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DISABILITY-RESEARCH  March 2012

DISABILITY-RESEARCH March 2012

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Subject:

Re: EPC - March 28, 2012 - Update

From:

jennymorris <[log in to unmask]>

Reply-To:

jennymorris <[log in to unmask]>

Date:

Fri, 30 Mar 2012 10:15:41 +0100

Content-Type:

text/plain

Parts/Attachments:

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text/plain (123 lines)

I'm glad to see that someone is researching (has researched?) disabled
people's perspectives on end of life issues.  My experience of the views of
people close to me who were approaching the end of their lives has meant
that I'm uncomfortable with the way debates on this issue have sometimes
been presented.  But it's such a controversial issue, raising a lot of fears
- for very good reasons - and I've been reluctant to enter into the debate.
So I'm glad you're doing this research Margo and I'd be really interested in
seeing the final results.
Jenny

-----Original Message-----
From: The Disability-Research Discussion List
[mailto:[log in to unmask]] On Behalf Of Margo Milne
Sent: 30 March 2012 07:52
To: [log in to unmask]
Subject: Re: EPC - March 28, 2012 - Update

The area is indeed well rehearsed, particularly from the anti- side of
things, but there is a tendency to make statements on behalf of all disabled
people. "Disabled people think that..." etc. That was one reason I decided
to research disabled people's views of end of life issues at PhD level. I
found in many cases, particularly with progressive illness, that people just
felt their position had or could become insupportable, often because they
were experiencing intractable pain. 

Of course any legalisation of assisted suicide for the terminally ill would
need to have extremely robust safeguards, to make sure that people were
asking for it of their own volition. But the slippery slope is not
inevitable!

Best wishes

Margo Milne

-----Original Message-----
From: Mike Higgins [mailto:[log in to unmask]] 
Sent: 29 March 2012 10:45
To: 'Margo Milne'; [log in to unmask]
Subject: RE: EPC - March 28, 2012 - Update

This is extremely well rehearsed territory but, just for the record, don't
we need to ask why people 'request' such an 'intervention'?  There is a
slippery slope and relatives, some internally oppressed peers, too many
health/care "professionals", lobbyists for the "useless eaters" brigade ,
etc,  are all too keen to push one down it!  See:
Disabled People's International - The Right To Live and Be Different
URL: http://v1.dpi.org/lang-en/resources/details.php?page=895

Crippen's Blog - Crippen looks at history in respect of the Assisted Suicide
debate.
URL:
http://www.disabilityartsonline.org.uk/?location_id=6&offset=0&item=537&item
offset=1

Russ Cooper Dowda in Ragged Edge Magazine - When I Woke Up
http://www.ragged-edge-mag.com/extra/wokeup.html .

Accessibility NZ - Opposing the Legalisation of Physician Assisted Suicide:
URL:
http://accessibility.net.nz/blog/opposing-the-legalisation-of-physician-assi
sted-suicide/ .

The UK Telegraph - 'Kay Gilderdale should have been investigated'
In cases of assisted dying, anyone involved should have to account for their
actions, says Phil Friend
URL:
http://www.guardian.co.uk/society/joepublic/2010/feb/04/assisted-dying-radar
.

Nabil Shaban's many films - try this one "The First To Go", or check out
some of his others:
http://www.youtube.com/profile?gl=GB&user=ScabsNabs#p/u/18/4ezwZmf5I_0

The Independent's Dominic Lawson - "Who are we to decide that a dependant
life is a pointless life?"
http://www.independent.co.uk/opinion/commentators/dominic-lawson/dominic-law
son-who-are-we-to-decide-that-a-dependent-life-is-a-pointless-life-1878817.h
tml

And an excellent piece here by UK DAN and Not Dead Yet activist, Dennis
Queen
http://www.independent.co.uk/opinion/commentators/clair-lewis-disabled-peopl
e-need-assistance-to-live-not-die-1911313.html .

Best wishes,

Mike Higgins,
Email: [log in to unmask]
Address: 1 Portland Court, Sheffield, S6 3EW, UK.
Tel (voice and, by prior arrangement, fax): +44 (0) 114 2258676
Mobile: +44 (0) 7956 856060




-----
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