Advocates of the bogus Wilson's syndrome are around in the UK
as I discovered last year when I was asked to review the case notes of a 39 year
old female who presented to her GP with weight gain, general malaise, fluid
retention and dry skin. She was considered euthyroid and her TSH was 2.5 IU/L.
Being a keen Net surfer she diagnosed herself as having Wilson's syndrome
and several of these lengthy articles were in her notes. The claimed
problem of this condition is the inability to adequately convert T4 to T3 and
the treatment is to give substantial doses of T3 ( upto 200 - 300 ug/d)! The
patient failed to convince her GP or Consultant to treat her this way so she
tracked down through the Net a private doctor in Surrey, who prescribed T3 ,
prednisolone and fludrocortisone.We have since heard that not only have her
symptoms not improved but she now suffers from palpitations. The fact that she
had her ovaries removed 5 years ago and gave up taking oestrogens 3 years later
and switched to a natural progestagen instead seems to have been
overlooked.
Like others I came across the Quackwatch web site run by Dr
Stephen Barrett which is dedicated to exposing medical myths and bogus
practitioners. It is well worth visiting to see the details on the latest 'Fad'
Diagnoses which are either legitimate conditions that unscientific practitioners
overdiagnose (eg chronic fatigue syndrome) or figments of pseudoscientific
imagination (eg Wilson's and mercury amalgam toxicity).
Roy Fisher
Royal Cornwall Hospital