JISCMail - RSS-SOCIAL-STATS Archives

This event will require registration, which will be available later on today. A number of speakers are listed below, but we will also be discussing issues for the future. More detail of the venue etc will be listed with registration details but please get in touch if any questions.

Tom

Speaker: Madeleine Murtagh (Newcastle)

Madeleine chairs METADAC and will outline their evolving approach to ethics of genetic data including international and interdisciplinary perspective.

Speaker: Peter Elias (Warwick)

Peter will speak about an ESRC sponsored OECD report he chaired on the ethics of emerging data in social sciences.

Speaker: Mary Tully (Manchester)

Mary will speak about citizen jury work by Connected Health Cities and Farr, which will include some interaction, subject to technology.

Speaker: Simon Whitworth (UKSA)

Simon will describe the evolution of the ethics of access to data through ONS and in future through the research provisions of the Digital Economy Act.

Speaker: Tony Calland (NHS)

Tony chair the confidential advisory group (CAG) of the HRA and will outline the legal and ethical importance of privacy when using existing health data in research.

publicstatistic.wordpress.com

On Thu, May 24, 2018 at 11:29 AM, Thomas King <[log in to unmask]> wrote:

The Emerging Applications and Social Statistics Sections are organising a joint Section meeting on 18th June, in Manchester. The meeting will run run 11am-4pm in the Bridgeford St Building of Manchester University, with lunch provided.

In January, the National Centre for Research Methods (NCRM) organised a meeting on Creating Research Data Policy. Due to interest from members, the RSS sponsored the meeting, and is organising this meeting with NCRM to follow up some further issues.

The meeting will consider the evolving ethics of research using emerging data, from several diferent perspectives. Data types have emerged from administration and linkage processes, as well as genetics. Ethical processes have evolved from legal access and privacy processes to considering public benefit and group stigmatisation. Consent for complex and novel uses presents challenges for alternative methods of public deliberation.

Discussion about ethics such as the Data Manifesto proposed council for data ethics have been dominated by AI and the private sector. This will be an opportunity to consider statistical issues and the role for the RSS in making sure these are heard.