabilityarts.org/Neglected-Voices
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------------------------------
Date: Tue, 26 Jun 2012 16:56:15 +0100
From: Emma Sheppard <[log in to unmask]>
Subject: research & social media
Hi everyone
An earlier message mentioned Tony Nicklinson and reminded me I'd intended to ask your collective opinions on this - what do you think about using social and online media (blogs and twitter and so on) in research, in terms of both disseminating research and making research accessible to non-academic members of the disability communities.
I use twitter a lot, and I find it useful in terms of discussing activism (and finding ways to be involved - I think saying online activism is "slacktivism" ignores that it gives people who find traditional forms of activism difficult/inaccessible a voice) and - more personally - in connecting with other disabled people who share my interests. I recently read a list of academic tweeters (http://blogs.lse.ac.uk/impactofsocialsciences/2011/09/02/academic-tweeters-your-suggestions-in-full/) but noticed that only a couple listed disability among their interests; I wonder if this is a lack of awareness or a lack of people talking about research into disability. Or just me not following the right people!
With blogging, I know there are blogs out there, but again, they seem to be a minority when it comes to research/academia-focused blogs - but again, I wonder if that's me not being able to find them, rather than them not being there. I wonder if this could be considered a possible and useful tool in terms of making research accessible - while I am aware that not everyone has the access to the internet that I do in this country, or worldwide, I think *not* using online and social media - and not doing so thoroughly - is damaging to "the cause" (as it were) - of getting our research out there, and getting disabled people and allies from outside the academic community interested.
Any thoughts? Or people I should be following on twitter?
Emma
(incidentally, I am attempting to put my money where my mouth is in this, and welcome any feedback on my own reseach blog, a tiny wee thing, http://disabilitysexproject.wordpress.com )
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------------------------------
Date: Tue, 26 Jun 2012 19:26:58 +0100
From: Mark Carew <[log in to unmask]>
Subject: Win £20- physically disabled participants needed,10 minute online survey
Dear all,
I am a first year PhD student based in Canterbury and I am interested in investigating attitudes towards physical disability. I am also physically disabled myself (I have cerebral palsy).
I am looking for physically disabled participants to take part in my short, 10 minute online survey in which participants can win £20. You will be asked about your thoughts and experiences of interacting with non-disabled people. You should be 16 or over to take part.
https://survey.canterbury.ac.uk/physicaldisabilityattitudes-pd
I would be grateful if this link could be passed on to any physically disabled people who may be interested in participating. I would also appreciate advice/feedback from more experienced researchers- particulary about where to recruit disabled participants.
In return I am happy to participate in any research I am eligible for.
Thanks for your time.
Mark
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------------------------------
Date: Tue, 26 Jun 2012 16:58:29 -0400
From: Barbara Altman <[log in to unmask]>
Subject: Call for Papers
Dear All,
Just wanted to share this call for papers:
Call for Papers
RESEARCH IN SOCIAL SCIENCE AND DISABILITY
Volume 8
Families and Households: Impact of Members with a Disability
The 2000 Census results indicated that approximately 72.3 million families in the United States (28.9% of all families) had a disabled member (Wang, 2005). Some of these families had an adult member with a disability, others had a child with a disability, and some families had more than one member with a disability. While there is an extensive literature on caregiving for disabled family members (particularly elderly or children), there is less information about the impact of disabled member/s on other aspects of family or household life. For example, what is the impact on children of having a disabled parent? The return of so many wounded soldiers from our continuing military actions in the Mideast is almost certainly influencing family dynamics, income, stability and other factors affecting relatively young children. Furthermore, what is the impact on the family or household of having more than one disabled member? How are family functioning, financial stability, health care access and participation in the community impacted?
And will families or households with more than one disabled member increase
as the large baby boomer population ages?
There are many data sets that allow for the examination of families or households (which may contain multiple families). Additionally, families and households may be distinguished by types based on relationships (e.g., marital status), numbers of generations, size, etc. We solicit papers that quantitatively address issues pertaining to the study of disability at the family or household level. Authors must explain the definition and measurement of disability clearly since measures available across data sets can be quite different. They should also be clear about how they identified
family members, in particular children versus adults.
Some examples of possible topics include:
1. Comparisons of families (or households) with and without disabled
family members on any number of family-level characteristics such as income, poverty status, access to health care, type of education, type of employment, family size, geographic distribution, etc.
2. Comparisons of families with a disabled adult to families with a
disabled child on the same kind of family-level variables as well as family-level indicators of employment status, race/ethnicity, and marital status.
3. Examination of families with multiple members with a disability.
Again, considering family-level variables, how do families with multiple disabled members differ compared to families with one disabled member? Does it matter if the multiple members are children, or adults, or a mixture of both?
4. In two-person opposite sex families, does it matter if the disabled
person is male or female? What are the implications for income, financial stability, employment status, or other couple-level characteristics? Does it matter if they are married or cohabiting?
5. How should households consisting of persons living alone be treated in
family-level analyses of disability? How many persons living alone are disabled, and will these numbers increase as the baby boomers age?
Please note: This volume series has an interdisciplinary focus on social science research. As a result, it is very important that authors avoid the jargon of their discipline and write to an audience that is knowledgeable about disability issues but may not be as familiar with discipline-specific terminology.
Submissions are due no later than December 31, 2012 and should be sent to BOTH Barbara Altman. [log in to unmask] and Sharon Barnartt, [log in to unmask] , co-editors of the series. Please feel free to contact Barbara if you have questions related to this call.
Barbara M. Altman, Ph.D.
Disability Statistics Consultant
14608 Melinda Lane
Rockville, MD 20853
Phone: 301-460-5963
E-mail: [log in to unmask]
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------------------------------
Date: Wed, 27 Jun 2012 08:21:56 +1000
From: Frank Hall-Bentick <[log in to unmask]>
Subject: Devaluing People with Disabilities, Medical Procedures that Violate Civil Rights
Devaluing People with Disabilities
Medical Procedures that Violate Civil Rights
Devaluing People with Disabilities: Medical Procedures that Violate Civil Rights is intended to provide a crucial but missing link in the discussion about how society can and should make medical decisions that uphold the constitutional rights and inherent dignity of people with disabilities.
by David Carlson, Cindy Smith, and Nachama Wilker
_____
Five years ago, news broke worldwide that a six-year-old child with developmental and physical disabilities, Ashley, was given growth attenuation treatment via estrogen and had her uterus and breast buds removed. The intent of the treatment was to keep her permanently small. The child's parents and doctors claimed that this set of procedures was in her best interest for numerous reasons, including that it would make it easier to care for her at home. Supporters of the treatment claim that this is the most personal of family decisions and there is no need for external judicial review of the decisions made by the family.
People with disabilities and advocates in the disability rights movement, however, assert that all individuals, regardless of their disability status, have individual rights that cannot be ignored. Decisions like those made in this case are the most personal of "personal rights," not "family rights."
Every individual person has the right to bodily integrity, clearly recognized in our legal tradition, through the constitutional rights of liberty and privacy and the common law right to be left alone unless the individual chooses to have their body disturbed in some way. Individuals with disabilities, no matter the nature or severity of their disability, are no different. The Constitution and antidiscrimination laws make it clear, all people, including people with disabilities, are entitled to equal treatment under the law.
There is no such thing as being too disabled. The doctors told my parents that I would be a vegetable and would not be able to do anything in life. If they could see me now.
-Ken
Read the full report
<http://www.ndrn.org/images/Documents/Resources/Publications/Reports/Devalui
ng_People_with_Disabilities.pdf>
Download the executive summary, recommendations <http://www.ndrn.org/images/Documents/Resources/Publications/Reports/Executi
ve_Summary_and_Recommendations.pdf>
Endorsements
<http://www.ndrn.org/images/Documents/Resources/Publications/Reports/Endorse
ments.pdf>
Word version at http://db.tt/AjhGKcTd
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End of DISABILITY-RESEARCH Digest - 25 Jun 2012 to 26 Jun 2012 (#2012-155)
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