For subscribers who are interested in data sharing and medical surveillance issues
Information Systems and Innovation Group, LSE, 54 Lincoln's Inn Fields, London WC2A 3LJ
From: Jane Kaye [mailto:[log in to unmask]]
Sent: Thu 10/06/2010 9:26 AM
Subject: International Data Sharing Conference
Dear Friends and Colleagues
Would you mind sending this final call for abstracts through your mail lists?
We are very much looking forward to seeing you at this conference!
Many thanks in advance
FINAL CALL FOR ABSTRACT CLOSES Friday the 11TH June!!!
International Data Sharing Conference 2010
20 - 22 September 2010 St Hugh's College, Oxford
The International Data Sharing Conference 2010, which will bring together key figures from academia, research ethics committees and clinical practice to discuss how the increase in biobanks, data storage and access are changing scientific practice, as well as raising a number of technological, legal, ethical and social challenges for people working in the field of medical research.
The conference will seek to address some of the challenges of data sharing - such as: How should data-generators be rewarded for their efforts to the scientific community? Can we promise anonymity of research participants when medical records, whole sequences and phenotypic data are being used for research purposes? What is the best way to harmonise different datasets collected for different purposes? Should participants be fed back individual findings? Are our national research governance systems adequate to cope with global data sharing? What new IT mechanisms exist to share data and samples that address some of these issues? What projects provide examples of good practice?
The conference will use a conversation format, using panels focussed on specific questions to generate insights into these issues. Our plenary sessions will focus on feedback, new technologies for data sharing, governance structures for research and safeguarding identifiability. Speakers and facilitators confirmed so far are: Anthony Brookes, Tim Caulfield, Ellen Wright Clayton, David Cox, Donna Dickenson, Kelly Fryer-Edwards, Jane Gitschier, Jennifer Harris, Nils Hoppe, Tim Hubbard, Barbara Koenig, Bartha Maria Knoppers, Amy McGuire, Moshe Pritsker, Brad Malin, Raj Ramesar, Paul Burton, Eric M. Meslin, Christine Wasunna and Jerome Singh. In addition to the plenary panel sessions, there will be break out sessions. Applications for abstracts for talks and posters are currently open and will close on the 11th of June 2010 (or 9am BST Monday the 14th of June)!!! http://helex.medsci.ox.ac.uk/events/data-sharing-international-conference-1/call-for-applications
We have a number of bursaries for people from developing countries and students that are funded by the Wellcome Trust. These can be applied for through our Conference Website: http://helex.medsci.ox.ac.uk/events/data-sharing-international-conference-1
Conference Website: http://helex.medsci.ox.ac.uk/events/data-sharing-international-conference-1
For further details please do not hesitate to contact [log in to unmask]<mailto:[log in to unmask]>.
Dr. Jane Kaye
Wellcome Trust Research Fellow
Director of HeLEX - Centre for Health, Law and Emerging Technologies at Oxford
Department of Public Health
University of Oxford
Old Road Campus, Headington
Oxford OX3 7LF United Kingdom
Tel: (Direct) +44 (0)1865 287898
Fax: +44 (0)1865 617792
Email: [log in to unmask]
** Data Sharing International Conference, 20-22 September 2010, Oxford, UK**
Please access the attached hyperlink for an important electronic communications disclaimer: http://www.lse.ac.uk/collections/planningAndCorporatePolicy/legalandComplianceTeam/legal/disclaimer.htm
This is a message from the SURVEILLANCE listserv
for research and teaching in surveillance studies.
To unsubscribe, please send the following message to
<[log in to unmask]>:
For further help, please visit: