----- Original Message -----
From: "Louise Locock" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, November 06, 2003 10:09 AM
Subject: Patient-oriented sources of evidence
> List members might like to know about the following:
>
> DIPEx (personal expereinces of health and illness) is a charity, with a
> research groups in the University of Oxford, which runs a website
> www.dipex.org based on research studies of the experiences of different
> illnesses. At the moment there are modules for cancers of the breast,
> bowel, prostate, testis and cervix (and cervical screening), hypertension,
> epilepsy and parents of children with congenital heart disease. Lung
> cancer and heart failure are about to be launched and we are also working
> on antenatal screening, sexual health of young people, chronic pain,
> depression, end of life, ovarian cancer, heart attack , rheumatoid
> arthritis and people with dementia and their carers.
> Each module includes a carefully balanced sample of narrative interviews
> with 30-50 people from all over the UK - which are analysed for the site
> using qualitative methods and illustrated with video, audio and written
> clips. The information and Q&A section of the site is based on the best
> research evidence and there are links to other sites with DISCERN
> ratings. DIPEx is keen to collaborate with groups in the UK and
> elsewhere to seek funding for future modules. Contact
> [log in to unmask]
>
>
> Louise Locock
> Senior Qualitative Researcher
> DIPEx
> Dept Primary Health Care
> University of Oxford
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