Hi Mary,
I think it would be great if health visitors tried to empower
parents although they would be a drop in the ocean of negativity
that most parents experience when they have a disabled child!
Particularly in the very early years when certainly in my own experience
I wasn't expecting a disabled child and was instantly immersed in
a never-ending round of upsetting, clinical, insensitive, pointless and isolating
appointments with 'specialists'. My own health visitors role seemed
to be the odd phone call asking me to fill in bowel movement charts
every six months to re-apply for complimentary nappies.
I think the whole 'its the end of the world if your child is disabled'
attitude needs changing to 'its a different kind of world and it can be
just as groovy'.
I would be interested in how your research develops.
Best wishes,
Sara
> Thanks for the interest in my question. I do not think that there is any
> doubt that Health Visitors have a role in supporting parents with
> disability as far as it affects there parenting, and the family well
> being. However, perhaps what is for discussion as well is whether they
> have a place visiting and supporting families where it is the child/young
> adult who has the disability. There are so very many specialists involved
> often, so is another any use. I would argue that they are of great use if
> they introduce the ideas in the social model of disability, and empower
> families and individuals, But, i am not sure that many have the skills and
> experience to be confident doing so. Comments please? Thanks Mary timms'
>
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