The Nursing Research Unit has been funded by the Department of Health
to find out what is known about patient and public involvement in
nursing, midwifery and health visiting research. This work is known as
the PIN Project.
We are undertaking a review of the published literature but would also
like to include work that is UNPUBLISHED, ONGOING or RECENTLY
COMPLETED. For example, unpublished research projects, MSc or PhD
project work, research undertaken in practice or action orientated
projects.
If your research has involved working in partnership with service users
or carers we would like to hear about it. We would be grateful if you
would complete the ATTACHED QUESTIONNAIRE and return it to us. We are
offering to send each person who completes the questionnaire a summary
of our findings.
PLEASE NOTE:
1) We will be collecting information on this type of research until the
end of January 2005.
2) We are only collecting information about the involvement of service
users / carers in RESEARCH projects.
3) By INVOLVEMENT in research we mean an active partnership between
service users / carers in the research process, rather than involvement
as the 'subjects' of research.
4) We are not including involvement of service users / carers in other
activities such as seminars, commissioning groups or meetings.
5) We are interested in research with a nursing, midwifery or health
visiting focus that has involved service users / carers. The research
might relate to the promotion of community health, evaluation of
service provision and workforce, evaluation of specialist and new
roles, chronic and palliative care, symptom assessment and management,
education and competence or the interface with social care, or any
other aspect of nursing, midwifery or health visiting practice. We are
including research that has involved any age groups i.e. children or
adults.
6) The attached questionnaire focuses on the reasons why service users
/ carers were involved in the project, how this was achieved and what
aspects of involvement led to successful outcomes.
7) The information we collect will help to develop an understanding of
the complex and rapidly expanding area of patient and public
involvement in research. We will also invite some projects to be
included as 'case studies' in our final report, to show how involvement
can work in different contexts.
8) If you are unsure whether a project is within our remit or if you
have any comments or queries about the PIN project please email:
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Further information about the project can be found at:
http://www.kcl.ac.uk/nursing/nru/pin.html
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