I think you are being very insulting,
Neuro diversity is a common and non disablist term for a number of well
recognised disabilities if you prefer to keep within the medical model which
seems to be the case from your post
I have not invented any of the impairments I am diagnosed with, your
attitude is typical of the kind of thing that people with less visible
condition have to face and it appears to me you have mentally consturcted a
mental heirarchy of valid impairments
It seems as if you require the medical model to validate the social model
Well I am autistic, dyslexic and dyspraxic within every criterion that has
been established to allow me to legally describe myself as such. However
neurodiversity as a concept bears the interelationship of what would
otherwise within the medical model merely be "comorbidities"
The genetics of some of these conditions do also predispose some people to
physical characteristics, like hypermobility which can lead to erly
arthritis,
I am too busy for this debate at the moment, but there are many issues
around social construction and diagnosis you need to consider before being
so patronising and dismissive
As for demanding cures I think you have seriosly misunderstood the debate
which has perhaps not been well represented.
My brain is as different as yours is, cognition proceeds from neurology and
until now differential neurology has not been visible unless we die first
and are dissected, spect and pet scanning and MRI now allows these
differences to be percived for the first time. Nuff said,
Larry
> -----Original Message-----
> From: The Disability-Research Discussion List
> [mailto:[log in to unmask]]On Behalf Of Simon Stevens
> Sent: 19 January 2003 12:48
> To: [log in to unmask]
> Subject: Re: An open-debate on NeuroDiversity ! No Labels,
>
>
> Dear all,
>
> I have attempted to understand with neurodiversity with little success.
> It sounds like a self-defined impairment which people who want their
> social problems to be excused and medicalised to reduce their
> responsility.
>
> I have cerebral palsy and is as real as a glass of wing, and no matter
> of socialist imagination will stop of fact I have an real impacted. I
> accept many new impairments are just made up so non-disabled people make
> an mockery of disability and impairment. I am happy and proud of my
> labels!
>
> I wish people would stop pretending to have impairments that doesn't
> exist since I feel it is making a mockery of disabled people. Has the
> social model been scraps in preference to an stronger medical model?
>
> I personally not letting my life be put on the life because other people
> want to take the pissed and demand cures for make believe.
>
> Many Thanks, Simon
>
> --
>
> Simon Stevens
> Managing Director, Enable Enterprises
> [log in to unmask]
>
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>
> -----Original Message-----
> From: The Disability-Research Discussion List
> [mailto:[log in to unmask]] On Behalf Of Mariab
> Sent: 19 January 2003 12:35
> To: [log in to unmask]
> Subject: Re: An open-debate on NeuroDiversity ! No Labels,
>
> Hi Charmine;
>
> There is a group of people (some on this list who advocate this idea) a
> great paper by Shelley Tremain, makes that point as well. In practical
> terms however, within the constraints of the society that we live in I
> don't see how this would work. I sure wish it did.
> Maria
>
> ----- Original Message -----
> From: "Charmaine Driver" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Saturday, January 18, 2003 1:15 AM
> Subject: Re: An open-debate on NeuroDiversity !
>
>
> > Hi Colin et al
> >
> > I am most interested to read you views and perspectives on the
> challenges
> > and difficulties faced by neurodiverse people within many areas of
> society.
> >
> > I have been thinking for a while now that all disability categories -
> be
> > they the historical ones or the more recently voiced labels such as
> > neurodiverse (or for that matter neuro-typical) are in and of
> themselves
> > disabling. I am interested to know what you think of the idea of
> getting
> rid
> > of any language or label that refers to some sort of category of
> disability.
> > Instead I feel there is at least some value in replacing these sort of
> > 'disability-specific labels' with language that refers to peoples'
> > functioning and strengths and ways to maximise people's choice,
> presence
> at
> > places they want to be, access to places and activities and services
> they
> > see as useful, participation in programs, work, lifestyle and life in
> ways
> > that seem good to them, and opportunities to achieve as well as they
> can.
> >
> > This might seem simplistic but my work and experiences seem to be
> leading
> me
> > to a position away from 'disability' and 'labels' and towards a
> position
> of
> > inclusion and welcoming all people within society so that everyone can
> > really enjoy quality of life - whatever that is for each one as an
> > individual. I realise that in some parts of the world this would
> constitute
> > a huge social change agenda.
> >
> > All of that said, I also think that in the school room and workplace,
> as
> > well as society in general, there is a huge need for strategies and
> > opportunities for teachers, community members and bureaucrats who make
> and
> > steer policy, to improve their understanding of the way that various
> people
> > see the world, process experience and react / act in various
> situations.
> > Inclusion is great ... but I am not at all convinced that inclusion
> can be
> > achieved through a one-size-fits-all methodology - for schools,
> workplaces
> > or society. For everyone to really belong, I think that different ones
> might
> > well need different opportunities, experiences and perhaps a range of
> mentor
> > s and coaches such as many people use already.
> >
> > I am really keen to hear what people think about these ideas ...
> especially
> > as they might be constructed within re-conceptualisation of education
> > systems to achieve inclusive frameworks and maximised educational and
> life
> > outcomes for school students.
> >
> > Charmaine Driver.
> >
> >
> > ----- Original Message -----
> > From: "ColRevs" <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Saturday, January 18, 2003 5:07 AM
> > Subject: An open-debate on NeuroDiversity !
> >
> >
> > > Hi, My name is Colin Revell, Hull, England.
> > >
> > > I'm the founder of Hull and East Yorkshire NeuroDiversity Action an
> > educational socio-political, socio-psycho/medical 'users' human and
> civil
> > rights group.
> > >
> > > The group is about challenging Social Exclusion through a process of
> > re-learning and re-education. It's around challenging dominant
> ideologies
> > and discourses and out-dated views, prejudices and stereotypes within
> the
> > media and society.
> > >
> > > This group is new and also the understanding of NeuroDiversity is a
> term
> > that is not well recognised and accepted within society. There are
> > psycho-socio-political reasons for this and also the imbalance of
> power
> > within society with dominant discourses and ideologies, especially in
> the
> > medical model and psychiatry and psychology.
> > >
> > > I need to open up the debate on a working definition of what
> > neuro-diversity means to others ? Who do we define as neuro-diverse?
> > >
> > > I'm aware at present that individuals with Autistic Spectrum
> > Disorders(Aspergers Syndrome), Dyspraxia(Developmental Co-ordination
> > Disorder), Attention Deficit (Hyperactivity) Disorder(AD(H)D,
> Attention
> > Deficit Disorder(ADD) ( not everyone with concentration and attention
> > problems have 'Hyperactivity', especially as this wax and wanes at the
> > beginning of Adolescence, and for some individuals in adulthood it
> > disappears altogether, but not for all adults), Dyslexia, Irlen
> Syndrome,
> > Central Auditory Processing Disorder, Semantic Pragmatic Disorder and
> other
> > Specific Learning Difficulties(SpLd's), Chronic Fatigue Syndrome(M.E),
> > People who hear voices, Bi-polar(Manic) Depression.
> > >
> > > As you can see all these are medical terms, except People who hear
> voices.
> > >
> > > I'm in the opinion that individuals have the right to
> self-determined
> > labels, which challenges the dominant discourses and ideologies, in
> which
> > creates negative stereotypes and stigma. These medical labels have a
> > detrimental effect on an individuals self-esteem and their needs to be
> a
> > challenge within NeuroDiversityAction, in deconstruction of these
> negative
> > labels into individual positive identities.
> > >
> > > As I said I want to open-up the debate around NeuroDiversity and
> would
> > welcome your views, ideas and opinion around how I and others can take
> > NeuroDiversity forward within the 21st Century, in the globalised
> world,
> at
> > Local, National and International levels.
> > >
> > > I would welcome your thoughts on whom should be included and defined
> as
> > NeuroDiverse ?
> > >
> > > Who do we include as NeuroDiverse and then who do we exclude ?
> > >
> > > As many of you may beware that within NeuroDiversity cultures their
> is a
> > term called NeuroTypicals( this is the term used by NeuroDiverse
> individuals
> > for individuals whom are not-NeuroDiverse). There are many disabled
> people
> > who are NeuroTypical, so these individuals can't be included.
> > >
> > > Many NeuroDiverse individuals are excluded within society and have
> > difficulties with personal and sexual relationships. They also have
> the
> need
> > to discuss sexuality issues. but have no-one to turn to, due to their
> > isolation and the statutory health and social services not meeting
> their
> > needs.
> > >
> > > What do others know about a U.K charity called SPOD ?
> > >
> > > This organisation campaigns for a better understanding of the
> sexuality
> > and sexual needs of disabled people.
> > >
> > > I had a conversation early last year with someone from SPOD and I
> was
> > informed that many of their queries are from men who are neuro-diverse
> with
> > Aspergers Syndrome. Their queries are mostly around the use
> prostitutes
> and
> > escorts.
> > >
> > > This person and I discussed the need for sexual surrogates, in which
> is
> > happening some disabled people in London and other areas of the U.K.
> The
> use
> > of sexual surrogates are commonly used across many parts of Europe by
> the
> > health and social services and sex is accepted as a basic human need
> for
> > disabled people.
> > >
> > > What are people's views on sexual surrogates for NeuroDiverse
> individuals
> > ?
> > >
> > > Is NeuroDiversity an impairment? Do you believe that NeuroDiverse
> > individuals should be categorised as a disabled person ?
> > >
> > > How does NeuroDiversity fit-in with the social model of disability ?
> > >
> > > So, this is why I need your support an open-debate ?
> > >
> > > NeuroDiverse individuals have the same basic human needs as all
> human
> > beings, but as I said they are excluded, why ?
> > >
> > > What are the environmental barriers and threats to NeuroDiverse
> > individuals. Chemical and food/drink allergies and Intolerances ?
> > NeuroDiversity individuals are more at threat by environmental toxins,
> due
> > to their genetic-sensitivities.
> > >
> > > This is a basic human rights issue due to the damaging effects of
> these
> > toxins of neurodiverse individuals physical body and mind, in which
> impacts
> > on their mental health.
> > >
> > > NeuroDiverse individuals may have great difficulties metabolising
> these
> > toxins from their bodies and this impacts on their minds.
> > >
> > > They need access to detox and should have the right to be prescribed
> > alternative medicines, drugs, treatments and therapies. It had been
> well
> > researched that neurodiverse individuals have adverse side-effects to
> many
> > prescribed drugs, especially psychiatric drugs, in some cases have
> been
> > fatalistic.
> > >
> > > What are the learning, structural, social, cultural, attitudinal
> barriers
> > ?
> > >
> > > How can NeuroDiverse individuals be more socially,cultural and
> > economically included ?
> > >
> > > Are NeuroDiverse individuals the genetic underclass of the 21st
> Century
> ?
> > >
> > > What are people's fears around genetic engineering and cloning ?
> Does
> this
> > mean that NeuroDiversity will be eradicated from the genepool and
> society
> in
> > the future ?
> > >
> > > Any more questions would be welcome in this open-debate!
> > >
> > > Larry Arnold, If you can express your personal experience and views
> this
> > would be welcomed.
> > >
> > > Larry or any other person with a interest in this subject can you
> please
> > send a copy of this e-mails to other relevant forums on the internet
> who
> you
> > believe should be included in this debate.
> > >
> > > People can also e-mail me privately and confidential with their
> > constructive views, idea's and opinions. I will not accept any
> abusive
> > e-mails, so don't waste your time if you are not prepared to give
> > constructive criticism. My e-mail address is:-
> [log in to unmask]
> > >
> > > If any neuro-diverse individuals want to join NeuroDivergent Action
> then
> > the is a yahoo support group/forum at:-
> > > [log in to unmask] . This is a support
> group/forum
> only
> > for neurodiverse individuals and you need to go through the moderators
> to
> > join.
> > >
> > > I hope to hear from you all and your interesting constructive views.
> > >
> > > Regards
> > >
> > > Colin Revell
> > >
> > >
> > >
> > >
> > > ________________End of message______________________
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> >
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> >
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> >
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> >
>
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