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DISABILITY-RESEARCH  October 2002

DISABILITY-RESEARCH October 2002

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Subject:

FW: right to reply

From:

Mark Priestley <[log in to unmask]>

Reply-To:

Mark Priestley <[log in to unmask]>

Date:

Wed, 16 Oct 2002 10:06:45 +0100

Content-Type:

text/plain

Parts/Attachments:

Parts/Attachments

text/plain (152 lines)

Hi

I'm forwarding the following message from Tom for information but would be
grateful if list members could refrain from continuing the conversation here
(at least in any manner that might be construed as flaming). It's not the
purpose of this list.

Can I also remind everyone that discussions on the list are public and very
widely read. They should be conducted within established netiquette (and of
with a view to the law of slander and libel).

Best wishes

Mark (list administrator)

-----Original Message-----
From: Tom Shakespeare [mailto:[log in to unmask]]
Sent: 15 October 2002 17:48
To: Mark Priestley
Subject: Fw: disability research


Dear disability research friends and colleagues,

I notice that I have been rather viciously flamed on this list.  Can I just
put the record straight on a couple of points?

1.  Restricted Growth Association is one of those interesting voluntary
groups which includes both parents of disabled people, disabled children,
and disabled adults.  It is not a radical disability movement organisation,
but it does lots of good work, and needs all the support it can get.  Over
the years, I have written various articles for the RGA Newsletter on
disability rights themes, gently trying to broaden the perspective.  None
could be called post-modernist!  I was also proud to have persuaded the
organisation to affiliate to British Council of Disabled People, as a
majority disabled-controlled group.

2.  'Shortlist' is an email discussion group of people affected by
restricted growth which I moderate with a colleague - a very progressive
professional disabled woman of the highest integrity.  As with all email
lists, we have had problems with flaming, and with off topic messages.  We
welcome all posts connected with restricted growth, including political
discussion, but we want to avoid general disability rights or political
chat, because other lists exist for that kind of thing. We are having a
great thread at the moment about our participants objection to negative
representation of people with restricted growth on TV, so it would not be
accurate to suggest that this was an apolitical forum.  As a result of
problems and personal offence caused to members, we reluctantly converted to
a moderated list recently, not so we can suppress debate, but so we can
avoid personal insults and pointless argument.  This was in response to
demands from the membership, whom we have surveyed on several occasions.

3.  With a colleague, I am currently involved in a research proposal to
explore the lives of people with restricted growth, both medical and social
dimensions.  This research is managed by the Restricted Growth Association,
and I would be happy to explain more about our aims and methodology off
list.

As always, I am happy to answer any queries about my work, off list.  I
stand by my record in disability studies and disability rights, and if
people have rational comments or criticisms to make, I am always pleased to
receive them.  Many people have questioned and challenged me, which I
welcome.  A few have directed personal and unfounded abuse at me, just as
they have at other 'tall poppies', which I believe should have no place on a
list like this, or indeed in the wider disability community.

Tom Shakespeare
[log in to unmask]


----- Original Message -----
From: [log in to unmask]
To: [log in to unmask] ; [log in to unmask]
Sent: 15 October 2002 11:30
Subject: Shortlist Dwarfs in Entertainment



<Dr Mike Wright (a clinical geneticist) and I (a sociologist)
are planning a research project, hopefully in partnership with RGA,
which would explore the social and medical experience of adults
with restricted growth..Tom Shakespeare>>

Amongst other things, I was involved in the British restricted growth
community at a grass roots level, at least, 10 years before Tom Shakespear
was born. I have read his work at an academic level.  Over at least the last
10 years or something  he has written many,
telling-it-how-it-is-going-no-where  post modernism type articles for the
Restricted Growth Association  newsletter. For a number of years he was
policy adviser for the Restricted Growth Association.
http://www.rgaonline.org.uk/ (Where?)
As we know he has made many appearances, "supporting our rights", on UK
television  and so on.

Why has he chosen one of the most unpoliticised and  unmotivated members of
the UK restricted growth community, discussion list,  to Co-Moderate the
list?   All emails have to "pass through"  this Co-Moderator to access the
list - the gatekeeper. Very convenient, it seems.

As a consequence of this, many debates (small d) around diversity,
neuro-diversity, cultural issues, bioethics?? human rights,  are stiffled
and
discouraged on the list. Also, as a consequence of the strict moderation
rules, the  current contributors are indeed  a very powerful reflection of
the mainstream, elitist and paternalistic  UK Restricted Growth Association
membership.  His research is also in consultation with the Restricted Growth
Association.

No one seems to have the disability politics or power within the restricted
growth community to publicly (or privately on the list) question him, his
work,  his ethical thinking or background, (and I don't just mean question
negatively) as anyone would with any researcher or question his position as
list owner of Shortlist, although it is evident that some members are
unhappy
about the situation.

I have come a long way and have seen too much to let this one go.

Whose side is he really on? The oppressed or the oppressors?

Will his  research  help improve the  lives of short people within the UK
or will it just be  another piece of, self promoting, academic,  rhetoric
rubbish, which doesn't go anywhere or change  anything - again?

Liz Fetes
HRAaA

(there you go Tom am I still an embarrassment to the disability movement?)

My apologise to use this forum for this everyone and it doesn't please me at
all,  but there was no other way to bring this issue regarding UK human
rights and restricted growth  into political accountability and therefore
into an open forum.

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