**with apologies for cross-posting**
FINAL call:
Conference on Exploiting Existing Data for Health Research
9th - 11th September 2011, University of St Andrews, Scotland
The third Wellcome Trust's Scottish Health Informatics Programme (SHIP) 3-day interdisciplinary Conference will gather together an international group of researchers who have expertise in the linkage of administrative or routine data for health research, clinical trials or health care improvement.
The outstanding keynote speakers confirmed include world authorities on clinical trials, genetic epidemiology, legal and ethical aspects of data sharing and public health:
Dr Harry Burns MPH FRCS (Glas) FRCP(Ed) FFPH, Chief Medical Officer for Scotland
Professor Paul Burton MD, C. Stat, FFPH Professor of Genetic Epidemiology, Departments of Health Sciences and Genetics, University of Leicester.
Professor Sir Rory Collins FMed Sci FRCP, Chief Executive and Principal Investigator of the UK Biobank and co-director of the University of Oxford's Clinical Trial Service Unit & Epidemiological Studies Unit
William W. Lowrance PhD, Consultant in Health Research Ethics and Policy, La Grande Motte, France
We invite abstracts on one of four broad themes:
The value of record linkage in health research
This theme will include papers based on one-off, general-purpose or longitudinal studies which demonstrate the range of research benefits that result from record linkage. We would be particularly interested in studies that have linked health data to other routine/ survey data (eg housing, education, welfare, census datasets) to data in order to answer health questions.
The use of routinely collected data in clinical trials
The use of administrative data, registry data and/ or electronic patient records in support of clinical trials. We are interested in the use of such data to support any aspect of trial conduct, including trial design, trial feasibility, recruitment, within- and post-trial follow-up, pharmacovigilance and study monitoring.
Patients' Rights and the Public Interest: What does good governance look like?
The organisers welcome papers on questions relating to principles and best practices in good governance of research involving health-related records. Topics might include the role of consent and opt-in/opt-out mechanisms, the importance and limits of anonymisation in protection patients' interests, and/or the role and legitimacy of advisory bodies in approving research when consent is not sought.
The methodological challenges of record linkage
This theme will include papers on state-of-the-art techniques for record linkage. Techniques might include methods for record linkage, disclosure control, data management and analysis of linked data.
** Abstracts DEADLINE: Friday 27 May 2011 **
Please email abstracts to: [log in to unmask]<mailto:[log in to unmask]>
We have already received abstracts from the UK, Europe, Australia, Canada, Africa, Asia and South America.
For booking details and further info please see: www.scot-ship.ac.uk/conference-2011<http://www.scot-ship.ac.uk/conference-2011>
You may be interested in attending the SHIP training course Statistical analysis with missing data using multiple imputation and inverse probability weighting (20-22nd June) at University of St Andrews. For more info and course content please see: http://www.scot-ship.ac.uk/sites/default/files/Events/June_course_flyer.pdf
After the conference, you may also be interested in attending the 2011 Health Informatics Scotland Conference (12-13th September) in the Royal College of Surgeons of Edinburgh. For more info please see: www.knowledge.scot.nhs.uk/his/events/health-informatics-scotland-conference-2011.aspx<http://www.knowledge.scot.nhs.uk/his/events/health-informatics-scotland-conference-2011.aspx>
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