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Carolyn,
I have been a quadraplegic for 22 years. I disagree with almost everthing you say
in this post.
Henry

Carolyn Tyjewski wrote:

> It has been assumed in several posts on the topic (prevention vs./& inclusion)
> that disability is, obviously, a thing that is unwanted, undesirable, and, of
> course, no one would choose to be disabled or choose to have a disabled child,
> etc. if it could be prevented and, therefore, inclusion and prevention are not
> contradictory.  There's a real basic problem with this line of thinking that no
> one has brought up yet -- at least, not since we left the discussion of why one
> would possibly like themselves as Disabled -- and it should be pointed out, so
> here goes. . . .
>
> The assumption that what society defines as a disability is an obviously "bad"
> thing that should be corrected/prevented stems from an empowered position that
> defines difference as wrong and is no different than defining dark colored
> skin, homosexuality, etc., as wrong and in need of correction or prevention due
> to a perceived flaw in a physical or mental trait.  And it was not so long ago
> that these very same arguments were being made in the name of "race betterment"
> against those of different hues, sexual preferences and other differences --
> including disability.  To some extent, these assumptions still exist about
> race, sexuality, etc.  Those who believe that "lighter is better" don't need to
> ask Johnson Cheu if he'd like to be white.  They just assume it because "no one
> would choose to be anything else.
>
> Whoever suggests that my Disabled body is like the lemon clunker a used car
> salesman is selling to some unsuspecting pawn is, to say the least, confused.
> I'm a '65 Corvette Stingray in pristine condition and low mileage, Baby.  I'm
> not a used car.  I'm a rare classic.  Like those in the Deaf community Paul
> Preston interviewed in _Mother, Father, Deaf_, if I were to have children, I'd
> prefer to have one's that are like me.  If they weren't, that would be ok but
> it doesn't change the fact that I'd prefer, like most people, to have children
> who had my characteristics, my traits, and that includes what society has
> deemed my disabilities.  Why?  Because I don't define disability in the same
> manner as most of society.  I don't define disability as an impairment, an
> imperfection.  Disability is just a physical or mental trait that is not
> considered "normal" and that society has decided is incorrect and in need of
> correction/prevention/assimilation.  I don't see things "through a haze," as
> someone else suggested.  I see things quite clearly.  Understand, what you
> perceive as "blurry" is crystal clear for me because, unlike you, I am capable
> of interpreting that "blur" for what it is (a car, an individual, whatever)
> just as you are able to interpret those same objects as you see them and for
> the same reason -- it's always looked that way.  As I discussed with a friend
> earlier today, human beings are adaptable creatures.  One either figures out
> how to use what one has to live in an environment or one dies from the
> inability to figure shit out.
>
> Just because a society has created an environment that is more hostile towards
> people with certain physical traits than it is towards people with other, more
> "average" -- perceived or real -- physical traits does not make the people or
> those certain physical traits "wrong" and in need of repair or prevention.  The
> United States and other Western countries are not friendly environments for
> many people of difference.  However, in discussing prevention of those defined
> as Black or Hispanic or Gay, one would not be likely to suggest that prevention
> and inclusion are not contradictory terms.
>
> And yet, here we are acting as if this is perfectly reasonable topic to discuss
> and a logical idea to have in terms of another difference -- disability.  Some
> among you have claimed that the difference is a monetary issue.  We're a drain
> on society.  We're dependent.  According to the Board of Education of Topeka,
> Kansas (Brown et al v. Board of Education et al), Black children were a
> monetary drain on the educational system better spent on white children.  The
> same is implied in books like _The Bell Curve_.  In the US, conservatives have
> suggested -- some even insist -- that homosexuals, bi-sexuals, and
> transgendered are not only a monetary drain on the US -- by assuming/suggesting
> that we all have and are the only one's who get and transmit AIDS -- but also a
> drain on the moral fabric of America.
>
> And the list of prejudices goes on and on and on without ever an admission, or
> even the barest of recognition, that societal prejudices which have created
> extreme inequalities has created the "drain" that everyone in society, no
> matter their situation, ends up getting sucked down.  And I recognize that some
> who identify, or are identified, as disabled believe that disability is
> inherently wrong.  I am also aware of a term for it -- internalized oppression.
>
> And yes, I realize I have taken this discussion personally.  How can I not?
> You are calmly discussing my extinction and acting as if you include me while
> you try to get rid of or prevent those like me that it isn't a bad thing or a
> questionable thing or contradictory!   Like it or not, to discuss the
> prevention of disability is to discuss the prevention of the persons who have
> those physical and mental traits because, as has been stated before, those
> traits have -- for better or worse -- been a part of the fabric of that
> person's experience and thus, been a factor in the creation of the individual
> you wish to prevent.
>
> To put it in other terms:  Suppose society is able to prevent, most of the
> time, Black people from ever being born and, at the same time, society included
> those, who did manage to be born, in society. . . .  Would it be
> contradictory?  Would you see anything wrong with it?  Those who see nothing
> wrong with the argument of prevention on those terms have already had their
> epitaph written, ". . . . and then they came for me and there was no one left
> to say anything."
>
> --
> Carolyn
> check out, "Passing, Invisibility and Other Psychotic Stuff" at
> http://www.tell-us-your-story.com/_disc68r/00000003.htm
> Add your story
> at http://www.tell-us-your-story.com
> Finding What We Have In Common One Story At A Time*



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