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Judy is absulutely right. You may know a lot about being deaf Marian, and about deaf people, you may well be the fountainhead of knowledge; but when it comes to other disabilities you are just an other voyeur like Laurence (no offence Laurence) looking through the window, but not FEELING the rain. Have a good weekend, what's left of it. rgds John -----Original Message----- From: Judy Singer <[log in to unmask]> To: Disability Research <[log in to unmask]> Date: 24 July, 1999 23:47 Subject: Re: parents of (and) >Marian, you wrote: > >> I feel I want to ask the obvious - respite from what? From the >> responsibility of 'caring'? From disability? From impairment? > >What are you asking??? How about respite from being repeatedly >dive-bombed by an obsessive, peseverative, highly strung, hair-trigger >sensitive, empathy-less when stressed, illogical, mind-numbingly boring >and repetitive, chaos-making, labour intensive, screechy voiced >demanding little person who never sleeps???- > >And I hope I can say this without anyone jumping to any conclusions >about my relationship with my child, based on a good century of Freudian >inspired parent-blaming - > >If you or Laurence have any concrete ideas on how "society" or "social >services" can improve this situation, I'd love to know. > >And can you explain what you mean by respite versus support - what is >this "respite" or "support" supposed to look like? > >I fully expect everyone to be up in arms, but I think that's because >when disability theorists talk about the universal category of >disability, what they're really thinking about is perfectly nice, >rational people with physical impairments, and several University >degrees just like themselves - Mairian, when you talk about disability, >you seem to be talking about the deaf, but what is your understanding of >the lived experience of people with intellectual/ communicative/ >neurological disorders and their families? > >Judy SInger > > > %%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%