These may help;
Bower and Hayes (1998) Mothering in families with and without a
child with disabilities, International Journal of Disability,
Development and Education, 45 (3), 313-322
Found overall experiences characterised by similarities rather
Kearney and Griffin, (2001) Between sorrow and joy; being a
parent of a child with developmental disability, Journal of
Advanced Nursing, 34 (5), 582-592
Again found problems (ie sorrow) were external to the family.
Landsman, G (1998) Reconstructing motherhood in the age
of "perfect" babies, Signs, 28 (1)
Discusses how mothers redefine and challenge their values and
priorities and reflects on implications for prenatal testing.
Patching, B and Watson, B (1993) Living with children with an
ID; parents construct their reality, International Journal of
Disability, Development and Education, 40 (2), 115-131
Found notion of 'disabled families' inappropriate as
similarities with mainstream families.
Grant and Ramcharan also do a good literature review
highlighting studies that avoid deficit models but I havent got
the ref to hand. It is 2001 if that's any help. Let me know if
you want me to get the complete reference.
> Hello All,
> I am doing yet more writing on issues of prenatal testing,
> explicitly discussing issues of parenthood, parent-child
> family life. One of the texts on which I rely for discussions
> life, showing that families including children with
disabilities fare about
> as well as families with only nondisabled children, is an
article by Philip
> Ferguson printed in the book _Prenatal Testing and Disability
> there other recent work discussing family life and disability
> other than Phil Ferguson, so that I can broaden and vary
> especially when critics insist that this happy story can't be
> A second, related question concerns specifically the lives of
> children with significant, multiple impairments of both
> cognitive/emotional nature. I would like to read and cite
> qualitative or good quantitative studies of family life for
this portion of
> the disability population, not because I want to support
> classifications, but because I am writing for people who do
not believe the
> social model and who do need "data" they can be forced to
> Please send all suggestions to me and if you would like to
> topic with me on or off list, I would be grateful.
> Adrienne Asch
> Adrienne Asch
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