Me too. We'd really like to read the checklist.
Here at Norah Fry Research Centre we have been very involved in writing
about and developing inclusive research approaches. There is always so much
to learn.
Sue
----------------------
Sue Porter
Research Fellow
Norah Fry Research Centre
University of Bristol
[log in to unmask]
SSCR Research Fellow
The Norah Fry Research Centre offers a Masters Degree in Disability
Studies: Inclusive Theory & Practice:
http://www.bristol.ac.uk/norahfry/teaching-learning/masters/
--On 12 June 2012 12:40 +0000 Sara Ryan <[log in to unmask]> wrote:
>
> I would be very interesting in reading the checklist.
> Thank you,
> Sara
>
>
> __________________________________________________
>
> From: The Disability-Research Discussion List
> [[log in to unmask]] on behalf of DIANE N. BRYEN
> [[log in to unmask]]
> Sent: 12 June 2012 13:38
> To: [log in to unmask]
> Subject: Re: Co-researchers consenting to become researchers?
>
>
>
> Liz,
>
> For several years, I had a co-researcher who has intellectual
> disabilities. She was actually put on payroll at Temple University and
> treated as other staff. Under the ADA, she was entitled to
> accommodations and received them. As a staff member involved in
> research, she did not provide informed consent.
>
> In addition, we have had several individuals with intellectual
> disabilities working with us as paid consultants to ensure that our
> dissemination materials for training and information dissemination were
> accessible and user-friendly.
>
> As a result of these and other experiences while at the Institute on
> Disabilities at Temple University, I have developed a checklist to
> determine how inclusive research activities are. If there is interest, I
> will post it.
>
> Regards,
> Diane
>
>
> On Mon, Jun 11, 2012 at 9:25 AM, Liz Ellis <[log in to unmask]> wrote:
>
> Hello all,
>
> I was wondering if anyone who has been involved in co-research,
> especially with people labelled as having learning difficulties or other
> 'vulnerable' groups, have experienced the need (from funding bodies or
> institutions) to gain informed consent from the potential co-researchers?
>
> People participating in research clearly need to give consent and as
> researchers we are morally obliged to ensure that consent is informed in
> all cases, but does this in anyone else's experience apply to any
> co-researchers working in participatory or inclusive research where the
> co-researchers are not respondents but going to be interviewing disabled
> and non-disabled respondents from whom informed consent would be sought?
>
> I've not come across any discussion of this issue in the literature, but
> obviously I might have missed it.
>
> Kind regards,
>
> Liz Ellis
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre for
> Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
>
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
> www.jiscmail.ac.uk/lists/disability-research.html
>
> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web
> page.
>
>
>
>
> --
>
> Diane Nelson Bryen, PhD
> Professor Emerita
> Temple University
> 215.901.1960 (mobile)
> [log in to unmask]
>
> For news about AAC, please go to http://aac-rerc.com
>
> "Inclusion is much more than a place to go. It is a value to be lived."
> - Jennifer York
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre for
> Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
>
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
> www.jiscmail.ac.uk/lists/disability-research.html
>
> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web
> page. ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre for
> Disability Studies at the University of Leeds
> (www.leeds.ac.uk/disability-studies).
>
> Enquiries about list administration should be sent to
> [log in to unmask]
>
> Archives and tools are located at:
> www.jiscmail.ac.uk/lists/disability-research.html
>
> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web
> page.
----------------------
Sue Porter
Research Fellow
Norah Fry Research Centre
University of Bristol
[log in to unmask]
SSCR Research Fellow
The Norah Fry Research Centre offers a Masters Degree in Disability
Studies: Inclusive Theory & Practice:
http://www.bristol.ac.uk/norahfry/teaching-learning/masters/
________________End of message________________
This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies).
Enquiries about list administration should be sent to [log in to unmask]
Archives and tools are located at: www.jiscmail.ac.uk/lists/disability-research.html
You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
|